Just got CCP results - not sure how I feel

VictoriaPlum

Hi GP just rang me at work to give me my CCP results which are very high apparently - 340, so he's referring me to Rheumatologist. My RF was also abnormal.

At the moment my fatigue and flu like symptpms are getting me down more than the joint pain. Going to work everyday is like climbing a mountain. :sad:
Do drugs/therapies work to help the fatigue/flu symptoms as well as the pain? :???:

traluvie

Hi Victoria..

Sorry to hear of your news..
Unfortunately no-one can say if the drug/therapies will or won't work for you, what works for one may not work for someone else..
I can tell you that i am taking hydroxychloroquine(mild disease modifying drug) and it has helped me along with other meds..
Once the rheumatologist kind of knows what is going on they will start you on treatment straight away so hopefully you should feel a difference..
You will need to learn to pace yourself and listen to what your body is saying..Take each day as it comes..
If you want to ask any questions then fire away, hopefully we can help, either way we will support you..x

lalla

Hi so sorry to hear of your struggle, the problem is everything seems to take so long to get results and you can have good days and exhausted ones. It will be good to start treatments but you may have to try different ones to see what works best for you and you may feel wiped out for a couple of days after the drugs ( if weekly try having it on fridays so you can rest more at weekend) Rest and balance is essential and we tend to get it wrong cos when you feel good you tend to do too much and pay for it the next day, Take care and hope to see you posting and let us know how you go on Linda

valval

sorry it must have been bit of a shock to hear this news while at work . the meds can be grea,t if i look back a few years was exhausted was sleeping a lot and had no life did not even want to go on holiday as was to much effort . well takes a while for some of the meds to kick in and sort right ones for you (i was lucky first lot helped) so feel so much better in my self and yes do over do things on good day. but would hate to live with out them now even though taking meds is not something i like doing and tend to cut down as much as possible they help so worth it. but as others have stated we are all different so do not expect miricals good luck val

frogmorton

Hi VictoriaPlum

You must be so shocked and frightened :sad:

I am so sorry, but l will tell you that yes, if you get the right medication for YOU then the therapies SHOULD help with the tiredness.

The whole idea is that they get the disease under control and the tiredness IS a huge part of that isn't it?

Before l started DMARD treatment l took paracetamol and codeine and the paracetamol reduced my slightly raised temperature...this did help me to feel less 'fluey'

Love and hugs to you

Toni xx

dreamdaisy

The tiredness is part-and-parcel of arthritis. It is worse when one is flaring (you sound as though you are at the moment, ie the disease is very active in you) and yes, medication should help to bring that under control. We cannot say how you will react to the meds, but from my own experience I still flare despite the fairly heavy-duty stuff I am on: it might not be as bad as a non-suppressed flare but it is still very noticeable. I wish you well. DD

VictoriaPlum

Thanks for replies xxx
I'm not having support from my boss its making it much harder, she doesn't understand and is getting irritated with me - I can't think clearly at work, I get head rushes, feel so weak, in pain, but she's someone who has never had time off sick so is not sympathetic. Don't know what to do. I have to wait til 26th Oct to see the Rheumatologist.
I know this sounds dramatic but if there's a hell I feel like I'm in it

stickywicket

I'm sure things will get better, VictoriaPlum, but, as others have said, it can take a while to get stabilised. With luck, the first meds they try you on will help enormously but there are no guarantees. Some have to try several before they find one that does it for them and there is always residual pain which you will get used to. Fatigue is also usually lurking (Feel OK, do too much and it will soon rear its ugly head) but not as bad as when you are flareing.

Your boss sounds a bit of a nightmare. If you post this particular problem on 'Working Matters' someone might be able to make some practical suggestions.

I hope they get yours under control quickly.