Can't take Cimzia yet
jenzie06
Member Posts: 708
Have been having major problems with my hospital and their complete lack of giving a monkeys and remembering me. I'm continually having to fight and stamp my feet to get anything done. This is becoming wearing.
Anyway I'm due to start Cimzia as the next drug but my paperwork got lost and no one chased it up. I once again rang them and asked how many times I have to use the word desperate and how many times I have to cry before someone will do something.
Finally someone organised themselves and I got my Cimzia delivery today and the hospital rang to offer me an appt for fri (I'm having in hosp as the last two drugs closed my throat).
Unfortunately, my gorgeous son got another dose of hand foot and mouth and was very poorly last week. Now he's given it to me!!! I have a blister the size of a 5p piece on the underside of my tongue and feel so achey like I have flu. I mentioned it to the nurse and was told I'm not allowed my Cimzia. Bummer.
Anyone on it? What do you think?
Anyway I'm due to start Cimzia as the next drug but my paperwork got lost and no one chased it up. I once again rang them and asked how many times I have to use the word desperate and how many times I have to cry before someone will do something.
Finally someone organised themselves and I got my Cimzia delivery today and the hospital rang to offer me an appt for fri (I'm having in hosp as the last two drugs closed my throat).
Unfortunately, my gorgeous son got another dose of hand foot and mouth and was very poorly last week. Now he's given it to me!!! I have a blister the size of a 5p piece on the underside of my tongue and feel so achey like I have flu. I mentioned it to the nurse and was told I'm not allowed my Cimzia. Bummer.
Anyone on it? What do you think?
0
Comments
-
Hi Jenzie
oh l am sorry about all the delays you have had waiting for some treatment that might actually help you!!
Finally they get their acts togethere and a sensible plan is put in place for you to try under supervison in hospital....
then what happens? Poor Wee boy gets ill and gives it to his Mum :shock:
Oh Jen :sad: Poor poor you and our poor boy too.....
My fingers are crossed for a speedy recovery and Jen have you a plan 'B' date to start the Cimzia??
Love and hugs
Toni xx0 -
Oh Jen they dont make life easy do they, I do wish you well with everything and your lovely son,
I hope they get you the proper help very soon, I really do
You take careLove
Barbara0 -
I've just been taken off Cimzia due to recurrent infections. So make sure you are completely well before taking it. It's worth waiting for as it worked very quickly for me.0
Categories
- All Categories
- 21 Welcome
- 18 How to use your online community
- 3 Help, Guidelines and Get in Touch
- 11.7K Our Community
- 9.4K Living with arthritis
- 144 Hints and Tips
- 221 Work and financial support
- 755 Chat to our Helpline Team
- 6 Want to Get Involved?
- 394 Young people's community
- 11 Parents of Children with Arthritis
- 38 My Triumphs
- 122 Let's Move
- 32 Sports and Hobbies
- 19 Food and Diet
- 362 Chit chat
- 244 Coronavirus (COVID-19)
- 32 Community Feedback and ideas