Humira

cthornley
cthornley Member Posts: 627
edited 15. Jul 2011, 17:19 in Living with Arthritis archive
So Das scores done and I'm getting Humira
Left the hospital with wadges of information, appointments and antibiotics (for the latent TB they found )
I know is a good thing and touch wood it'll work wonders but I walked out to the car and burst into tears. :(
I don't know why because I'm usually so level headed but this time it just feels too much
Sorry needed to unload before I sit back down at my desk and act all cheerful for the office
Chrissie

Comments

  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    I guess part of it is that you need to seem to be 'cheerful' and together and in charge at work, Chrissie, so the tears'll take their opportunity to break out when they feel they can.

    I'm sorry, I'm not well up on what's been happening with you. Does taking Humira worry you? I suspect I'd be at least apprehensive, at worst dithery. I'm sure the 'Humira bods' will be along soon to reassure you. And I do hope it works well for you. Take care.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Hi chrissie

    They bombarded you with leaflets, antibiotics and appointments, no wonder you burst into tears when you got to your car. You are probably a little wary of the humira too.
    I hope when you have read up on the humira you will feel a little better and have a positive thought that it is going to work well for you.

    I am not on humira so I can not give much advice, I just really wanted to wish you luck.

    Take care
    juliepf x
  • mp1952
    mp1952 Member Posts: 425
    edited 30. Nov -1, 00:00
    Hi chrissie

    I was ve ry apprehensive about humira too, but started it on Easter Sunday this year and two days later was practically free of all symptoms. It was miraculous in my case and over the last 3 months I have indeed 'got my life back'. In the last week, however, I have had some pains in my hands again - not on the scale I had before - but I am wondering/worrying if it is stopping working already!!

    I was more worried about taking steroids than an anti-tnf drug actually....I am really really scared of them and have always refused them when my constant has suggested I go on even amlow dose of 5 mgs.

    Look forward to hearing now you get on with the humira.

    Marion x
  • valval
    valval Member Posts: 14,911
    edited 30. Nov -1, 00:00
    can understand this you want the best drugs that will work for you but you also hope they will say no need for these things so much better(just a corner of your brain hangs in there) even though you know how bad things are we still hope it does you good to get it out fingers r crossed it works for you val
    val
  • ichabod6
    ichabod6 Member Posts: 843
    edited 30. Nov -1, 00:00
    Will they give you humira with tb hanging around?
  • cthornley
    cthornley Member Posts: 627
    edited 30. Nov -1, 00:00
    THanks for your replies

    I feel a bit better now with a glass of wine in my hand :smile:

    ichabod6 yes they will give me the humira , its latent TB, they said if I hadn't been starting on the anti-TNF it wouldn't have got treated at all as I could live without it affecting me, its only that the Humira would turn it to full blown TB, so I'm starting the antibiotics tomorrow, the humira in a few weeks.

    I think part of the whole thing today was that the TB meds are going to make me feel really sick for 3months on top of everything else, its kinda the last thing I needed

    I'm sure it'll all be fine and its generally a good thing , I think its just nerves and a lack of a sympathetic or even empathetic hubby isn't helping...thank god for the wine :grin:

    Chrissie
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    Is it inevitable about the antibiotics makng you sick, Chrissie? I ask because some make me sick but others don't. I'd to have a 6 week whack of hefty doses after my knee revision but had no problems at all.

    I do hope the humira helps you.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • traluvie
    traluvie Member Posts: 2,579
    edited 30. Nov -1, 00:00
    Don't know much about humara..
    Just wanted to wish you well and hope it works for you..
    th_tn_TisFORTIGGER.jpgxxTracyxx
  • cthornley
    cthornley Member Posts: 627
    edited 30. Nov -1, 00:00
    Unfortunately yes its fairly common, particularly horrible anti-biotic
    Hubby only seems to be able to tell me bad stuff about it and that they don't prescribe it lightly,
    Ha it'll just like being pregnant again but i'll get clear lungs instead of a baby :roll:
    Chrissie
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    In which case I guess the good news is, it's 3 months not 9 and you don't get any nasty nappies to change at the end of it.

    Keep us in the loop. We mightn't be able to stop you throwing up but at least we can sympathise (while feeling glad it's not us).
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • ichabod6
    ichabod6 Member Posts: 843
    edited 30. Nov -1, 00:00
    Humira really did it for me. I was on it for 18 months until
    October last year and it certainly did free up my limbs.
    After a short holiday in Tunisia I was laid low by legionnaires
    disease and whilst in hospital humira was replaced by azathyroprine
    which I am happy to say is as effective as humira and is
    not supported by methotrexate which means I can have a pint when
    I want to.
    I hope humira works for you.

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