Is my Atrthritis not Arthritis afterall????????

purplestorm

Hi all

Well ive gone full circle......six months quite frankly wasted!

Been to see my Consultant today who has stopped all my medication with immediate effect advsing me "the medication should have worked but clearly hasnt so im not sure" told me to increase my morphine for the pain and he will see me in 6 weeks!

Had my 1st MRI scan a few weeks ago and they have found cysts on my Sacrum im going for my 3rd MRI in as many weeks tomorrow!

Also having a dye xray of my bones awaiting for appointment for that.

Im even more confused now that I ever have been!

hileena111

Oh Purplestorm.
You are beng given the run around...arent you...
Good Luck with your MRI tomorrow....you must be an old hand at them now
How long does it take to get the results?
Hope your other appointment isnt too long coming
Sending hugs ((())))


Love
Hileena

lindalegs

Just looked up the word Sacrum to see if I'd got one too, I'm pleased to see I have and fortunately I'm without cysts.

Hope they get you sorted Purplestorm, the sooner the better. They do seem to be being very thorough which is brilliant.

Keep us posted and good luck tomorrow.

julie47

oh dear purplestorm

I hope they can give you a diagnosis soon so that they can treat you properly.

Good luck with your scan today.

Juliepf x

traluvie

Hi Purplestorm,

Sorry to hear you have been running around in circles..
When i had the bone scan it showed up the inflammation in various joints.. it was because of this they started me on treatment.. although i do not have a firm diagnosis at least they no it is inflammatory arthritis of some sort..So hopefully you will get some answers soon
Wish you well

frogmorton

Hi Purple storm

Dont worry too much yet if you can help it.....(still welcome here for sure ) they are trying to find out for you and it's good they are being thorough.

Good luck for tomorrow.

Love

Toni xx

Audrey54

Hi
I'm new to this site, but have suffered all my life with aches and pains in my joints, had operations for dislocated knees in my late teens, two replacement knees, one in 2005 and the other three years later. I don't think I have a joint that isn't affected in some way with arthritis. My daughter also suffers and we have just recently found out that it is Hypermobility that has caused the majority of our aches pains. If you also suffer as much as we have please have a look at the Hypermobility - Arthritis Research website, it has explained all the pains that no-one would believe I suffered in the past, plus another few that I didn't think could be related.
Audrey

liesa

Hi Purplestorm
in my early days of palindromic rheumatism i spent 5 years on penicillimine, then one day someone said to me... you can stop that we havent seen any changes, i spent so many years with upper body arthritis and it showed in tests, ive had mri scans that showed no problem with my knee 5 years ago that left me in a terrible state as i felt they were saying it was in my head... my consultant wasnt happy therefore did an arthroscopy and saw my knee was bone on bone, he couldnt believe i was walking on that leg,
i've had xrays and blood tests that have shown not much which has made me depressed as i felt it was beng put to me in so many words that in was all in my head... ive had some desperate times when i have wondered what the hell i was doing here then remembered my family... i know why im here and love my life i just wsh the pains would go away.... i spent 18 months taking methotrexate with no obvious changes and 12 months on plaquenil again no obvious changes, i had blood tests last week and i said to my Dr i feel that im not being taken seriously like its in my head, because im morbidly obese, alot not helped my immobility, but he says my elbows are not weight bearing he said he knows there is a problem but not sure what to do next... i just spend my life taking horrible tablets and many days they do nothing for me but i wont know this until i try and take them...
life sucks at times.. im wondering if the arhritis has been in my joints a long time back, i used to wake up crying in agony as a small child with pains in my knees all put down to growing pains... my legs should be about 10 feet long on their own, why did i not get growing pains anywhere else?

hope you get to the bottom of this xx