Many of you will already know this, but It was impressed on me today by an advanced practioner at Gosh,(Polly on Dolphin Ward) that we MUST NOT give Em her Steroids in the evening, (as we had been doing for the last year ).but to give them in the morning as prescribed.
We had changed to after school/evening, as we had problems with getting em to take her meds, and basically, it was because we had more time to deal with this later in the day, and we were also having problems at the time with the fatigue and nausea associated with methotrexate.
We realised the steroids were probably contributing to sleeping difficulties, but were unaware that they would inhibit the growth hormones, which are released during sleep!
It was only a chance comment which the nurse picked up on, otherwise I would have continued with what was easier for us as a family. We will set the alarm earlier now, and maybe she will be ready for bed earlier at night too
Yesterday was a bit of a wake up call, that we have been burying our heads in the sand , not pushing her to take her calcium and vit D supplements either, in spite of a greenstick wrist fracture earlier in the year. The importance of these was explained to us too.