Sorry gents ladies problems continued!!

katekelly
katekelly Member Posts: 975
edited 14. Jun 2011, 15:42 in Living with Arthritis archive
Well Ladies - I've seen the Gynaecologist and I've got more questions than answers!
To cut a very long story short yes I'm in need of 'some' surgical intervention as I have a form of endometriosis. I've been given 3 choices all of which involve a general anaesthetic. 1. A D and C and a mirana coil fitted 2. A Dand C and a womb ablation or 3. An abdominal hysterectomy. Choice 1 - not going to happen - had one of those coils fitted before ended up in A&E haemmorhaging. No2 is having the lining of my womb cauterised so is a possibility and 3 is the only 'cure'. Gynae doesn't want to do 3 really because of Anti-TNF and my immune system. So I've spoken to the nurses at my TNF clinic and they say the risk of infection will be minimal because of coming off it for 4 weeks before hand. The nurse said not to let the TNF have any bearing on my decision. So now I've got to decide which way to go. So any of you out there had an ablation done? How was the recovery? I don't know whether to go straight for the hysterectomy because there is a chance of the effects of the ablation only lasting for a few months.
Any advice as always very welcome.
Thanks
Kate xxx

Comments

  • bertyboy
    bertyboy Member Posts: 1,860
    edited 30. Nov -1, 00:00
    hi Kate it has to be the right choice for you , i also had this that and the other before finally having a hysto , but i didnt have the same issues to think about , i hope it becomes clear for you x
    I know i am a lady ,all life is a journey xx MAY xx
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    Hi Kate
    Sorry not gone through this {not sorry at all :P } but sorry I cant help you with your decision.....so good luck sorting it out

    Love
    Hileena
  • margareth64
    margareth64 Member Posts: 148
    edited 30. Nov -1, 00:00
    Hi Kate,
    I had a hysterectomy after having a prolasped womb I was 32 . Id had pains and heavy periods for ages and couldnt cope with it anymore, so I was very relieved that I had this done. It solved my problems straight away, I know I had a different situation than yours but its the only thing that worked for me!
    Margaret xo
    Margaret
  • frogmorton
    frogmorton Member Posts: 30,027
    edited 30. Nov -1, 00:00
    Oooh Kate :???:

    I have no experience of this at all...

    however for what it's worth....

    the D+C may be worth a try, but only a stop-gap - sticking plaster...ok if age will be about to solve the issue????

    can they not do the 'other' the 'other' way?? (you know what l mean?! :oops: ) quicker recovery l think.

    l tend to be' in for a penny'...if you know what l mean :wink:

    Love

    Toni xx
  • theresa4
    theresa4 Member Posts: 696
    edited 30. Nov -1, 00:00
    Hi Kate


    I am 3 years on from my ablation this month mine was for fibroids, I am very happy at present. It did take me a while to recover from the ablation though I was in alot of pain for mearly 2 weeks even though they said it would be 2 days ish. I had the same problem with the mirena coil though I had to be put under for that and had pain for a week then the bleeding thing fell out :shock: so it was ablation or hysterectomy. It doesnt work for everyone though. sorry not much help really it all cmes down to choice. I just wasnt ready for the hysterectomy yet.

    My friend has severe endemetriosis and was told she would never have kids she was 29 she started acupunture at a chinese acupuncturist and it seemed to help for a while and she now has 2 kids. She cant afford the acu treatments anymore and it has returned with a vengeance. Again may not be relevant to you
    Good luck whichever you decide xx
    There are many things in life that will catch your eye, but only a few will catch your heart...pursue those. --Michael Nolan



    Theresa xxx
  • katekelly
    katekelly Member Posts: 975
    edited 30. Nov -1, 00:00
    Hi All,

    Thanks for all the advice and I have made my decision about which way I want to go with my surgery. I have spoken to the Anti-TNF clinic, my Hubby and my Sister at some length and I think I'll be going along the route of having the ablation. So I'll ring the Gynae next week and try to arrange for the next step.
    I'll keep you informed.
    Thanks again.
    Love Kate xx
  • theresa4
    theresa4 Member Posts: 696
    edited 30. Nov -1, 00:00
    good luck Kate

    xx
    There are many things in life that will catch your eye, but only a few will catch your heart...pursue those. --Michael Nolan



    Theresa xxx
  • katekelly
    katekelly Member Posts: 975
    edited 30. Nov -1, 00:00
    Hi All,

    Well I am booked in to have an Ablation on 22nd of August. I could have had it sooner but I've booked a holiday for Sarah and myself at the end of July so this means I can go to Majorca and then come off the Anti-TNF for the next four weeks. It also means I can come back off my hols and make sure everything is up to date with work.

    So fingers crossed (if you possibly can) for a happy outcome.

    Love Kate xx
  • traluvie
    traluvie Member Posts: 2,579
    edited 30. Nov -1, 00:00
    Hi Katekelly..

    I too have endometriosis.. Have suffered for over 12 yrs, i am 31..
    I have numerous surgiries.. And was put on every contraceptive method but not much worked.. At 29 i had hysterectomy minus my left ovary so i didn't go into early menopause...I was great for 6 months then my symptoms have came back..
    My advice to you is do not rush into hysterectomy as it is NOT a cure for endometriosis.. I would opt for Ablation(which i see you have) If done thoroughly it can be very succesful..
    I wish you well and if you need to pm me then feel free to be happt to answer any questions..xx
    th_tn_TisFORTIGGER.jpgxxTracyxx
  • woodbon
    woodbon Member Posts: 4,969
    edited 30. Nov -1, 00:00
    Hi, I'm sorry you have to face these choices, I had endo and a hystorectomy at 30, but that was a had decision which I made with the help of my husband and doctor, I was very glad and always have been, but thats me. You'r different and have
    different. Their is a very good web site called endometrosis-uk which has lots of information on it. I used it when I had my cyst problems a while back. I don't know if they would help you, but they are set up to help people with endo problems.
    Good luck, Sue xxx
  • frogmorton
    frogmorton Member Posts: 30,027
    edited 30. Nov -1, 00:00
    Good plan there Kate

    hope you and Sarah have a lovely holiday.

    Available for pocket duties as and when required :wink:

    Love

    Toni xx
  • MrsSparrow
    MrsSparrow Member Posts: 22
    edited 30. Nov -1, 00:00
    Hi,

    I've just joined here as my arthritis was just diagnosed today, but if its any help I had the ablation 3 years ago due to heavy periods and its one of the best choices I ever made! To date I still have not had any bleeding at all and as a day case I was home the same day. It changed my life from someone constantly needing to be near a loo and not even watching comedies as I was too worried to laugh!

    Glad to see you have decided to have it and good luck.

    Kate