Positive Note

shelleymogui
shelleymogui Member Posts: 88
edited 8. May 2011, 05:31 in Living with Arthritis archive
Hey all,

I apologise for my absence. I was the girl ages ago who joined this site because my father had knee surgery for his RA. Since my last posts we have battled the system and we got ESA...finally after an appeal.

I just wanted to tell you or whoever is going through it to stick with it.

Even though we haven't stopped trying and fighting (you can only work the 16 hours permitted work for 1 year - this is our next battle) it has made things slightly easier to deal with and now all is left is to get my dad into a better house with proper heating and hopefully figure out what happens in November when he cant work the 16 hours anymore.

I will gladly give help to anyone doing the ESA forms/appeals as I know how much I valued any advice given to me at that time.

Take care all

Shelley x

Comments

  • frogmorton
    frogmorton Member Posts: 30,027
    edited 30. Nov -1, 00:00
    Hi Shelley

    GOOD to see you!!!!

    OPf course you ahven't been forgotten and well done for getting teh ESA in the end :smile:

    I do hope all is well with your Dad healthwise and you are managing financially together?

    The offer of help with ESA will definitely be taken up by those on here for sure....ESA is a constant battle.

    LOve

    Toni xx
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Shelley,

    I second what Toni aid flower and do really hope your dad is feeling and coping a bit better?

    Well done on the ESA its all so wrong but you do have to fight it seems.

    You both take care and nice to see you again. Cris x
  • shelleymogui
    shelleymogui Member Posts: 88
    edited 30. Nov -1, 00:00
    Hey guys,

    Thanks for replies. At the minute we're now trying to figure out what happens in November when he isnt allowed to do the 16hrs. Thinking it may be worth coming off esa on to working tax credits. Just doing the math.

    It's been great for my dad still being able to do a little work because he was a workaholic and still is now it seems which is a great thing.

    A house is the next thing and calculating income,as living in a house with not proper heating doesnt do his joints any good.

    He is off steroids now tho which is amazing because he's lost weight, giving him more energy.

    Hope u all are ok and that Arthur is keeping at bay!

    What's happened since i left? Any news?
    Xx
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Shelley,

    Ell you would have some reading to do to catch up :lol:

    Your right about the heating as I don't have central heating and if I get too cold the bones bang more.

    I hope the math will help you decide? I don't know much about ESA but make sure you do calculate everything before changing.

    Glad he is doing ok and keep in touch. Cris x
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hi Shelley
    Thanks for sharing this , I love positive news, like you say it will helps others that are filling in there forms or even thinking about it.
    Im so glad it has help your dad with the house, its not much to ask is it.
    Why they put all these restrictions on is beyond me.
    Oh and welcome back
    Take care
    Love
    Barbara x
    Love
    Barbara
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Hi shelly

    I am pleased you have managed the esa battle and thank you for offering to help if any of us need it.

    Your next stage is a different house yes? I wish you luck and hope something comes along soon.

    You and your dad take care
    love Juliepf x

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