update

kmr
kmr Member Posts: 108
edited 8. Dec 2011, 04:53 in Living with Arthritis archive
Hi hope you are all well, as you all know my daughter decided to try without medication. well she has been really well and so bright in her self, up until last week when her wrists hurt.then knees then shoulders you can see where i am going with this, her hands now feel like they are on fire she has started back on mtx and the hospital are booking her in for the infusion :sad: . but onwards and upwards as they say xxxxxxx

Comments

  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Aww bless, well at least she gave it a go, I do hope the infusion bring her lots of relief...wishing her well with it all x
    Love
    Barbara
  • suzygirl
    suzygirl Member Posts: 2,005
    edited 30. Nov -1, 00:00
    I think sometimes you have to try just to be sure in your own mind. We all hope it will 'just go away', I know I do. Lets hope the infusion works for her.
  • kmr
    kmr Member Posts: 108
    edited 30. Nov -1, 00:00
    suzygirl wrote:
    I think sometimes you have to try just to be sure in your own mind. We all hope it will 'just go away', I know I do. Lets hope the infusion works for her.
    yes i think its something she needed to do thanks for your comments xxxx
  • valval
    valval Member Posts: 14,911
    edited 30. Nov -1, 00:00
    bless there is always that niggle in back of mind do i need these can i manage with out i stopped one of my meds with docs blessing as hated taking it managed 8 months but was so bad had to go back on it at least i know i need it so makes the side affects less of a burden hope she is doing ok val
    val
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Hi Kmr

    I am sorry your daughter has had to start the meds again. Well done to her though for trying.
    I hope that the meth and infusion bring arthur back under control very soon.

    Hugs ((((()))))))
    Love Juliepf x
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    Hi
    Sorry your daughter had to go back on the medeication but good for her for trying. At least now she will know that she needs them and accept them. I hope the infusion works.
    Love
    Hileena
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    kmr

    you are right she needed to try wothout meds bless her and now she beleives she needs help.

    I am so sorry she is suffering so and hope they can get her on something which helps, but leaves her feeling human too

    Love

    Toni xx
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I agree with the others, but your poor girl, how horrid to feel better then have it all creeping back. I often flirt with the idea of giving it all up and having a break from the constant drugs round, but they do make some sort of a difference and I realise the doctors are trying to help so I too have to play my part. I hope the meds bring her some relief and soon, and the more she takes hopefully the better the joints will feel. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • kmr
    kmr Member Posts: 108
    edited 30. Nov -1, 00:00
    hi at least she was ok for a few weeks, she is back on mtx and had to go to hospital yesterday for a steriod injection, the trouble is that when she felt well she thought she could conquor the world and took on another job which is very manual work i dont think this helped but she still gets up and goes, yesterday was a bad day she could not lift her arms she was in so much pain, this is why she had to have a steriod injection, the infusion should be after xmas. but all credit to her even when she is in agony she carries on, she will not let it defiate her, its just so heartbreaking to see my beautifull daughter in so much pain x:cry: . thanks to you all for your comments xxxx and support xx karen
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Oh dear, arthritis is a cruel master. It deceives you then, when you dare to challenge it, it snaps back and bites harder. I suspect that this new job is not going to be the right thing for her now, what will she do? Your poor girl - and poor you, what a worry. It's great to hear that your girl has spirit but that can be a double-edged sword. Let us know how she gets on, please - and how you are too. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • kmr
    kmr Member Posts: 108
    edited 30. Nov -1, 00:00
    HI ime not feeling to great at the minute its heartbreaking to see her in so much pain she just burst into tears last nite which is very unusual. i just do not know what to do to help her :sad: . i cope with most things life chucks at me but i am finding this really hard but try to keep upbeat as not to upset my daughter. i sat in bed and just cried last night.
    oh well x:-) santa is on his way and soon it will be a new year
    thanks to all my friends on here i hope you all realise how much you all help xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

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