Anti tnf and ESA

magicdragon
magicdragon Member Posts: 75
edited 18. Oct 2011, 04:19 in Living with Arthritis archive
Hi everyone,

Hope Arthur isn't bouncing on any of your joints.

Well very long story short my crp had risen to 96 and my rheumy ultrasound scanned my wrists and feet and detected damage and significant inflammation in my hands and has recommended ultrasound therapy and physio for my feet.

Anyway because of this i'm being assessed for Humira, I was given the option of other meds but they said its the best option for my arthritis and psoriasis. Anyway I've had my first assessment and my nurse has said the second should be a formality and I should be prescribed it.

Anyway is anyone taking this? how did they find it?

Also if being in constant pain, the fatigue and insomnia wasn't enough I have been called up to be re-assessed for migration from IS to ESA.

Im terrified, I suffer with anxiety as it is and im just so worried. I'm trying to fill out this stupid from and its a nightmare and I think very misleading.

Any advice?

Also do you know where I can get to know any other ppl online other than this wonderful board? like facebook for example just really could do with some conversation

Thanks everyone

Comments

  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    hi Magic,

    sorry its all a bit rough for you just now but your rumo does seem on the ball and is helping you with the joints.

    you could do with some help with the form filling and maybe if the cab are as busy that way as they are this DIAL could help you. you really could do with some help with them especially= with the anxiety.

    a lot here are on face book, i have to say i am not, but there is always someone hire you can chat to so maybe that would help?

    hang in there and though i am sorry your suffering its nice to see you again. Cris xx
  • traluvie
    traluvie Member Posts: 2,579
    edited 30. Nov -1, 00:00
    Hi MAGIC,

    It can be very daunting for you at first with so much going round in your head..
    There are a few on here who are familar with the drugs you mentioned i hope they can come along and help you soon..
    I will pm you my facebook link so you can add me as a friend and can chat.
    Take care..
    th_tn_TisFORTIGGER.jpgxxTracyxx
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I've been on humira and injected meth since July 09 and it has reduced my inflammatory markers to virtually zero. I am on sulphasalazine too and that seems to keep the P bit of my PA at bay. The H&M has not, however, touched the pain and my knees still swell when they are stressed by walking or standing still. Others on here have had fantastic results from it which is probably why they are not posting as much now. I sincerely hope it works as well for you.

    Ask the CAB to help with the forms if they are really that daunting. As for other social sites, well I understand they abound and I am sure you will find many other places to chat. I don't FB but many on here do. I wish you well. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Morning Magic

    No advice, just want to wish you luck with the assessment and hope the humira is good for you.

    Take care
    Juliepf x