Sausage toes, arthritis or raynauds??

suzygirl

Hi all, I am flaring, have a bug and am reducing steroids. I must be mad, but want off the steroids due to longterm side effects. ( A personal decision).

The last couple of days my toes are swelling like sausages, which is odd, only had before occasionally. Is it arfur or raynauds? I have had chilblains before. Must admit my toes are very painful, but I understood that toes inflamed werre OA and not inflammatory??

Yours confused and fed up

ironic

Hi Suzy,
I am not sure on this one. I have had my toes swell up but usually when the warm weather is here, due to inflammation. Have you been wearing different shoes or like me oversized slippers which are snuggley but tend to make me grip with my toes. :roll:

I x

Poppyg1rl

Hi Suzy,
You poor love, having just surfaced from one of the worst flares I've ever had I can totally sympathise with you Suzy. :sad:
I have sausage like toes and fingers at the moment, mine are like this because I'm flaring with my PA. They will settle down eventually when I'm back on all my medication, but they'll always be crooked, misshapen and sore to touch.
Can you make an appointment to see your consultant or Gp Suzy? also if you can, get some photos of your swollen digits while they're big and sore, it always helps my Rheumy, if I see her and my toes and fingers aren't too bad, I can show her what they are like in a flare.
I'm so sorry your feeling like this Suzy, flares are truly horrible.
Sending you all my love and get well hugs (((((()))))) Xxx

Wonkylegs

HI Suzy

tis Wonky acting as PA for Cris (Skezier) who can't type right now.

Cris sends you loads of hugs and suggests that you get your feet looked at because it could be several things, although in Cris's experience it's unlikely to be the OA.

However, it really does need looking at and a bit of help, and it wouldn't be wise to diagnose it on here



love and hugs from us both (((())))
Cris & WOnky

suzygirl

Thanks all for the replies. However special thanks to Poppy and Cris for replying when they are so poorly themselves. I am thinking of calling the rheumy nurse as I am not sure I am being sensible in reducing the steroids really, as much as I want to.

Its really annoying as the swelling has subsided somewhat adn I didnt think of a photo till it had gone down. :roll: I have never had them that red, swollen and so painful before. Usually its other joints.

Ironic, I haven't changed shoes or slippers, am only able to wear certain shoes now, granny ones only!!! Thanks for the thought though.

Always something with this stupid disease, :shock:

stickywicket

I'm not going to be much help here, Suzygirl. I've no experience of Raynauds. I do know it's happened to mine with my RA. That's about it. Except that I hope you can get it sorted asap.

suzygirl

Thanks SW, I have just phoned the rheumy helpline and am going to try and see the gp tomorrow. My plan of coming off pred and being in denial is not working. :oops: Time to be realistic I think, its just so frustrating. I don't know what med is next as I can't have mtx.

All my joints are flaring and are painful, my elbow is quite bad and that is one of my newer joints affected. Does everyone else find that with each flare the disease seems to get a greater hold on you??

valval

suzygirl wrote:

Thanks SW, I have just phoned the rheumy helpline and am going to try and see the gp tomorrow. My plan of coming off pred and being in denial is not working. :oops: Time to be realistic I think, its just so frustrating. I don't know what med is next as I can't have mtx.

All my joints are flaring and are painful, my elbow is quite bad and that is one of my newer joints affected. Does everyone else find that with each flare the disease seems to get a greater hold on you??

yes elbows latest it gets on my pip sternum was most painfull as muscle spasams affected breathing and back not nice at all get some better meds good luck val

barbara12

Hi Suzy
Sorry I cant offer any help, but I do wish you well tomorrow , please let us know how you get on.