Bad flare, rheumy on Tues

suzygirl · 9. Dec 2011, 13:14

Hi all, sorry to have been absent lately. I am having a bad flare and am having to rest. I have been suffering from confusion, memory blanks etc. I had it before I was on meds, and I had forgotten how horrible it was.

Yesterday I couldnt remember how to count. Earleir in the week I had gone to chemist, came out and couldn't remember where I was or where car was. :shock: So on complete rest and it is helping. I have brain fog due to the lupus and sticky blood always but when flaring ti becomes extreme and I can't remember what things are called, such as dishwasher etc.

I used to be a quick thinker and had an excellent memory so this hard to accept. I have my rheumy appt and am hoping I get a 'proper' consultant and not the muppet I saw last time. It is so frustrating.

Joints are complaining as usual, they dont like the cold and damp and the raynauds is bad as well with this flare.

Anyway, sorry to be absent from you all and hope you are all doing ok, everyone seems to be flaring at the moment with this awful weather.

valval · 9. Dec 2011, 13:19

good luck with rhummy tue i also got app tuesday in morning but not got any swelling never do when got app val

SheilaD · 9. Dec 2011, 14:07

Aww sorry you not feeling well at the moment, I hope your flare soon calms down for you. Hope all goes well on Tuesday for your Rheumy appt.

Am in your pocket

Love n hugs
SheilaD xx

CJHunter · 9. Dec 2011, 16:36

Suzygirl, u just look after u. Hope app goes well.
Take care.xx

scozzie · 9. Dec 2011, 21:16

Suzygirl, I hope you feel better soon, but, no offence, the flare is still noticeable to the rheumy. Take care - Scozzie

Poppyg1rl · 9. Dec 2011, 23:52

Hi Suzy my lovely,
You poor thing, lupus, sticky blood AND a bad flare..I'd give you a hug if I could sweetie.
Rest is the best 'medicine' for you at the moment, take your time doing things, and don't beat yourself up if your memory fails you, you're not well Suzy. Do you think you could print your post out and take it with you too the Rheumy appt? I know what I'm like Suzy at the best of times, sometimes my mind goes blank and all my questions go out the window when I'm there sat in front of the Rheumy...then when I get home I always think of what I wanted to ask x:roll: but, at least if you have a piece of paper with everything written out for you to give to your Rheumy hopefully, they'll know how bad you're feeling and can try something to help.
Love and very gentle hugs my friend, I'm sending you positive thoughts, hopefully you'll feel much better very soon. ((())) Xxx

frogmorton · 10. Dec 2011, 04:18

Hi Suzy

great to see you (and you too Poppy x;) )

Sorry you have been flaring so badly and even more sorry thing aren't working right for you memorywise. That sound very very frustrating - l have it sometimes when l am having a migraine.

You rest and please do pop in if you are up to it....love and hugs

Toni xxx

julie47 · 10. Dec 2011, 04:37

Hi Suzy

You poor love, it sounds as though you are really suffering
Just wanted to send hugs(((((((()))))) and hope that you are back to your old self soon.

Take care
Love Juliepf x

dreamdaisy · 10. Dec 2011, 06:40

Oh boy, this don't sound good, poor you. I hope you had a reasonable night's sleep and are not quite so 'foggy' this morning. I am thinking of you. DD

skezier · 10. Dec 2011, 07:21

hi Suzy,

i am sorry its so horrid for you just now and sending you a bucket of feel better and another of anti-flare.

be kind to you self between now and Tuesday and will be in your pocket for sure. what time are we off? sorry if you said.

leaving you a tea, a ((((( ))))) and a sachet for my purry furry friend. love Cris xx

suzygirl · 10. Dec 2011, 13:15

Thanks guys for the support. The rest helps, I have been out today and got tired and lost my speech. You can't string a sentence together, it comes out slurry and the wrong words, its horrible. It will pass if I rest, a legacy of my TIA. Haven't been quite this bad in this particular way for a while. The cold really seems to affect me, maybe the sticky blood is too thick in my brain for it to fire properly?? Took double aspirin dose today to be sure.

Its 4.35 on Tuesday my rheumy appt, when usually its weds or thurs morning the rheumy clinic so maybe they have scheduled an extra clinic. We all know how busy they are at this time of year.

Quiet day tomorrow, footie match with my youngest and then dinner. Will rest till Tuesday.

Everyone, Poppy, DD, cris, julie, toni, val, claire, scozzie and sheila, big thank yous for responding, especially when you are all struggling as well. Sending you all hugs back and hot water bottles, my favourite remedy.

P.s. I am burning some rosemary oil in my burner with lavender as rosemary is supposed to aid clear thinking and concentration!!!!

P.P.S. I hadn't been drinking, just shopping. So that is not the cause of my slurs in case you are wondering. Although it may well be later!!!!!!! :oops:

julie47 · 10. Dec 2011, 14:13

(((((((((())))))))))) to you dear suzy
I am sorry that you struggled today and hope that now you are resting.
Have a lovely time at the football match with your youngest tomorrow, hope your team wins and then relax again when you come home.
I will be in your pocket on tuesday and hope your appointment goes well

Love & more hugs
Juliepf x

valval · 11. Dec 2011, 04:55

if you are off to watch football hope you have a double layer of thermals on stay warm val

suzygirl · 11. Dec 2011, 13:59

Had a bad nights sleep due to various things and I think it isn't helping. Went to footie, was freezing and pouring down. :roll: Won, 6-0 and through to semi finals of the cup, so pleased for him.

Resting up now. Hope you are all warm and well x

julie47 · 12. Dec 2011, 04:52

Hi SG

Congratulations to your som winning his football match.

Glad you eventually got warm and rested up.
I am robbing the tree of its choc decorations to bring with me for pocket duty tomorrow.

Hope that today you feel a little better
Love & Hugs Juliepf x

suzygirl · 12. Dec 2011, 05:23

ooh, Julie I like that!!!!!!

valval · 12. Dec 2011, 06:09

right flask ready to do did some one say chocolate lovely hope you got loads val

barbara12 · 12. Dec 2011, 06:18

Hi Suzy
I will be with you tomorrow, the memory is so scary...mine was caused by meds...I ended up writing everything down then still forgetting...so I understand a little bit of what you are going through.
Good luck ...and I really do wish you well with everything xxx

tillytop · 12. Dec 2011, 17:19

Hello Suzy

Just to say will be thinking of you on Tuesday and really, really hope they can find some way to help you.

Lots of love and ((()))s

Tillyxxx

valval · 13. Dec 2011, 02:44

right have got my pillow here ready and waiting good luck got a big bag of crisps do you think they will be to noisy lol

dreamdaisy · 13. Dec 2011, 03:48

Good luck suzygirl, I hope you have your list to hand and that they not only listen but can help. My fingers are crossed and do let us know how you get on, if you can. I wish you well. DD

julie47 · 13. Dec 2011, 04:03

Good Luck with todays appointment suzygirl

Love Juliepf x

suzygirl · 13. Dec 2011, 04:05

Thanks guys, you are the best really

I have my list and am looking forward to the goodies and Val, crisps are fine!!!!!

Will let you know later, I am determined to get somewhere, so if I get the junior gp again, watch out!!!! :shock:

bubbadog · 13. Dec 2011, 07:18

Hey Suzy, I know exactly what your going through! I'm suffering from a flare up at the moment, mine is in the back and hips. The pain is bad enough but having to take extra dose of Oromorph (15mls every 4hrs) and 10mgs more of my usual M.S.T which I normally have is 60mg x2 aday is stewing my mind up! So I totally understand when you said you couldn't finish what you where saying, I'm always doing that, or when my OH would ask me a question and I know what I want to say but can't get it out my mouth! And I'm always forgeting where I put things.
And I always feel like I'm going mad! Best one at the moment I will be reading my book and fall asleep, and then wake up wandering what happened do it with this laptop as well! I have fallen a sleep when my OH is talking to me, he gets upset when I do that!
And all this is just part of it! The pain is awful and has been keeping me up at night. So we could be flare up buddies and help each other out at the moment we can help each other get through this madness and remind each other we're not going mad and we're not alone!! You can PM (private message) me if you like and we can start from there! bubbadog/Amanda.

frogmorton · 13. Dec 2011, 08:52

Good luck for today Suzy x:-)

Love and hugs and luck

Toni xx

skezier · 13. Dec 2011, 09:50

hi Suzy,

hope you do get a good result and fingers crossed for you. hugs and hopes Cris xx

Bad flare, rheumy on Tues

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