Feeling worse after first injection of Enbrel

crush
crush Member Posts: 3
edited 8. Oct 2011, 10:34 in Living with Arthritis archive
I am in the U.S. but this is the first thing I found when doing a search on anyone feeling worse after taking Enbrel and I am so relieved to see I am not alone! I just took my first Enbrel injection this past Sunday and I am definitely feeling worse.

Let me give a bit of background:
Was diagnosed with and treated for RA for 7 years before Dr. decided I had fibromyalgia. It has been about 10 years since and in addition to the fibro, I also have what they believe to be reactive or inflammatory arthritis. In the last year, the pain in my spine and hands has been incredibly severe and the Dr thinks there could possible be some OA. I have been on all of the meds including lyrica, cymbalta, NSAIDS, anti-inflammatory, muscle relaxants, pain meds. I was functioning much better for several years until about a year ago when Darvocet was taken from the market and the spinal and hand pain got so severe. Dr. recently had me do a 10 day period of prednisone and it really helped, so she wanted to try Enbrel.

So, I had the first injection this past Sunday and I wanted to imagine I'm crazy but seriously I feel worse. All of my muscle pain is increased and I'm feeling it in more places than before. I basically feel miserable. Fatigue is worse...etc...etc. Some of my other "associated" conditions like irritable bowel, costochondritis (sp) feel a tad worse too. I also have something that suppposedly isn't related to the A or fibro called granulomatous rosacea, which I haven't had a flare of in atleast a year and that has suddenly gotten way worse.

So, I am wondering if anyone else has experienced this and if so, did you feel better with time? Do I give the enbrel additional chances or do I ask the Dr. to try something else?

I just dont know what to do. Any advice would be greatly appreciated.

Thanks!!

Christen

Comments

  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I've just replied to you on paperboats thread! I did forget on that one, however, to say 'Hello, it's nice to meet you but I am sorry you have had to find us.' so I've said it now. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • Ankyspond
    Ankyspond Member Posts: 626
    edited 30. Nov -1, 00:00
    Hi,

    Welcome to the forum, I am in Enbrel and have been n it since last November. Stick with it if you can it is so worth it, use ice before and after the injection. It has been fab for me hope it works for you. Xx
    AS Sufferer
    Live, love and enjoy life, live each day as though it's your last!
  • lalla
    lalla Member Posts: 138
    edited 30. Nov -1, 00:00
    Hi Christen glad you have found the forum, cant help about Enbrel but Im sure there are many here who can Take care Linda
  • frogmorton
    frogmorton Member Posts: 29,838
    edited 30. Nov -1, 00:00
    Hi Christen

    l am absolutely no use to you whatsoever! I have no personal exoerience of enbrel, but just wanted to welcome you to our forums and to hope you will keep on coming on here.

    The peopele on here are fabtastic for supporting each other and l am sure you will feel better for just chatting to us.

    Hope maybe today has been a better day for you?

    Love

    Toni xx

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