Sulfa & MXT Club....

lorica
lorica Member Posts: 187
edited 12. May 2011, 09:07 in Living with Arthritis archive
Hi all,

Sorry not been around much just had a bad flareup in my jaw and my wife is seriously ill...

A few things have happened to me over the last few weeks, had an appointment with Rheummy, Sulfasalazine has been added to my smorgasbord of drugs, goes nicely with my Methotrexate. My Doctor has also amended my pain killers as the co-codamol wasnt strong enough...
so I well and truly rattle.
Today is my first day on sulfa so only had one tablet and so far so good no hint of side effects.

Been turned down for a second time for ESA, the fictional atos report went against me... Its now going to appeal, have a rough date for appeal as the last week in October 2011.

My tribunal decision appeal is still on going, so still being paid peanuts... :sad:

Mark

Comments

  • mp1952
    mp1952 Member Posts: 425
    edited 30. Nov -1, 00:00
    HI Mark

    So sorry to hear you are having a rough time with things at the moment and sorry to hear about your wife.

    I have had a few flare ups in my jaws over the last couple of years and they are not nice at all..

    I know many people do really well on sulfasalazine.. I hope it works for you. ANy chance of going on an anti-tnf drug?? I started one 2 weeks ago and am feeling much improved on it..

    Marion
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Mark,

    nice to see you again but sorry to see you and your wife have had such a rough time of it of late. Will keep my fingers crossed that things will improve for you both and get a bit easier. Cris x
  • madwestie
    madwestie Member Posts: 383
    edited 30. Nov -1, 00:00
    Mark sorry to hear things are not going well. I hope the sulpha helps you.
    good luck with you appeal it is madness that you have got to go through all this rubbish with ESA as well as deal with the pain of the disease.

    Tracey
  • tillytop
    tillytop Member Posts: 3,460
    edited 30. Nov -1, 00:00
    Hello Mark

    I am so sorry to hear how things are for you and your wife at the moment.

    I really do hope that the sulfa helps you.

    Thinking of you both.

    Love Tilly xxx
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Hi lorica, welcome to the meth/sulph combo. I have been on both for years and can honestly report very few side effects: I now have to be careful of the sun and the sulph has caused tinnitus (I have been on six tablets daily since March 2002 and I think it didn't begin until a good few years after that), the fluorescent wee isn't a problem (but do remember to tell nurses who require urine samples what has caused it otherwise you get lengthy talks about drinking more water etc) and I hope the drugs do more for your arthritis than they do for mine - that shouldn't be too hard! Take care and I hope Mrs L is better (and perhaps now has a little more understanding about what Mr L faces on a daily basis). DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • frogmorton
    frogmorton Member Posts: 29,836
    edited 30. Nov -1, 00:00
    Hi Mark

    Good to see you again.

    Sorry about the jaw....that only happened to me the once and it was dreadful :sad: I do hope your poor wife is ok and you are managing to look after her.

    Hope the sulfa does the job for you though and glad to have you back.

    Love

    Toni xx

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