Why oh why is pain getting worse

kellerman

Hi,
For the last 2 days I have been in agony and even my pain dullers aren't doing any good.
I just ache from my shoulders to my feet.
Also a wierd thing today....I went for my 3 monthly blood test...usually straightforward CA125 so my oncologist has the result on Monday and the nurse took loads of blood....liver,kidney function,blood count...not sure what else as she never stopped talking.
The bloods the hospital took are not sent to my GP even though they referred me.
I don't have another rheumy appointment until February,when I am told I will get these results.
Surely this is not continuation of care.It doesn't make sense.
I'm just really fed up with the pain....which has never been as bad as this.
It's not raining and not even very cold.
Sorry for the moan.I am really fed up. May

dreamdaisy

One word: stress. Arthritis feeds on it. Hugs and love for you. DD

tkachev

Fraid it does that. Sometimes you can get a rapid deterioration and your usual meds don't touch it. I have had phases like that and had to struggle on waiting for 'the appointment'. However My rheummy told me off during one such episode and said I should have phoned and let her know.

i know i was bad cos even people in the hospital were grimacing and looking at me pitifully when I staggered past! If you feel like that then get on the phone and ask to be given any cancellation and tell them how bad you feel.

Elizabeth

valval

it always worth giving them a ring try the rhumys secretary they very good or ask for rhummy nurse i did and they helped no trouble val

stickywicket

i think it could easily be stress, May. It does strange things to us. Even when we feel we're coping with it quite well. But, physically, you must also be doing more than usual. Arthritic joints don't like that.

I'm sorry, I can't remember what meds you're on but the kidneys/liver function, blood count etc are all part of my regular ones because I take methotrexate. As for your GP not getting the results - I have a feeling they can access them on the computer if they want to but they don't usually.

if things continue this badly I think maybe another rheumatology appointment might help. Or just a chat with the rheumatology nurse? Of course you are fed up. You have much to be fed up about.

kellerman

Oh DD, I know....but I don't really feel stressed.
In fact I am reasonably calm and on the sister front...things are getting into a good routine.
My chef is coping really well as usual.
I suppose things could be in my subconcious.If this is the case I wish they would get out.
Might be I am getting too used to the cocos,don't really want to take anything stronger.
Thanks for your support.Just want these pains to go away or ease at the very least.
Sticky....Haven't got a diagnosis yet....so thats 2 armfuls of blood in just over 3 weeks.Probably now my blood count will be low...
May

dreamdaisy

You may not feel it, May, but I'm sure it's there. Arthritis is a devious beast, it picks its moments. But we're here too - don't forget that. DD

woodbon

I'm sorry you feel so awful, but don't worry a cry is sometimes a way I let of steam too, I think thats why we do it. Thinking of you and hoping tomorrow you feel a lot better. Love Suexx

elnafinn

Dear May

Although you think you may not be stressed now, you most definitely were beside yourself a good few days ago. Stress most certainly aggravates symptoms. When you were extra upset with everything that was going on, one thing after another, your body gets tense and this in turn does not do joints and muscles much good. Worry is also another factor that does not help symptoms and I am sure you are worrying whether you are aware of it or not. Who would not be in your position? Speak with the rheumy nurse if you can.

I am so sorry you are feeling so unwell and hope things improve all round very soon.

Love
Elna x

CJHunter

Hi May,
It could well be stress but still worth givivng rheummy nurse a ring, maybe they could bring appoint forward??

Can you do any form of relaxation, maybe meditation? This could help.

All the best, take care.xx

dreamdaisy

Hi kellerman, how are you feeling today? Better, I hope. I am thinking of you. DD

hileena111

Hi May
I've just pm'd you

Love
Hileena

frogmorton

Hi May

hope you are a bit better today there and your sis is doing ok too.

Sometimes they do that to me too....loads of blood - no explanation l just think m,aybe sometimes they want to 're-test' everything???

Love

Toni xxx

kellerman

Hi All,
Well I have given up....now got a script for Tramadol.
I hardly had any sleep and was just keeping John awake.
Knees really swollen...never been like this before and I feel like my shoulders are touching my ears...but I think this is because I'm sort of tensing them up.
Apart from that things are running smoothly.
Going to have a nap after lunch....just hope the trammies don't knock me out.
Can hardly keep my eyes open.
When I surface I will get back to you.
Thanks for your support.You know I really appreciate you all.
May

dachshund

Hi May.
i'm sorry you feel so bad arther wears you out.try to sit down in between jobs or do as i do and do them sitting down.
i hope you soon have a diagnosis.
take care.
joan xx

kellerman

Hi,
Well,although swelling hasn't gone down I have had a really good sleep and feel more human.I didn't really expect to be painfree and I'm not but certainly nothing like I was.
I'll take another trammie tonight and hopefully back to normal service in the morning.
Oh the relief....Thanks for your support.It seems like I moan and moan and you listen.
John had the night off and went to the chippy,haven't had them for ages.
My sister is quite upbeat.Just as well she's not going back in hospital tomorrow as I'll probably be too drugged to drive....
I've fought taking anything stronger than cocos for quite a while now,but thought oooh needs must.
Well will have my cuppa now.I do hope you lovely kind people have had a reasonable day as possible. Take care May