Hi, Welcome!
Saying hello and some Humira talk..
mkuniversal
Posts: 2
Hello Everyone!
I thought i'd start by saying hello as this is all new to me.. I have had Psoriatic Arthritis since i was about 11 although I'm now 33.. started with bad knees at school and a specialist refusing to believe it was anything other than me being so sporty & damaging my joints myself.. exploratory surgery, a leg in plaster, loads of physio and a couple of years later it was a simple blood test by a different specialist who diagnosed me.
Since then i've been on Meloxicam, Salazopyrin, Methotrexate (although that depleted my white cell count so i had to come off it), azathioprine.. things levelled off for a while (a good few years in fact) but then started to go downhill again. It was the birth of my little boy and the problems i had changing him in the night or dressing him when i had flare ups in my hands that prompted me to make a fuss about a year ago. I realised that to run about with him when he's older & look after him as i want to i needed to have my meds looked at again. I took the tests to see about qualifying for anti-tnf treatment & ended up getting prescribed Humira Pen injections.
I found this website by searching for Fatigue & Humira as i keep finding myself nearly dropping asleep at work & feeling exhausted from time to time when normally i'm full of energy. I have also had insomnia on other occasions & the feeling of general muscle weakness despite be active and exercising regularly.
I have read people's posts where it suggests that this would have been a flare up before the Humira injection so is that the general consensus? Do many people have insomnia too & feel generally weak from time to time before it wears off and you feel like you again?
I hate to admit it but maybe i'm doing too much as i get on as if i don't have any form of arthritis after my specialist told me to do as much or little as i felt i could and if it hurt then stop, otherwise go for it.. so that's what i've been doing. I go to the gym several times a week, play football, run about being daddy etc.. i feel really lucky as i'm sure i have it easy compared with so many people & Humira really has been a wonder drug for me, giving me back my youth.. so i'm not complaining, just trying to understand.. and decide if i am having normal side-effects or need to take it a little bit easier generally!
Being my first post i've waffled and given background info so i hope that's ok?!
Matt
I thought i'd start by saying hello as this is all new to me.. I have had Psoriatic Arthritis since i was about 11 although I'm now 33.. started with bad knees at school and a specialist refusing to believe it was anything other than me being so sporty & damaging my joints myself.. exploratory surgery, a leg in plaster, loads of physio and a couple of years later it was a simple blood test by a different specialist who diagnosed me.
Since then i've been on Meloxicam, Salazopyrin, Methotrexate (although that depleted my white cell count so i had to come off it), azathioprine.. things levelled off for a while (a good few years in fact) but then started to go downhill again. It was the birth of my little boy and the problems i had changing him in the night or dressing him when i had flare ups in my hands that prompted me to make a fuss about a year ago. I realised that to run about with him when he's older & look after him as i want to i needed to have my meds looked at again. I took the tests to see about qualifying for anti-tnf treatment & ended up getting prescribed Humira Pen injections.
I found this website by searching for Fatigue & Humira as i keep finding myself nearly dropping asleep at work & feeling exhausted from time to time when normally i'm full of energy. I have also had insomnia on other occasions & the feeling of general muscle weakness despite be active and exercising regularly.
I have read people's posts where it suggests that this would have been a flare up before the Humira injection so is that the general consensus? Do many people have insomnia too & feel generally weak from time to time before it wears off and you feel like you again?
I hate to admit it but maybe i'm doing too much as i get on as if i don't have any form of arthritis after my specialist told me to do as much or little as i felt i could and if it hurt then stop, otherwise go for it.. so that's what i've been doing. I go to the gym several times a week, play football, run about being daddy etc.. i feel really lucky as i'm sure i have it easy compared with so many people & Humira really has been a wonder drug for me, giving me back my youth.. so i'm not complaining, just trying to understand.. and decide if i am having normal side-effects or need to take it a little bit easier generally!
Being my first post i've waffled and given background info so i hope that's ok?!
Matt
0
Comments
To be honest, you seem to be coping amazingly well if you can do all that physical stuff. Mine's RA which I think is quite similar to PA in that both can make you feel exhausted, humira or no humira. (As can small children!) Maybe you need to ease off a little until things get back under control again. I do hope some of the others will be able to help you.
I have RA and don't know anything about PA sorry :sad: but we share the same obstacles on a daily basis.
Wow no wonder you are tired with all that physical activity. One of the things I have been advised on is that I should pace myself and slowly I learned to do that. I tried being all active on those wonderful moments when you feel like your old self but hey the pain, symptoms come back with a vengance and oh boy do they kill which I am sure you have experienced over the years. I appreciate that you have a litte one and you do want to be active as possible so its hard but its worthwhile pacing yourself.
Once again, welcome and see you around in the other chats / forums
Eve