fibroymaliga + sweating??

psyart

Hello to everyone ~ this is the long lost Louise here!!!

lots of things have been going on ~ most bad and am trying to deal with it slowly but sure :!:

I have one question though ~ does anyone who has fibroymalgia have hot sweats ~ especially when they have fatigue and or lots of pain :?: :?:

hope everyone is coping with this illness if not loads of hugs and saffron cake with cornish clotted cream on top to help

Louise xx

CJHunter

Hi louise, we havent met so just thought i would say hi.
I am between diagnosis at mo, which is a tossup of either psoriatic arthritis or fibro. I cant say this has ever happened to me.

Hope you get to the bottom of it.

Take care
Clare xx

magenta

Hi Louise,

I have fibro and I get hot sweats but always put it down to 'my age'!

Nice to see you back again,
Magenta x

bubbles

Hi Louise, in a word, yes, I do and it is horrid. Not sure why they happen to be honest xx take care Bubbles

elnafinn

Hi Louise

I just looked on a fibro forum and messages about profuse sweating and there were so many people saying the same thing of differing ages. Quite a few mentioned the sweating and then becoming freezing cold. I really felt for them and I sincerely hope that you are not going through it anywhere near as badly as some of them were. It was interfering with their lives so much and quite a few mentioned how awful it is for them when in their working environment.

Elna x

angie1973

It's a very common symptom with fibro.

Although I was only officially diagnosed with fibro in 2009, I have had it for much, much longer. The doctors believe it was triggered by my car accident, but it may have been even longer with the traumatic birth of my daughter.

However, I've had over active sweat glands for much longer than that. The doctor at the time said it was because I was young and growing etc, but it never went away.

I use a product called odaban. There are a few out there on the market, but this one is a spray on, not a roll on, and is much nicer to your skin. The roll on ones because you have to apply with dry arm pits / hands / feet etc, mean if you are even a little bit damp, it can break down the chemicals in the product and it stops working. Because this one is a spray, it doesn't, and has less harsh chemicals in it.

It's about £5 for a bottle, and one bottle an last months. It starts to work after about a week of using it. you put it on overnight, then wash off the next morning. After a week I was completely dry.

I now only have to apply once a week, so one bottle lasts an age.

It really helped with the sweating thing for me. It is reported to be a really common symptom though. You have my sympathies.

jillyb1

Hi , Louise , not sure if we've met ( head like a sieve ! ) and no help as I don't have to deal with fibro ; but called in to say the cake and clotted cream sounds yummy . Can I request some to be delivered to Brighton , please ? Jillyb

kittymedaughter

Hi Louise, I have had fibro for 9 years and i sweat alot, especially in the morning, I have to put the fan on when i get in work in a morning..it can be freezing outside but i still need the fan on to cool myself down

I sweat alot at night as well, but then go really cold and shivery

I am not sure if you have seen the Stamford University research about fibro on youtube..he explains our pain and how it changes. They think our pain receptors in the brain don't close like "normal" people...normal people bang their toe, the receptors travel to the brain to tell it that they have hurt their toe, as the receptor closes, the brain tells the toe to stop hurting...in fibro these receptors don't close as they should and remain open..then they may close and another one doesn't close so this explains why our pain moves around our body..when we are in a flare up, all our receptors are open and therefore we "hurt" all over.

hope this makes sense to you..

Jano

psyart

Hi everyone ~ big thanks for replying and sorry took so long to come back on.
I have had a really c@@p week ~ had an assessment on Saturday and was diagnosed with dyslexia and then yesterday I had to attend a tribunial as I am appealing against being turned down for the low mobility DLA. Went into the room ~ really worked up, feeling sick, and they turn around and say they are going to ajorn {sorry bout spelling}. They are not happy as DLA have not requested my medical records or any updates since 2009. So they need to request these from the doctors ~ then my name goes back on the list to be seen. So probably will not be seen for another 6 months :x

Anyway ~ I have read your comments and thank you again ~

Jano ~ I also can get very cold and then very hot ~ which is so strange for me but what you said made sense ~ thanks. x

jillyb1 ~ I can send some cake and clotted cream but would worry that it might get squashed or even eaten on the way

angie1973 ~ thank you for the info ~ will look into the spray. x

Elna ~ thanks for lookiin into it for me ~ I find sometimes, no matter where I am, that the sweating is horrid and I always have body spray in my bag just in case x

Bubbles ~ good to hear from you ~ not been on here very much to write but do read whats goin on ~ take care. x

magenta ~ I did think it was my 'age' but it just didnt seem to be consistant with 'the change' ~ do keep lookin in but just not writting in. x

CJHunter ~ Hi ~ just to let you know ~ I was diagnosed with psoriatic arthritis 5 years ago and fibro lat year. First the PA was dominant but now they say the fibro is ~ dont think they really know and because of lack of money they are just fobbing me off now ~ both are c@@p though. hope you get sorted soon. x

take care everyone ~ sending loads cotton wool hugs and cornish pasties if anyone wants one :?:

louise xx