Hello friends
cloud9
Member Posts: 385
I just wanted to say that I haven't forgotten about you lovely people here and all the wonderful support and friendship you have shown me. I have been 'helping' someone in setting up a forum which is specifically aimed at my condition, talipes equinovarus, so I'm a little busy over there trying to make it comfy and warm for everyone. If you know anyone with this condition, please point them in my direction. I will be back in from time to time and I won't forget you lovely people here.
Sue (Cloud9)
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Comments
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Hi Sue will do although I have no idea what it is as I haven't Google'd it yet!.0
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I'd be glad to. Will I get into trouble with the mods? Unfortunately you can only sign in as a 'guest' unless you have the condition.Sue (Cloud9)0
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Lol nah. Come as you are. We have a facebook page and have had a few problems wiv people taking the pee and upsetting members. Once bitten, twice shy I guess and the administrator is gonna be totally ruthless in who can join. Be lovely to see you there though. I'll send you the PM Rehab and perhaps you can pass it on?Sue (Cloud9)0
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I have just seen the BBC news clip with Annie, shared on my facebook page.
Good luck and hope it goes well and helps all those affected by the awful symptoms.
ENever be bullied into silence.
Never allow yourself to be made a victim.
Accept no ones definition of your life
Define yourself........
Harvey Fierstein0 -
Hi Sue, Good for you helping set up a specialist web site/forum for people with the same illness as yourself. Wanted to give you a thumbs up for doing that. And I know it's hard getting everything together and setting it out right and making it easy enough to search through and find things on it. So good for you doing that, and don't be a stranger!!
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Thankyou all so much. It seems to be working well and we already have 7 members. Few teething problems but we'll get there. And please do pop in as a guest.Sue (Cloud9)0
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Very good idea Sue!
Well done and yes please - don't leave us lot
Love
toni xx0
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