This may sound strange

zechariah

I had a TKR about 16 months ago and I am still in huge amounts of pain, but I also hate the replacement and hate not being able to fully bend my leg.
I regret having it done, I am 43 and I am far worse with a TKR and would give anything to get rid of it, if I was offered an amputation I would go for it tomorrow without a second thought!

Am I the only one?

valval

hi never had one but this does not sound right what do they say at hospital val

zechariah

Nothing they can do for me, just pain management which is okay but not fully effective

valval

that awfull can you not get second opinion would have thought you would have had better result than that did they give you physio and what did they say val

elnafinn

Hi Zec

Good to hear from you again but not good news regarding your knee. Unfortunately ops do not always go to plan as I know from my mum's two TKRs but the end result turned out ok. I can understand that you had enough of being prodded and poked and it felt like you were getting nowhere so you discharged yourself from your orthopaedic consultant some time ago. So if he did not do a good job that is that and he is off the hook. You could go for a second opinion though. What reason were you given as to why your TKR was not a success regarding becoming painfree in that joint? I am sure you have said that before, thinking about having an amputation.

I do feel so sorry that it has not worked out for you at all but if it was me I would go for a second opinion but first of all I would have tried my best to get the consultant to say what went wrong.

There are others on here that have not done too well after a TKR but I do not think they are thinking seriously about amputation.

Have you been sea kayaking lately?

I wish you all the best,

Elna x

zechariah

Hiya

They have just said that some people experience pain after and they don't know why! I have seen several consultants but at the same hospital.

I was out kayaking on Tuesday, I am now paying the price with pain levels that are through the roof, but it is so worth it.
I am now a sponsored paddler for Lendal paddles and their sister company SKUK have offered a free custom made kayak to help with the restrictions in my leg and the weakness in my hips, that has been an amazing boost to my mood

I don't know why I hate the TKR so much, I am just so aware of it being in there and it really gets to me. I was awake a lot last night because of the pain and I kept thinking about it!

Thanks for the replies

elnafinn

Hi again Zec

I can see why you hate your TKR so much and pain always seems to be worse at night. I hate my shoulder and neck when they give me jip and wakes me up or prevents me sleeping. We do not think about parts of our body that do not cause pain, only when they do!

I think it is great that you are kayaking. I really admire you for doing that. No pain, no gain aye? Of course it will boost your mood doing something that you love. My daughter has a herniated disc and numbness in one foot and some of the leg. Swimming is her passion and she swims nearly every day. She is off to Devon this weekend for a swim around Burgh Island. She would swim in a puddle if she could. It is great if one can continue what one enjoys doing even when the body is hurting.

Look after yourself,

Elna x

zechariah

Wow, that is an amazing swim, wish her luck for me

I am very happy to be back in a kayak, I do struggle but it's a great release and something to look forward to.
I need a lot of help though, I can't get it on and off the roofrack and down to the waters edge, I am lucky to have that help

elnafinn

Hi Zec

Probably because you do have to struggle it is even more of a release and as you say something to look forward to. That is how my daughter sees her swimming. She did think earlier this year that swimming would be a no no after the disc "exploded" but she is still swimming

You are blessed to have good friends and mates who help you so you can continue doing what you love. I am sure they admire your stamina.

You are amazing

Elna x

frogmorton

Zech

l am so sad to read this (mind all the stuff you DO is great as well ).

I am so sorry :sad:

If it's keeping you awake at night l really would go for a second opinion.

Love

Toni xx

dachshund

Hi Zec.
you need to see another consultant or your doctor and say you've had enough of the pain take somone with you if you can and dont worry if you cry.
i've had my tkr 8 years and no pain at all. the pain i had be
fore having it done was bad i could not put any weight on my foot at all if i did the pain went up my leg to my knee.
take care. joan xx

bertyboy

hi Zac sorry you feel as you do , like you my knee is very painfull i had mine done end last april , it was okish at first but has got worse as times gone on , and after having x rays it was showing it was out of line they gave me a choice of trying physio in the hope it would ease it back ,it hasn't or an op so i am now down for a kneecap reserfice what ever that is , please go back and question them again , i think you do great things if you can kyak i am still hobling about with crutches , go back go back and question x

wannabewriter

Hi Zec,

So sorry to hear that your TKR is not workign out as you'd hoped - I would definitely ask your GP to be referred to a different hospital as this doesnt sound right.

You said: I don't know why I hate the TKR so much, I am just so aware of it being in there and it really gets to me. I was awake a lot last night because of the pain and I kept thinking about it!

I wonder if learning some distraction techniques might help? By thinking about it, and becoming aware of it, perhaps it seems to hurt more than it does? I know that if I think about how mch my knee hurts, the pain seems to multiply and I become even more aware of it. It might be worth looking into learning some distraction techniques like meditation perhaps?