Dammit.

dreamdaisy

The past three weeks have been fan-dabby-dosy, despite the pharyngitis. The penicillin meant no humira or meth, ergo no injections for three blissful weeks. Three weeks of feeling considerably better in myself (not only due to the steroid boost). OK, the pain did not let up but my ability to cope with it rose quite considerably. I actually had energy :shock: and some to spare. Wow! It was wonderful and lovely and fabulous and enjoyable because it was three weeks of not sitting on the edge of the bath, not gloving up, not wiping my skin with an alcohol pad, no sharps bin or needles or plungers or bits of plaster in case of an after-bleed. A life, in short, like most peoples. That all went for a burton at 4pm. Woo-hoo. Meth on Wednesday. Yippee.

I don't have side-effects as such from the H&M but I realise they do make me sluggish. Feel better? Have energy? Woman, you have arthritis, that is not how it's meant to be. Dammit. I suspect I shall be swimmming once again in the treacle pool. I will be sitting here reminding myself that these drugs are meant to help, designed to slow the progress and damage but I do wonder if more could have been done on that front if I had been given them much earlier. Five years of nothing apart from 'it will go away' has cost me a great deal. Never mind. :roll: Dammit.

elnafinn

Aw, bless you DD. That is horrid, three weeks of feeling ok and then, wham! Totally and utterly unfair and that is being polite. I am sorry. :sad: I wish I could think of something to say to cheer you up.

Hugs
Elna x

valval

nothing to add it is crap i know but you have to go with things as they are now it not fair or right but it all we have got so rest when you can and do what you can val

skezier

hi dd,

sorry your now back to feeling sluggish but maybe you wont... see i find any antibiotic helps me feel better so for me it might have been that and not the h and m.

you know 5 years of nothing is something i wonder about with mine, but mine was longer than 5 years and as you know has ever been brought under control..... or ever ill be now cus its mtx or nothing..

but....

you can't think that way flower. what could have been might not have been any different to what has been if you see what i man? there are no guarantees eh?

hope you get a surprise and carry on feeling better. hugs and a cuppa Cris xx

traluvie

DD..

It sounds like you have been on an arthritic free holiday for 3 weeks and are now heading home for reality to sink in... does'nt seem fair... :roll:
Sounds like you need to have a beer or two ,,, i'll have one with you and i'm sure the others will join in too, can even have a sing song, don't know about my singing though?? i might make it rain..
I'm thinking of you DD..(((((X)))))

mig

Hi DD,chech out the chit chat page under horror it might make you smile a bit.Mig

dreamdaisy

I sat there at 4pm and thought 'This'll be fine, you've had a grand time and doing this does not spell the end of it. Chin up girl, this is a good thing.'

I am now yawning my head off and not in a nice way, it's already a different kind of tired and not a pleasant one. I did it early as I did not want Mr DD to return from the annual October birthday walk, hot, tired and bothered and facing nursey duties to a feeble wife. These are indeed powerful meds and not to be undertaken lightly but I would encourage those who are about to embark on this not to take too much notice of me: this is my third anti TNF and my final, everyone is different in how they react and for all you know you could be a Scorpio or a Marion1952. Having said that I hope to whoever you don't turn out to be a DD.

Thank you for your lovely words elna, valval, skezier and traluvie. They are much appreciated as is your kindness. DD

CJHunter

Hi DD, so sorry you are on the sluggish bus. Do take care, am here for you if needed.
C xx

vonski

Aw! DD this was a very sad post to read. I have just read a post on another forum about another disease and he was say saying that these wonder drugs keep getting brought out. Some say they are a cure others say they improve your quality of life so much but they never do. All that happens is more nasty side effects which they forget to mention. Hopefully one day something will be brought out that really does help until then DD please keep your chin up.
Love
Yvonne x

stickywicket

There are worse things in life than turning out to be a DD. There are worse things on these forums than turning out to be a DD.

You are right that going back on the meds doesn’t necessarily spell the end of anything. You might have to find different routes, that’s all. You’ll get there.

dreamdaisy

Thank you mig, CJ and vonski, you are all very kind. I know I shouldn't be moaning, I am fortunate to be on this sort of medication but . . . . . surely the truth is they don't work for everyone, we all know we all react differently to these things and you don't know until you try. Dammit, I know that resentment is never good, utterly futile, totally pointless but sometimes it is necessary. Well, that is what I am telling myself! The usual DD will be back soon, the inner Eyeore is always subdued by the outer Tigger.

dreamdaisy

Sticky - I think we clashed. Thank you. Gosh, I am tired. It's been an odd day, meeting the gang for lunch on the birthday walk when usually I would not bother was indeed good, but despite my best intentions it stressed the 'outsided-ness' of arthritis, especially when I drove home. Last year was different as I had an agenda. It involved summat for me, and crikey, what a fantastic day I had then! DD

bertyboy

Hi DD sorry that your holiday is over , but i think we can all come down with a bump at times for all sorts of reasons whether its meds or life in general , but letting it out rather than bottling it is a release in its self , you are DREAMDAISY , visions of meadow daisies blowing in the wind , not sluggish in any way , its just the wind is not blowing xx

CJHunter

Eeyore is allowed to wake now and again DD, no one expects you to be Tigger all of the time.
Now stop beating yourself up and rest.

Take Care.
C.xx

stickywicket

dreamdaisy wrote:

Last year was different as I had an agenda. It involved summat for me, and crikey, what a fantastic day I had then! DD

Give yourself time to adjust. Most 'ups' are followed by a 'down'. Then start planning (a)next year's and (b)the next outing.

Mat48

Hang in there DD - you have come to my aid over the last few weeks since I joined AC, as the voice of a courageous and wise one with a good spice of dry humour thrown in so it's good for me to have to remember that you are just human after all. Sorry you've had it so bad and still put up patiently with my moaning.

Wishing you a much improved day tomorrow.
Mat xx

tjt6768

I'm so sorry that I almost missed this. I'm ashamed to admit that I've spent most of my brief online time when I get signal in chit chat :roll: :oops:
I've not been taking care of my lwa duties, so please forgive me..

I'm also sorry that you have come back down with such a bang.. I dearly wish I could help..

Come on Tigger, kick Eyore's ****

kellerman

Morning DD,
Hope you are feeling ok as you can be this morning.
You've had your holiday from the poison and now it's back to reality with a bump.You'll get there again.Positive thoughts.
Your posts usually make me laugh and will again I am sure thats when I stop crying.
Strange that meds that are supposed to help cause so many side effects.
Rest plenty and take care
May

traluvie

Morning DD.

Just checking in to say how you are this morning..
Hope you are a wee bit perkier this morning and had a decent nights sleep..
Thinking of you luvie..xx

CJHunter

Morning DD,
Thought would see how you were doing this morn.
Thinking of you hun.
C xx

dreamdaisy

Twelve hours after the dread deed the cough returned. :roll: Un-flaming-believable. I spent a nice half an hour or so hacking into a bath towel in the sitting room: I couldn't be bothered to go downstairs to cough. Mr DD also had a rough night as his gout has returned with some vengeance, whether that is connected to the ten mile walk he did yesterday or not we don't know. We are both sitting in bed. What a pair. :roll:

I have a stonking bruise, it is by far and away one of my better efforts and the site is still sore - I know this as my laptop cushion is resting on it! My deepest thanks to everyone for their support and understanding. DD

julie47

Morning DD
I missed this yesterday as I didn't call in to ac much at all.
I am sorry that the good feeling has now come to an end, but hopefully as you start taking the H&M again you will improve. Give them a little time to get back into your system. Perhaps they make us sleepy for a reason, the reason being that we then just have to have tthat 40 winks and rest . It is annoying I know when all of a sudden the bed calls in the afternoon (afternoon for me allthough typing this now I could well give in) and you have to give in.
Flippin cough, I hope you can shrug that off soon.

Take care DD hope you feel better soon, and Hope too that mr. DD is better soon too.

Love Juliepf x

jillyb1

So sorry to hear you're now back in the world of the unliving . Eeyore is always welcome to voice opinions as far as most of us are concerned as non stop Tigger bouncing can get a little annoying ! Wishing you and Mr DD a quiet , restful day . Love and hugs ; Jillyb

dreamdaisy

I have been a cough-free zone so far today and I hope it stays that way. I had a cold shower this morning as the boiler packed up but that is now all fixed so I can go and wash up now - and re-pack the airing cupboard with all the stuff I removed so the plumber could gain access to said beast. I am wondering when the fun will stop. :roll: DD

CJHunter

Afternoon DD, so glad the dreaded cough has stayed away today, maybe the cold shower did something

Oh we have fun dont we, was trying to erradicate moth larve at weekend. What would we do without rhe fun eh??

Glad boiler is fixed, now for a long soak I reckon

Mat48

If you're anything like us DD then don't expect the fun to stop for a while. It just seems to run like that sometimes don't you reckon?

We had a leak into our kitchen wall that no one could track. In order to track it and dry it out they dismantled half the kitchen which is still dismantled. Finally having also dismantled our new-ish bathroom they located it - a screw through the hot water pipe!

Simultaneously our new car (Mr Mat's 50th birthday prez) came up on the ferry and as soon as it had been driven a few miles an orange fuel emissions light came on. It was away in various garages coming and going for 8 weeks - by which time our old car had developed similar problems just as we had found a buyer for it!

Then the Gods decided enough fun had been had on leaks and cars and went for the phone line and internet which were down for 4 days. Also the our large freezer has broken down and keeps bleeping so we've had to empty it out.

And after three weeks remission from pain I was convinced the whole arthritis thing had been a large menopausal blip when lo it all came thundering back - all within the same week as other stuff! We ended up with the BT engineer, the loo being removed by joiners and plumbers and the AA all in one afternoon while I couldn't get downstairs to our spare loo without travelling on my bum. What had I done to incur their wrath SO badly I wonder?

I really hope your run of ill-fortune is far more short lived than ours! :roll: