Early Christmas anyone???

nunivos

Hello everyone, After asking a few days ago about splints, and having mine arrive, i was a brave girl and phoned my advice line to ask for a referral to OT. My nurse asked how i was as it has been 6 weeks since my last flare and why i wanted new splints. I explained my current problems and she straight away faxed my GP and asked for a huge dose of steriod to be stuck in my butt. Dr arrived at lunchtime today after refusing to make me waddle to the surgery, and jabbed said butt. My wrists and thumbs/first fingers have been so bad i couldn't open a bag of crisps, and with this in mind i was thinking about having christmas in the next 10 days. I know i will be feeling "normal" and hopefully able to pull a few crackers and as my sons 10th birthday is on christmas day i could just have that day as a fairly quiet affair. Does anyone else have to rearrange days to fit in with feeling the best they can? When i mentioned this idea to a friend, who is going to become my carer in the near future, she basically told me "I was off my head, and as i am not dying before chrismas gets here, just stop being so stupid". She aslo suggested i see my gp again about being depressed even though she knows i am under medication for a breakdown i had in feb. I then rather quickly heard the dialtone and it was apparent she had hung up. :eek: I understand it is difficult for non sufferers to get the idea of good and bad days, and that we do what we can when the going is good. But to have this reaction has made me question if i would be doing the right thing. I just want to give my little boy a fabbluss christmas day with lots of pressies and a huge lasagne (his choice of dinner), without being in pain and miserable. So come on fellow strange ones, am i off my head or just trying to beat Arthur at his pain game?

kellerman

I understand why you would want an early pain free christmas.
Why not...I struggle to open crisps or anything else for that matter.
We have enough trouble not sure whether we should plan things in advance as we never know how we'll feel.
No....if people don't have this horrible disease ruling thier lives they don't understand.
You go ahead if its what you want. May

dreamdaisy

I suggest that you do what you need to do, no matter what the calendar date (let's face it, Christmas is as artificial as a plastic tree, this was chosen as the date of the birth of Christ) and I suggest that once that is done you find yourself a better carer: this one does not sound up to the job. You need someone with empathy, surely that is both the smallest (and biggest) qualification for the job. DD

valval

there is no reason why you can not have it when you want to you can always have another if you feel up to it your so called carer to be should stop trying to live your life for you and listen to what you want i am sure she will understand when she is around you more and sees how arther can affect every part of your life




val

barbara12

No you are not off your head..you are doing whats best for you, and why not, like you say people that dont have arthur cant really understand the day to day struggles, thats whats good about this forum, we can all talk to on another and they understand some of what you are going through...you have a good Christmas x

elnafinn

I do hope that the injection is working and that its effects will last and last. I am wondering what your little boy thinks about having christmas early. He is old enough to make up his own mind up about that and if he thinks it is a great idea, why not? Mind you he may want that to happen every year then. Presumably he will have a "second christmas" anyway because of presents he will receive from family/friends and for his birthday on Christmas Day.

I would think again about having your friend as a carer though in the future. What she said was one thing but putting down the phone on you was quite another and not something that I would tolerate kindly without an apology and good reason why she did it.

Happy Crimbo x;)

GraceB

I agree with the other comments about your proposed carer. This is obviously the wrong person for you. Whoever helps you needs to be sympathetic and understanding.
If you want an early Christmas have one. It's nothing to do with anyone else but you and your son. Whatever you choose to do I hope you have a wonderful Christmas with your son and brilliant birthday celebrations for him.
Grace

nunivos

Thankyou everyone for your support. I knew i wasn't being off my head and even my mum who is a fellow RA sufferer thinks it is a great idea. Yes my boy is old enough to understand this may be a one off, and the reasons why. We have planned to make meatballs and spaggy tonight with him doing most of the mixing and pouring while i tackle the hot stuff. after we will be having a spa night, with the footspa coming out, a facepack and some much needed nail polishes on toes and hands. One of his christmas pressies from me is a beanbag for him to flop infront of the telly, so i have allowed him to have it for tonight so he can sit painting my nails in comfort lol. I will be rethinking my choice of carer as my friend can often be abrupt and doesn't really get the condition. I just wish the system would allow my son to be paid the same ammount of money as he truly is my superstar.
We will have a very happy christmas on whichever day i decide and as i can feel the steriod kicking in already i can't wait.
x