Tilly's second infusion is due tomorrow.

kneegirl

Hope it went ok Tilly xxxx

tillytop

Thanks all for your kind words and thoughts.

I will reply properly tomorrow when I am more "with it" but just to say I am home and very tired but otherwise fine.

Thanks again!

Love Tillyxxx

Poppyg1rl

Glad your home and that it went well.
Take it easy and rest up, sending hugs your way (((((()))))) xxx

tillytop

Morning lovely peeps!

Just wanted to say thank you again for the kind thoughts and encouragement - really helped!

The infusion went fine thanks although they were concerned because my blood pressure was quite high so they decided to run the infusion more slowly so it seemed to take a very long time.

I'm fine today - not so zonked now the IV antihistamine has worn of. Just tired and a bit "wobbly" from time to time. Nothing new there then. :roll:

So that's it now for 6 months. Rituximab is quite slow to work apparently so I've been told I may start to feel some benefit within the next three months or so but not to worry if not cos it can take longer than that.

Ratface - you mention that you are due to start Rituximab soon - if you would like the benefit of my - now extensive - experience, please feel free to send me a PM.

Thanks again all.

Lots love Tilly xxx

stickywicket

Good news, Tillytop.

Thanks for letting us know. So, you'll be all ready for the Ironman/woman challenge in 3 months or so? I'll look forward to reading of your exploits.

Hope it all works really well for you.

julie47

Hi tilly

glad you are not feeling too bad today and the infusion went well but slow.

I hope the infusion works and after the 3 months you are really feeling the benefit.

Take care
Juliepf x

tillytop

Thanks Julie and Sticky!

Oh yes, Sticky, I shall be signing up for that challenge indeed

Love Tilly xxx

ironic

Hi Tilly,
I am glad you have finished the infusion, it does seem a long time to wait to see if it works but it is marvellous if it can carry you through for so long. Do you carry on taking all the other meds while you wait?
Oh do hope you get some results quicker than you think.

Well done you.
Hugs from, I x

Wonkylegs

HI Tilly

so sorry I missed your pocket - and particularlly since you made it into mine today :oops:

glad you survived the experience, and I will keep what I can crossed that you start to see some decent results. Suddenly your infusion sounds tempting ... did I really read that right ... no more for 6 months :eek: Makes every 8 weeks seem far too often

big hugs
WOnky xxxx

suzygirl

So, so, sorry Tilly, have only just seen this. Please accept my apologies.

I hope you are doing ok and have no major side effects from this.

(((hugs)))

tillytop

Thankyou Ironic, Wonky and Suzy.

Ironic I do just continue with the other meds - and hopefully, if the Rituximab does its stuff, I will be able to reduce the steroids and possible reduce the dose of mtx a bit which would be good. And you are right it does seem a long to wait for results and I am not the most patient person in the world. :roll:

Wonky - please don't apologise, it was lovely of you to post on my thread when things are so tough for you at the moment. Yes, you did read right - only every six months and potentially longer between future Rituximab infusions which, if it does its stuff will be brill! Hope your infusion went well Wonky and that you are not too horribly washed out this time.

Suzy - lovely to hear from you! No side effects at all (yet). I was warned that I would probably feel rough and, because I don't, I'm now worrying it might not be working :roll: . How stoopid is that?

Thanks all,

Love Tilly xxx

ironic

Hi Tilly,
Thank you for answering me. That would be fantastic if you could decrease the mtx and only have the infusions twice a year.
Fingers crossed you feel the effects within the three months. It is amazing how things have progressed over the last few years. It gives us all hope.
Lv, I x

mp1952

Glad it's over and done with Tilly and really keeping my fingers crossed that it works for you.

Marion

tillytop

Thankyou Ironic and Marion for your kind words.

Love Tilly xxx

Poppyg1rl

Hi Tilly,
How are you feeling now? Hope you've been resting and that the infusion starts working/helping you soon. Much love and hugs ((())) x

tillytop

Thanks Poppy.

I feel fine actually cos I'm still getting the boost from the lovely steroid infusion . Just got to wait now to see if the magic happens.

Hope things are improving now for you Poppy.

Thinking of you.

Lots love Tilly xxx

stickywicket

tillytop wrote:

Just got to wait now to see if the magic happens.

Sorry, Tilly. I failed my magician's exams but here's one from Harry Potter - 'Cave inimicum' which is supposed 'to strengthen the enclosure against enemies.'

If it works can I have it back please?

tillytop

Thanks for that Sticky!

Speaking of Harry Potter - I'm still on the hunt for some of that "Skelegro" stuff which I reckon would go down a treat on here!!!

Love Tilly xxx

constable

Hi Tilly

I am so sorry I missed this completely. Glad it is all over and hope that you start feeling the benefits very soon.

Karen xx

skezier

Hi Tilly,

Will lend you my house elf... he might have some though he wont beat him self over the head with it.... I hope......

leaving tea and cdm in the tree above the deers climbing holes.

Really hope you will be able to reduce some of the other things and fingers crossed you get a good result from it. ((((( ))))) and a bucket of 'find an elf' which you might need..... Cris xx