Apparantly something is working at last

kathbee

Hi all

Been to the rheumy clinic today and my CRP is right down to 4, which I was told was normal.

I had my first infusion of Rituximab a few months ago and at that point CRP was up to 30. Diagnosed with severe sero-positive RA 13 yrs ago.

Also a few folks have told me over these last few weeks 'You look better' which is something unusual for me to hear.

So just to say to the peeps who are really stuggling, there is a light at the end of the tunnel. Just hope it doesnt decide to go out for me.

On the downside both my knees will need replacing very soon (had one hip replacement) so thats the source of a lot of pain at the mo.

Kath x

elnafinn

Aw, Dear Kath,

That is such good news, not about your knees but the Rituximab. I too hope that the light at the end of the tunnel continues to shine for you. About time too. I am so pleased for you. The knees can be sorted with an operation(s) if you can bear it.

Thank you for sharing your news,

Love and fluffy hugs,

Elna x

valval

kath what a lovely post it always great to hear meds can help sorry about the knees though always something val

stickywicket

I'm glad something's working, kathbee. Thanks for telling us. Good news always welcome.

Ankyspond

That's great news. Xx

mig

well done.Mig

kathbee

Thank you Elna, Val, Sticky and Anky

Yes it is good news and whilst I have been on here since around 2004, (I changed my name on here so it looks like I joined in 2009)
I have never actually started a thread myself, although I have replied to loads and read hundreds in the 11 yrs.

Just wanted to pass the good word around as there are many newbies who probably feel like I did when diagnosed - what does all this mean and what is the future.

But I kept taking the meds and I have had a lot of different ones in the past years and hopefully I found something that agrees with me.

Another anti-tnf, Humira didnt like me but it seems Rituxi is going to be buddy.
Rheumy told me today that two patients have gone for 3 years between Rituxi infusions so thats something eh?

Kath x

kathbee

Thank you mig, you just nipped in front of me there.

xx

bertyboy

that sounds positive and if people are telling you how much better you look that brilliant , hope when your knees are done things go well x

vonski

Hi Kath,

This if the good news I've been waiting for Once you have your knee op you will feel like a new woman. Maybe a cruise to celebrate, or just a cruise

kathbee

Thanks Berty and Vonski

Yep, any excuse for a cruise is ok.

xx

stickywicket

kathbee wrote:

I have never actually started a thread myself, although I have replied to loads and read hundreds in the 11 yrs.

11 years? 11 years? You've not started your own thread in all that time?

Kath, I do hope you're not going to start pestering us now by putting up a thread every 5 years or so

kathbee

11 years? 11 years? You've not started your own thread in all that time?

Kath, I do hope you're not going to start pestering us now by putting up a thread every 5 years or so [/quote]


Ah ah, sticky.
Ok I wont pester everyone, but Ihave put a diary reminder entry in for 2016.
Oh but I will be 72 by then, might not be capable.

Kath

valval

kathbee wrote:

11 years? 11 years? You've not started your own thread in all that time?

Kath, I do hope you're not going to start pestering us now by putting up a thread every 5 years or so

Ah ah, sticky.
Ok I wont pester everyone, but Ihave put a diary reminder entry in for 2016.
Oh but I will be 72 by then, might not be capable.

Kath[/quote]


please do not leave it that long go mad and do one next week while i am away or it will be very quiet here then will reply when i get back val

kathbee

OOPS sorry everyone

I should have said I had been a member of the forum for 7 years, not 11
I cant add up.

See, I am already going ga - ga.

Val, have a good time and hope you enjoy your break, wherever you are going.

Kath xx

lalla

Great news about the infusion , yes it does bring hope when our journey is taking us to the Biologics, good to hear positive feedback. Hope you get your knees sorted soon, then nothong will stop you enjoying yourself,, Take care Linda

traluvie

Thats great to hear some good news..

Hope it is long lasting..xx

kathbee

Thank you Linda and traluvie for your good wishes

Kath x

dreamdaisy

How lovely to hear some better news about the meds, kathbee. Long may it last and long may you enjoy it. DD

elnafinn

Dear Kath

I had never realised that you had not started a new thread, before this one. Wow!

I don't know why but I thought the forum started in June 2006. So it was earlier then, you must have been one of the first forum members. Another great achievement.

A cruise sounds like a lovely idea.

Love
Elna x

kathbee

elnafinn wrote:

Dear Kath

I had never realised that you had not started a new thread, before this one. Wow!

I don't know why but I thought the forum started in June 2006. So it was earlier then, you must have been one of the first forum members. Another great achievement.

A cruise sounds like a lovely idea.

Love
Elna x

Hi Elna

I had one or two other user names but thinking about it I am now wondering if it was in actual fact in 06 not 04,
04 was the year I joined ebay. Although I was a lurker on here for a very long time.

Oh my, total confusion - no wonder at my age. But I think I have got my years mixed up.

I did write a poem or two but think I may have tagged them onto something else not sure.

Hey its turning out I'm not right sure about a lot of stuff eh.

Forgive me its an age thing.



Love Kath xx

vonski

Kath 72? surely you mean 27, well I hope that's how you feel after knee op and of course a cruise
Love
Vonski x