My sort of diagnosis

woodbon

Hello,
I visited my GP on Monday with her, we talked about my history, she commented that the ortho's letter hadn't been very helpful at all. She asked about how I feel now and I told her about everything, including the tummy pains and diaoriaha (sp???) I've had, as I thought it could be connected to the Gyne cyst. The examination showed that it was in the bowel region though. She thinks its IBS, which is not what I wanted to hear! Putting all the things together that I havent got and the things I have got she thinks I have Osteoarhritis and Fibromyalgia and as I'm having all the meds for that already and I'm waiting for CBT, then I'm already doing all the right things.

I have been stressed lately with my ESA medical and things, and thats when it seemed to flare, looking back. So it seems I MAY have a label now (BOGOF)!!! :eek: She said I must rest when I feel unwell and not to push things when I am OK. A few weeks ago, I found resting for half an hour to an hour after lunch and sometimes, like yesterday, at about 5pm, helps me feel better in the evening, so I'm doing that although I feel its such a waste of time!

She said that she could refer me to a rheummy again, if I wanted, to confirm things, or leave it a while, see how things go and if at any time I get worried about it she will refer me then. I opted for that, as I've seen so much of hospitals recently and I am sure the diagnosis is correct, the ortho may have been 'strange' but that was also his view.

She printed off lots of info for me to read, said to look at some of the alternative care and come back and see her when I've got used to the diagnosis. I'm glad she didn't want me to go to the hospital straight away, although the waiting lists mean it would be some time! Anyway, as you have supported me so much recently, I thought I'd like to give you the verdict Even so I still feel I could do more if I tried, I have a great feeling of guilt to get rid of. So CBT, I'm ready for you!
Sorry to go on so much, hope you are all as well as possible.
Love Suexxxx

dreamdaisy

Oh that is a lot to get your head round, isn't it? One thing that you must get to grips with is the realisation that resting is NOT a waste of time: resting ensures you can do more and for longer. I have just returned from Sainsbriz and will now sit around for 45 minutes or so with a coffee, a biccy and the laptop, that means I will be able to sort the laundry and get the next lot on - then a breather and some lunch - then a few more chores and a rest before teaching. Pacing oneself is essential and it does help to make life easier/less painful/less tiring.

So, OA and fibro eh? I am so sorry woodbon, but at least you have some idea now of what is what and you know that you have been - and are doing - the right things to help yourself. I wish you well. DD

woodbon

dreamdaisy wrote:

Oh that is a lot to get your head round, isn't it? One thing that you must get to grips with is the realisation that resting is NOT a waste of time: resting ensures you can do more and for longer. I have just returned from Sainsbriz and will now sit around for 45 minutes or so with a coffee, a biccy and the laptop, that means I will be able to sort the laundry and get the next lot on - then a breather and some lunch - then a few more chores and a rest before teaching. Pacing oneself is essential and it does help to make life easier/less painful/less tiring.

So, OA and fibro eh? I am so sorry woodbon, but at least you have some idea now of what is what and you know that you have been - and are doing - the right things to help yourself. I wish you well. DD

Thank you, in a way its a relief, which sounds strange but, I think I had begun to think I was making a fuss over nothing. Its still hard to believe!

CJHunter

Hiya, Am glad you have a dagnosis of sorts. it looks as if I may well be on the fibro path too
A good website when you have got your head around things is: www.ukfibromyalgia.com

Do rest when able, it does help.

Take care.

C xx

woodbon

Dear Chris, I'm sorry you may have FM too. I hope you are not doing too much. Its so easy, I find to just want to do that little bit extra or just finish something off!
Love Sue

CJHunter

Yes its true, and nine time outta ten you do, i think its human nature. Just need to re programme ourselves. Hope this is what the CBT does for you.
Good lucK with it all.

Clare xx

traluvie

Hi woodbon,

Sorry to hear of your diagnosis, but in a way it is a good thing as now you know what you are dealing with and learn how to cope with it..
It will probably take a while to get your head round but we are here to support you.There are a few people on here with fibro so maybe they can help you a bit more..
Take care and listen to your body..DD's advice was good, don't feel guilty for resting, you need to do it..xx

bertyboy

hi Sue it sounds a lot to take in but she sounds a supportive DR and that can be a battle in its self ,, but dont feel guilty for anything , if you need rest take it , there is always tomorrow , even a machine needs a good oiling at times xx

frogmorton

Hi Sue

l think your GP has always been kind if l remember and am impressed that she has taken the time to give you some info on fibro.

I am so sorry, but glad in a sense because you have been floating around worrying and wondering for such a long time :sad: Now you have a name and a reason for how you have felt.

Huge hugs for you Sue

and am sure you will find the CBT really helpful.

Love

Toni xx

julie47

Hi Sue

Just popping in to give you a hug (((((((((()))))))

Juliepf x

woodbon

Oh thank you its good to be able to talk on here and get so much support. I started typing and then sat stairing at the screen for about 10 mins or so, no energy and just feeling so tired in a funny sort of way. Still, I've made myself move and I'm feeling better for it. I've been getting like this for a while and worrying that I'd got something awful, early onset dementia was one along with a brain tumor!!! :roll:
My GP is very helpful, she always runs late as she never hurrys anyone! Love Suexxx