Eithne is having another flare up and we are going for more injections on Monday. It's in a new joint so that makes 4 in total now - it's also in her right foot which is a new place for it. :sad:
She is beyond terrified of needles now because of the bad experiences we have had in the past with the numbing cream not working so the anaesthetic needle has hurt her a lot.
The specialist nurse is referring us to a play therapist - but we aren't going to see them before we go on Monday. She will be having gas and not the needle, so we're hoping that will work, but she's constantly begging us to hide her ankle from Dr Ian so he can't put a needle in. It's very sad and hard to deal with as we know she needs the injections to make things better.
We have our next consultant appointment in November so I guess we'll know more then.
The specialist nurse has also written all over her notes that she really needs to be put on permanent meds (thus far she's been fine with just having injections when she has a flare up but this will be the 4th set since her diagnosis in April 2010). I'm quite frightened of that as I don't know how we'll get her to have the meds if it's injections or have her bloods done - she screamed the surgery down when she had her booster injections the other week!
I'm also worried about any possible side effects. She's at nursery still (her final year before she starts big school). We can't afford to have her off nursery a lot if she has a problem with the meds as I work for myself and if I can't work, I can't bill my customers, I can't be paid, then we can't pay our bills. Don't get me wrong - I will do anything for my baby girl - but it's just one continual spiral really. Doesn't help that I'm having some health problems as well that are affecting daily life.
I hope this all stops soon. I'm very worried about her going off to big school. We're going to try to get a meeting with the head teacher for where we are hoping she will go to discuss things with them and get some reassurance that they will get in touch if they notice anything.