Pandromic Rheumatism

deb50
deb50 Member Posts: 2
edited 30. Sep 2011, 04:19 in Living with Arthritis archive
Hello, I am new to this blog so here goes.
I have been suffering from pain in joints since beginning of March and am in mid diagnosis. I am attending early arthritis clinic at local hospital and have just attended my second visit. 1st visit I was told it was OA but they were not sure due to test results displying RA. Second visit 2 weeks later advised it is looking like its evolving into RA so at present being treated for Pandromic Rhematism. Been given Arcoxia, Hydroxychloroquine and had steroid injection. Doctor reckons it will probably evolve into full blown RA but can take time to diagnose, between 1 - 3 years. I have been having pain in most joints with feet and hands being worst. Swelling and stiffness with Balls of feet very sore. I had steriod injection last Wednesday and although improvement in pain has been visible, i had a swelling in my wrist this morning causing redness, heat and pain. Last night I also develop a very red flushing outburst on my body and face which was very hot. Has anyone else had this as a side effect and has anyone been diagnosed with Pandromic Rheumatism before full RA...

Comments

  • frogmorton
    frogmorton Member Posts: 29,838
    edited 30. Nov -1, 00:00
    Hi Deb

    How are you feeling about this diagnosis?? Are you ok??

    they said palindromic rheumatism to me too at one time. Either way it's inflamatory arthritis which doens't show in the bloods isn't it? I know l was very tearful the day they said that to me, but l was more tearful when l didn't know what was happening only that l was in agony.

    The meds they have put you on sound appropriate don't they? I too am on arcoxia hydroxy and added clochicine and amitriptyline now.

    Hope you will get on ok.

    I have had very little problems with the hydroxy...just some sort of uspet belly achey-stuff at first. Solved by taking in the middle of my meals.

    Good luck - anything l can do to help just say

    Love

    Toni xx
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Hi deb

    welcome to the forum.

    I now have flushes quite regular and some times dont know whether to blame my meds or my age. (a bit of both)

    BUT
    when ever I have had a steroid injection, in the more fleshy part of my body (bum) I notice the day after that I too am flushed in a different way to normal and a little red. (chest and face)


    I hope things settle down soon.

    Juliepf x
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Over a number of years I moved from no diagnosis to one of an inflammatory arthritis and then psoriatic arthritis. There are many forms of this dross and they can take a while to diagnose, and PA is one of those with a negative RF, which didn't help, but my inflammatory markers were always high. The main thing is that you have started some meds and I hope they help. I had huge flushes whilst taking oral steroids, now I am cutting those down the flushes are diminishing. The joint injections never achieved much for me - we are all different in the way we react to the meds as you will discover as you keep reading on here! I wish you well. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • ironic
    ironic Member Posts: 2,361
    edited 30. Nov -1, 00:00
    Hi, I was diagnosed with Palandromic arthritis when I first went to see the rheumy. I had what I know now was a 3-4mth flare before I got to see him so by the time I got there I was feeling a lot better apart from a couple of joints. Being a learner and a scaredy cat I wouldn’t go onto to stronger meds for a good while and then I only agreed to Hydroxy, after several months trying alternative medication and wishful thinking. I am still taking- 2 x 200mg of Hydroxy. It did take a long time for me (16 weeks) before I felt any improvement but you will learn that we are all different and some find it helps far quicker than it did for me.
    I am sure you are still in shock and are fearing the worst but as I have said we are all different and you might just carry on without the RA getting any worse.
    Please do not do too much research on the internet as there are some very scary and misleading sites out there.

    As Toni has said if you have any questions please just ask.
    Hang on in there Debs,
    Lv, I x
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Morning deb50, how are you feeling today? DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • williamlargs
    williamlargs Member Posts: 143
    edited 30. Nov -1, 00:00
    I was told I had palandromic rheumatism several years before I was told I had RA. Best advice I can give is to do and take whatever they tell you to. If diagnosed early enough and you react well to the drugs you could be lucky and keep it under control.

    Regards
  • liesa
    liesa Member Posts: 821
    edited 30. Nov -1, 00:00
    i was diagnosed wth palindromic rhuematism 26 years ago, turned to RA some years back, had a knee replacement 4 years ago...
    im part of a palidromic rhuematism forum called the IPRS they talk more about PR which may help you find some good tips on how to cope with it
    no one knew what i was on about when i told them about palindromic rhuematism... so much more about the condition nowadays xx good luck xx
    http://www.palindromicrheumatism.org/
    HOPE ITS OK TO ADD THIS SITE?
    love and hugs
    8997C823B17A6252CBCA252F4BF2932D.png
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Bumped up for catgirl (who I think has summat similar?) DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • liesa
    liesa Member Posts: 821
    edited 30. Nov -1, 00:00
    bumped xx
    love and hugs
    8997C823B17A6252CBCA252F4BF2932D.png

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