steroid has left me feeling let down :(

theresa4

HI All sorry for not being around my steroid has not done its usual job and although my joints are a little easier and less painful its certainly not the usual jubilant run around. Im having to pace myself still and am truly disappointed. By now Im normally cleaning the whole house and catching up on those jobs that never get doen properly by anyone else but instead Ive walked the dog and my ankles and knees are sore since sitting down. :shock:

I know that the depo steroid loses its some of its effect as time goes on but its all too soon for me. When I first had them I could go out dancing in heels (all night) 6 years on and I can barely manage walking in flats. Dont get me wrong I've been driving further and doing shoppping which I just cant do without a steroid but I want more. Do I sound like a petulant child? It just feels like its gradually slipping away. I was hoping to do some workouts in the gym for theses 6 weeks to drop a bit of weight on the cross trainer (which my hubby bought for me a few years ago) but I think if I do I might not walk at all even with steroid. Normally I can just get on with it now Im having to carefully consider my options. If I overdo it I may make the steroid effects go altogether and I want to be able to do some running around (figure of speech)as its my middle daughters 18th birthday and my older 2 had great parties and I dont want to let her down.
Decisions decisions I want it all :shock:

Theresa x

traluvie

Bless you Theressa,

We always want it all no matter what position we are in, unfortunately for us it never seems to work out how we would like..
There are many things i would love to do which i used to love doing, but my body just won't let me now, so my best option is to take each day as it comes and go with the flow, sounds a little boring i know but it is the only way i can function lol
The depo worked great for me, but i am being stubborn and trying to stay off it now for as long as possible, thinking i am clever lol, doesn't always work..
Maybe your body is trying to tell you that you need to slow down and pace yourself,, the hard thing is listening to it lol..
Hope you feel better soon..Heres some hugs..(((((X)))))

nanasue

Hi Theresa, I know how you feel. The last steroid jab I had (end of june) had limited effect for me, only took the edge off and lasted about 4 weeks. Like you I'm usually like a "spring chicken" when I've had one and the effects usually last about 10 weeks for me so can usually get me over a flare. This time I had a flare that lasted 4 months (longest ever) so wasn't much help at all, I wonder if it had worked whether the flare would've died down sooner? interesting stuff isn't it. I notice that you've been dealing with this "stuff" for 6 years, so have I, could that be a factor in the effectiveness of steroids wearing off? who knows. Make sure you look after your eyes as the steroids have caused me to get cataracts, I was never told the risks of this so I'm a bit annoyed, if you think there's a problem go straight to optician. You may well be lucky and be ok but just be vigilant.
I'm sorry I'm not really being any help, all I would say is just take things easy as you would normally do and hopefully you'll be ok for the party, hope it goes well and you have a good time.

Sue x

stickywicket

I think it's acknowledged that steroid jabs work less the more you have of them. Certainly the ones into the joint did for me - still worked but not as well though I never rose to the dizzy heights of dancing even without heels.

You won't 'let your children down'. Theresa. They'll understand the gap between desire and achievement.

frogmorton

Hi Theresa

is it like diminishing returns??

I am so sorry they are not so brilliant now for you, glad you are getting some help and well....l dont think it's childish to 'want more' :sad:

You only want what others have anyway due to good health :???:

Love

Toni xx

Mat48

Well I relate to your hunger for more freedom completely. I've been on oral Pred 20mgs and it's not worked nearly as well as the Kenalog jab I had back in June but am assuming that it's just because I started at a much worse point this time round (despite those lying infammation marker results this morning). What you describe is exactly what I'm experiencing - ie not as bad as i was last week before taking them but not as transformed as I had hoped to be.

On my post on Pred DD said it's best to keep our expectations low and then everything else is a bonus and I'm working on that one truly - but then I've not had this for 6 years like you have so still in shock at what each day brings!

Just filled in an application form for a uni course by hand and this was really so hard for my hands to accomplish despite steroids. My knuckles feel like they've gone to hell now and I notice this more and more re writing because of the pressure applied. Not nearly such a problem typing though because it keeps the fingers and wrists more active whereas writing demands stillness and too much strength? It's very upsetting business really but I think others are right to say your kids will not expect you to sacrifice your wellbeing for them ever unless it's life or death. Mine have long since given up on me but then their father is pretty much a domestic goddess! Hope you feel better soon. Mat x

dreamdaisy

When I had my first depo I was told I would feel all better and lovely for at least three months. Yeah, right. I don't know if there is a rule of diminishing returns with these things but I reckon the more general rule of the less you expect the more pleasantly surprised you might be is better - but that don't work when you have experienced what they are capable of doing. I am sorry Theresa, it's just one damned thing after another, isn't it? Take care. DD

theresa4

Well firstly thank you all for your lovely replies.
I decided **** the advice and I cleaned out what used to be my chill out room (no tv just books and music) which has gradually become my eldest daughters idea of a dumping ground to clean the main sitting room of her daughters bOoks and toys. Don't get me wrong she is here alot and my granddaughter makes me smile and I'm responsible for the purchas of many toys but a little effort and a few toy boxes and rearrangement of furniture and clearing a bookcase shelf for little ones books and it's clean tidy and smells fresh.
On the other hand my body went into shock pain racked through it and I could barely breathe. I'm now relaxing in a lovely hot bubble bath hoping to restore some elasticity to my joints. I'm pleased it's done apart from cleaning the leather suite (my youngest said she wil do it at weekend) but if my eldest does not tidy up in the same way and of course encourage little one to do same I will throttle her with My sore but steroid affected hands.
Ps next time I will listen to your advice sue
My daughter isn't the one expecting the grand party it's me I will let down for not providing the same for each. I know I'm silly but I need to think I can
Must rest now me and oh are going away sat night to see friends down south

Theresa x