Rheumy appointment Thurs, reporting good an bad to him..

traluvie

Afternoon all..

I have rheumy appointment tomorrow.The last time i saw him was march when started me on hydroxychloroquine..The good news i have to tell him tomorrow is that i think the hydroxy is working as i haven't been in as much pain and with that and the combination of steroids and other meds my swelling has been minimal and i am feeling better...Note i said better but that doesn't mean i can go and run a marathon or even go shopping for that fact lol.. so i think i need to enthasise this to rheumy??
The bad news i need to share with him that since i saw him i am having alot of problems with my hips and knees/mobility, i am hoping he may request an xray on hips to see if it is OA or inflammatory..i do not want him to pass it off just because i said i am better in some ways..i find the mobility,well lack of it a pain in the bum as it restricts you so much and if your hands are playing up you may aswell stay in doors all day as you can't use the crutches lol.. will have to see what he says..
Do you think i should inform him of my other symptoms i have been experiencing which my GP has referred me to neurologist for??? Just thought it may be of interest incase anything is related??
I reckon i am going to compile a list ready for tomorrow, so i am armed and ready.. unfortunately i am on my own tomorrow so have no1 to back mer up or ask questions for me so i need to be getting my thinking cap on and make sure i come out of there with something rather than nothing as it is a dreaded journey and so far away.. going to take me about 2 hrs to get there with buses and trains to catch.. lets hope my body is able tomorrow lol...

tjt6768

write everything down, you never know it could be nothing to do with the arthur but better safe than sorry eh? I do hope that you have a good appointment hun. Me and Ra will be tagging along. Although we will just meet you there if that's ok :???: Don't fancy that two hour journey at all :shock: :!:

traluvie

tjt6768 wrote:

Me and Ra will be tagging along. Although we will just meet you there if that's ok :???: Don't fancy that two hour journey at all :shock: :!:

Lol.. don't blame you Tony.. not looking forward to it myself..My friend was going to take me but she has to take her daughter to school so no way of being in to places at once especially when it's a fair distance between them lol..If only i had wings..

hileena111

Hi Tracy
I'll be there....and yes write everything down and try and write down things he says.....although I find that harder....listening and trying to take in what he says and wrioting it dow as well but I'vee forget as soon as I walk out :oops:

Love
Hileena

traluvie

hileena111 wrote:

Hi Tracy
I'll be there....and yes write everything down and try and write down things he says.....although I find that harder....listening and trying to take in what he says and wrioting it dow as well but I'vee forget as soon as I walk out :oops:

Love
Hileena

Maybe i can press record on my phone as i walk in.. as i will have no chance writing down what he says aswell as taking it in lol..Am going to look at my phone now see how long it records for??? Thanks for the idea..x

hileena111

Brillian idea Tracy
Goode luck with that

Love
Hileena

frogmorton

Hi Tracy

List girl....you really need your list this time .

i would do it as you wrote it...the good news....then the not so good...then the 'how can we find out what is causing the pain in my hips...etc

Up for pocket duties if l can be of assistance??

Love

Toni xx

traluvie

frogmorton wrote:

Hi Tracy

List girl....you really need your list this time .

Up for pocket duties if l can be of assistance??

Love

Toni xx

Toni my list is ready.. well organised i am lol.. Also downloaded an app for my phone as hileena suggested so i can record what happens in the doctors room.. knowing my luck i will probably forget to press record lol..
Maybe if your all in my pockets you may press record for me..

frogmorton

Yep we can Tracy Think about three of us could take a flying leap

Don't underestimate yourself....you can do it girl...power to you!!

Love

Toni xx

julie47

Hi Tracy

Well its good to hear that you are feeling a little better (pain wise)
but I am sorry about the mobility.
I think you are quite right to write a list and even the bit about the neurology referal too.
My rhummy peeps know everything...infact it was them who reffered me to my neuro.
I hope you get the xrays done and that when the results come back, that they can tell you what is happening.

Will be there in your pocket, will be bringing egg sarnies as I have them left over from my app today (thinking I was gonna be hours) so exta stinky

Take care
Chin up
Love Juliepf x

traluvie

julie47 wrote:

Will be there in your pocket, will be bringing egg sarnies as I have them left over from my app today (thinking I was gonna be hours) so exta stinky

Take care
Chin up
Love Juliepf x

My favourite egg sarnies.. yummy.. make sure you bring plenty to share, make sure we are not trumping in the waiting room ...

dreamdaisy

Oh yes, take a list. You can ask for Xrays, he can only say no but after he's heard you out he may well say yes. By all means record the session - I don't know how long phones record for but try it - record the telly tonight for an hour or so and see if it gets it all. You know you won't be in there that long! Good luck, especially with all the travelling. DD

traluvie

dreamdaisy wrote:

By all means record the session - I don't know how long phones record for but try it - record the telly tonight for an hour or so and see if it gets it all. You know you won't be in there that long! Good luck, especially with all the travelling. DD

Beat you to it DD, i left it recording earlier while bargain hunt was on lol..
Was ok.. if i put it to my era i can hear quite clearly so i hoping it works tomorrow..
That travelling malarky is the worst part about it, i so hoping tomorrow i wake up and my hips and knees are gonna let me go without too much problems, if it is too bad i will have to cancel and i don't want to do that...Positive thinking though..I could borrow my neighbours scooter and start off 6am should get there for my appointment for 11.30 lol..battery will probably be dead..

skezier

Hi Tracy,

Will be in your pocket and hope he will do the xrays... they don't always lump it all in together but .... you could just ask him if he could send you for one?

If he does say its oa you could still ask to have an xray and then take it from there with your gp re orthos.... wow... I am way ahead now :oops:

Fingers crossed flower and let us know how you got on. ((((( ))))) and a cuppa Cris xx

traluvie

Thanks Cris..

Not feeling too bad at the moment so at least the travelling won't be as bad..
Lists done and in my bag along with small lunch and water...
Hope your bringing along some chocolate cris... need some desesrt lol..x

skezier

Hi Tracy,

a huge box of it We can hide in the corner and share it out

Glad you got your list and well I hope it goes well. If I snore just shake the pocket..... Cris xx

dreamdaisy

Good luck traluvie, I am thinking of you. DD