Meds ?

vonski
vonski Member Posts: 1,292
edited 12. Sep 2011, 19:22 in Living with Arthritis archive
My Neuro gave me amitriptyline for RSD but I blacked out and fell knocking myself unconscious on the side of the bath, hubby couldn't get in until I came round enough to move a bit but all I could see was black. Dr. came and I eventually came round. He put me on 3 x 50 m.g Pregabalin a day but then tried 150 m.g my speech went and I was very unsteady so he took of those and went on Gabapentin very unsteady again and hubby says very very obnoxious think we were heading for divorce court. Back on Pregabalin, started on 3 x 25 m.g and went up to 150 m.g climbing one a week. Very unsteady again and hubby has to walk me from room to room. I did ask him if he would be okay with this for a few weeks and he said yes but with everything else he has to do he now says get off them a.s.a.p. but where do I go next? Chronic arthur, cancer and MS told by surgeon last year I wasn't expected to survive, maybe a clue in the nine drips that I was on. Any suggestions would be welcome.

Comments

  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Oh my vonski, I have no advice as I have not taken any of these. I am so sorry, I hope someone with a better knowledge of these things will be along soon to help. ((())) DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    I'm so sorry, vonski. I can't help either. I think you need a professional who can understand how your different meds and illnesses will interact. Your GP doesn't sound very impressive. Is there another you could try?

    Meanwhile I just hope you can find things a bit easier sooner rather than later.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Oh vonski
    I so wish I could give you some help, but I do think your GP needs to monitor you closely while he find something that will ease your pain.
    I do hope they do this very soon for you,
    Heres some hugs to be going on with..(((())) wish I could give them for real
    Please let us know how you get on, we are always here.
    Love
    Barbara
  • valval
    valval Member Posts: 14,911
    edited 30. Nov -1, 00:00
    hi life is kicking you in the teeth i am sorry about this and can not help with the meds they not easy at the best of times but you having rough ride with them leaving ((())) to help you through would pain clinic help more????
    val
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Dear Vonski

    Oh my goodness, eeek does your neuro know what he is doing or your gp for that matter? How frightening for you and hubby. I am on amitriptyline and started off at 10mg and it was then upped to 25mg and I am ok on that if I take it early enough in the evening so as to avoid being like a zombie on awakening in the morning. I take it for IBSD and it works well for me. What dosage did you start on?

    You becoming obnoxious, don't believe it :smile: I am so sorry, Vonski it is one thing after the other for you and has been so for such a long time. It is good to see you posting, but I am sorry it is not good news.

    Please stay in touch, by email, FB or here.

    Lots of love and gentle hugs
    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • Colin1
    Colin1 Member Posts: 1,769
    edited 30. Nov -1, 00:00
    Helo Vopnski I sat here feeling sorry for myself then opened your post. my problems seem to pale into insignificance. If only i had fairy dust Vonski all your troubles would be over.
    Take care
    Colin
    WHEN GOD GIVES YOU LEMONS MAKE LEMONADE
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    Hi Vonski

    so lovely to see you name on the board even if it's not not lovely to read what you've been going through :shock:

    Thing is a lot of what you have suffered could easily be explained by the MS the meds etc so who on earth knows what is going on :???: Awful to hear about yourself that you have been 'obnoxious' like Elna l find that hard to believe :sad:

    I am on 25mg amitrip and tried gabapentin for ages got up to 1000'smgs and had no effect whatsoever (good or bad).

    I think l would go back to GPand/ neuro asap with hubby so he can tell them what is going on.

    You do not deserve this l am really shocked.

    Vonski you take care and please keep posting.

    Love

    Toni xx
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    Oh Vonski,

    I am so sorry. What a lot has been thrown at you.I don't really know what to say either. Can only send you may best wishes,

    Elizabeth xx
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • kathbee
    kathbee Member Posts: 934
    edited 30. Nov -1, 00:00
    Hi Vonski

    Its good to see you posting but not good to see what you are dealing with.

    You have had so much to contend with for far too long and the medics just HAVE to do more to help you.

    I dont know anything about those drugs unfortunately.

    As always, I will be thinking of you LOTS and sending you love and hugs.

    Keep stong if you possibly can Vonski
    Love Kath xx
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Hi vonski

    oh my ..... I really don't know what to say, I just wanted to pop in and send you my best wishes and plenty of hugs (((((((())))))

    juliepf x
  • lindalegs
    lindalegs Member Posts: 5,398
    edited 30. Nov -1, 00:00
    Well, Vonski, I bet you're feeling really fed up and you have every right to be very, very obnoxious, I know I would be in your place. :shock:

    I agree that the balance thing is probably the MS and has been aggravated by the medication.

    I would think the best thing is to talk to your Neurosurgeon or at least his secretary to see if you can get some answers. GPs for all their worth are not experts in particular fields and I reckon you need consultant advice on this.

    Take care and thank you for posting on my 'LindaLegs Says' thread whilst I was in hospital, it gave me a real lift to see you there ...................and of course everyone else who took the time to post :grin:

    Thinking of you Vonski.

    Love
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • vonski
    vonski Member Posts: 1,292
    edited 30. Nov -1, 00:00
    Thank you all for your lovely posts I know a few of you don't even know me so a big thank you. I feel cheeky coming to moan as it's so long since I was offering much help. I know one of the Pregabalin side effects is to mimic MS and it has, stolen my muscles!!!!!! slurred speech and bad memory. The Neuro, Dr. and M.S. nurse are trying to find something that suits me and you know what I'm like :grin:
    The M.S nurse rang today and she says I should try taking a lower dose for my middle one so I'll try that and hope I can stand up or just cut down and stop. There are quite a few things Dr. should be keeping an eye on but he forgets. Can you tell I'm feeling a bit sorry for myself :grin

    I stayed up late last night to watch one of my favourite films, Natural Born Killers does this prove how mean I can be if I get upset, Juliette Lewis :wink:

    Legs I had to come on and post for you. I do read a lot but not post. I hope you are still shocking people with your new knee.

    Colin1 it's been ages and you have been missed. I know you have your own problems and to even think about me makes me feel proud. The fairy dust would be great :grin: I hope you are feeling a bit better, maybe come home.

    I know you are all going through a lot yourselves so thanks once again.

    Love
    Vonski x
  • woodbon
    woodbon Member Posts: 4,969
    edited 30. Nov -1, 00:00
    Hello, I'm so sorry that you'r going through so much, it sounds awful. The only thing I have had is amatriptyline and that made me very sleepy and 'out of it', for the first 2 weeks or so, but I got used to it and I've had the dose increased twice and each time the same thing, but I've got used to it, each time I reached the point of giving them up, when my body adjusted and I coped.
    Your reaction sounds very bad and I would get to the doc as soon as possible. You have so much more to cope with than me. I feel silly telling you about my minor little side effects, as I'm sure you know more than me.
    I'll think about you and hope that you soon manage to get the medications sorted out, so you feel a bit better.
    Lots of love Suexxx
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Vonski,

    Its really nice to see you :grin:

    I am sorry you have had such a hard time of it though flower and hope so much things will change for you and you get some respite from it all.

    With eh pregabs I wonder if you might have found 100 is your limit for a whie? I went to 600 day and hold ok on it but it took me a year to get there in rises of 75 and then wait to stabilize on that before gong up again. It might help to do it that way maybe?

    I agree you should ask the Nuro though cus this isn't fair at all and the more you stress and worry the more things flare.

    I so hope you can get some real help with the meds and they can come up with something that balances not aggravates the other meds.

    It is nice to see you. Cris xx

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