polymyalgia rheumatica?

elnafinn
elnafinn Member Posts: 7,412
edited 18. Sep 2011, 13:18 in Living with Arthritis archive
Aw, dear Lynn

I am sure you are feeling shell shocked probably like I was some days ago after my diagnosis from the surgeon. I am so sorry to hear this - I presume you have been diagnosed PMR?

I clicked on the Search button at the top of the screen and typed in polymyalgia rheumatica, clicked on LWA forum and then clicked on Search and there are quite a few pages of past postings . I don't know if you have already done this but it may help you. Would a call to the helplines be of help to you do you think? Even just talking to someone there may well make you feel a little better about this sudden bombshell.

Dear Lynn, I am thinking of you. Sometimes it feels like one rollercoaster after another, doesn't it.

Sending over love and gentle hugs to you,

Elna x
The happiest people don't have the best of everything. They just make the best of everything.

If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
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Comments

  • lindalegs
    lindalegs Member Posts: 5,395
    edited 30. Nov -1, 00:00
    Ahhhhhhhh Lynn,

    No wonder you're shell-shocked I am too. :shock:

    I hope you get some answers very soon, I'm sorry that I can't help you. :sad:

    Gentle hugs and humongous love from me ((((( ))))) XXXXX
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • angel1
    angel1 Bots Posts: 1,464
    edited 30. Nov -1, 00:00
    Give yourself a little time to digest this latest blow LL.

    We are all with you sweetie.........always.

    Talk soon........Much love.
  • vonski
    vonski Member Posts: 1,292
    edited 30. Nov -1, 00:00
    Hi Lynn, sorry to hear your news. If you look on About Athritis and go to conditions there is something there, maybe talk to the Help Team. Hope you find all you need.
    Love
    Vonski x
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Oh dear, I didn't know you had been taken off the meth (after all your bravery in doing the injections) and this latest diagnosis must be a huge setback for you. I don't know about PMR but I hope those who do can help. I am so sorry and I hope you find some answers soon. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hi Lynn
    Its lovely to have you back with us, Im sorry I cant offer any help, but hopefully like Elna says if you search the post something will be of help....
    Sending you loads of hugs and love((((()))) xxx
    Love
    Barbara
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    I'm fairly confident, and grateful that I know nothing at all about this, Collywobble so no hints or tips from me just a few hopes that things will settle down soon and the confidence that you will cope. Take care.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • ironic
    ironic Member Posts: 2,361
    edited 30. Nov -1, 00:00
    Hi Lynn,
    Well that would explain a lot. I am so sorry to hear this Lynn it must have been a bitter blow for you.

    Good idea to step back for a while and take stock.
    In a few days you will be more able to ask the question but until then here’s a few (((((( ))))) for you.

    Lv, I x
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Dear Lynn

    I was thinking about you and wondered if there were any forums you could have a look at,so I googled polymyalgia rheumatica forum and there are. I don't know if this may help you. As others have said it may be as well to take a breather and step back from it for a while, but if you are anything like me, you will want to be on the case now to finding out answers to any questions that you have. As you say, there's nothing like talking to people with first hand experience, and on a PMR forum you will be able to do just that.

    I hope you are able to get a good night's sleep,

    You are in my thoughts, dear Lynn,

    Love
    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Dear Lynn

    I am so sorry to hear there is so much sadness in your life at this time plus your health issues. I did not know that. Today has been very upsetting for you. Tomorrow is another day and I hope it may be that little bit easier for you.

    Night, night dear Lynn, I hope you will be able to sleep well,

    Love
    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • frogmorton
    frogmorton Member Posts: 29,826
    edited 30. Nov -1, 00:00
    Morning Collywobs :smile:

    I am shocked now :shock: I don't know you have a busy day come back and you have a new diagnosis so you must be very shocked.

    I do not know what to say lass, but knowing you you will look at all the info ) as you say someone has alreday kindly sifted out the useless stuff for you), and get your head around it.

    It would be wonderful if it was entirely fixable wouldn't it?

    Hugs for you Lynn ((((()))))

    and a little prezzie...

    d020.gif


    Elna might need to pass hers over too while she is a bit out of action.

    Love

    Toni xx
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Dear collywobble

    Sorry I don't know about pr Just wanted to wish you well and hope you are better soon

    Take care
    Love & hugs
    Juliepf x
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hi Lynn
    Just to say I am still thinking about you, and I really do hope things improve very soon...both pain wise and others things.
    You take care my love.
    Love
    Barbara
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    Hi Lynn,
    I can't help about the PMR but it is good to get a diagnosis so you can get appropriate treatment as soon as possible.
    I was thinking of you this morning and was going to PM you to see how you were. It seems there has been a lot of sadness going on in your life and I am really sorry to hear that.
    I didn't realise you had stopped the MTX either but you have to if getting such bad side effects. I do get headaches too when I take mtx but a pile of paracetemol and a day in bed and I'm fine.But it seems your reaction was extreme.

    Definately give yourself some time to digest the news.Feel free to PM if you need to offload/share/shout-I'm just getting back on track from school hols now.

    All my love
    Elizabeth xx
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • suzygirl
    suzygirl Member Posts: 2,005
    edited 30. Nov -1, 00:00
    Hi Collywobble, sorry about the latest label. It all seems too much sometimes, and that one thing can be the last straw.

    I hope the steroids provide relief for you. I found eating more protein helped the hunger and planning snacks ahead if I was hungry. Its a real hassle but has helped me as I have diabetes thanks to the lovely pred!!!

    I am ignorant of PMR other than the basics so I am glad people have helped point you in the right direction.

    Thinking of you x
  • chris7
    chris7 Bots Posts: 2,696
    edited 30. Nov -1, 00:00
    Hi Lynn

    Good to see some people have been able to offer support with this latest blow. Hope you are reeling a little less today and being nice to yourself when you can. I have been thinking of you and hope for better days soon.
    love and hugs always ((( )))
    Chris xx
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    Hi Collywobble,
    Sorry I'm late answering this......what a shock that must have been for you :shock: I know its only a name and doesnt make any difference to the way you feel.....{still feel the same pain} I'm sorry I know nothing about it but you seem to be getting loads of info from ones that do know. I agree....I would be the same. Want to know all the ins and outs of it and what I could do ....if anything and would als like to chat to people that know about it first hand
    Sending you ((((((())))))) I hope you are oK this morning.
    Love
    Hileena
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hui Lynn,

    Oh flower sorry there is another change for you but it means no horrible drugs as well though..... does that make it better?

    Annie has it and I am sure she would help you with advice if she looks in? I can ask her to if you would like? Time I asked how she is actually.....

    I am so bad at remembering to.

    I hope the steroid will work for you and leaving a ((((( ))))) Cris xxx
  • magenta
    magenta Member Posts: 1,604
    edited 30. Nov -1, 00:00
    Hello Lynn,

    I'm so glad to see you posting again!!
    Sorry to hear about everything though-poor you. I hope the steroids work for you-if you can't have a Mars bar then have a Snickers instead :wink:
    I'm sorry it's taken me a while to respond to you but my laptop is playing funny beggars with me and this site.

    I'm really happy to hear from you,

    love Eileen xx
  • vonski
    vonski Member Posts: 1,292
    edited 30. Nov -1, 00:00
    Hi Lynn, hope the steroids work well for you and you get some relief soon.
    Love
    Vonski x
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Lynn,

    One day at a time my friend......Don't worry about the future just now and Annie is missed as well eh?

    Glad they are making you feel better cus thats all we want isn't it? You hang in there and leaving you a (((((( ))))) and a sleep draft. Love Cris xxx
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    Morning Lynn
    Just popping in to see how you are today?

    Love
    Hileena
  • gretta
    gretta Member Posts: 74
    edited 30. Nov -1, 00:00
    Hi Lynn

    My husband has Polymyalgia Rheumatica & is on prednisolone. It works well for him, he is so much better. Has got down to the low dose at the moment. He is okay as long as they don't take him off it completely, when it is stopped for a while he always has to go back on it. Hope you feel better soon.

    Gretta
  • page35
    page35 Member Posts: 1,081
    edited 30. Nov -1, 00:00
    Hi Lynn
    Sorry to hear about the PR i hope the steroids work well for you and quickly.
    take things easy
    Sharon
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Hello collywobble, how are things going today? I hope the pred will help you to feel better in yourself. Don't deprive yourself of all treats - a little pick-me-up is not only deserved but necessary (if not essential!) DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • tillytop
    tillytop Member Posts: 3,460
    edited 30. Nov -1, 00:00
    Hello Lynn

    I am so very sorry that things are so tough for you at the moment and that you now have another diagnosis to deal with.

    Thinking of you.

    Love and ((()))s

    Tillyxxx

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