Can't take Cimzia yet

jenzie06

Have been having major problems with my hospital and their complete lack of giving a monkeys and remembering me. I'm continually having to fight and stamp my feet to get anything done. This is becoming wearing.

Anyway I'm due to start Cimzia as the next drug but my paperwork got lost and no one chased it up. I once again rang them and asked how many times I have to use the word desperate and how many times I have to cry before someone will do something.

Finally someone organised themselves and I got my Cimzia delivery today and the hospital rang to offer me an appt for fri (I'm having in hosp as the last two drugs closed my throat).

Unfortunately, my gorgeous son got another dose of hand foot and mouth and was very poorly last week. Now he's given it to me!!! I have a blister the size of a 5p piece on the underside of my tongue and feel so achey like I have flu. I mentioned it to the nurse and was told I'm not allowed my Cimzia. Bummer.

Anyone on it? What do you think?

frogmorton

Hi Jenzie

oh l am sorry about all the delays you have had waiting for some treatment that might actually help you!!

Finally they get their acts togethere and a sensible plan is put in place for you to try under supervison in hospital....

then what happens? Poor Wee boy gets ill and gives it to his Mum :shock:

Oh Jen :sad: Poor poor you and our poor boy too.....

My fingers are crossed for a speedy recovery and Jen have you a plan 'B' date to start the Cimzia??

Love and hugs

Toni xx

barbara12

Oh Jen they dont make life easy do they, I do wish you well with everything and your lovely son,
I hope they get you the proper help very soon, I really do
You take care

salamander

I've just been taken off Cimzia due to recurrent infections. So make sure you are completely well before taking it. It's worth waiting for as it worked very quickly for me.