PMR recovery

ChrisBerridge
ChrisBerridge Member Posts: 2
edited 21. Dec 2011, 07:00 in Living with Arthritis archive
Hi
I am interested in exchanging information about PMR and recovery. I've read all the standard blurb but it doesn't help.
I've had it for two years and contracted it at 54 with a very active life before, so there isn't much out there in the way of research. I'd like to hope for a full recovery but am not so sure and it's obvious that the medical profession don't know much about it.
Anyone further down the recovery path than me or can I help anyone else with my experiences?

Comments

  • tillytop
    tillytop Member Posts: 3,460
    edited 30. Nov -1, 00:00
    Hello and welcome to the forum!

    Hopefully there are others with PMR on the forum and hopefully, if so, they will see your post and reply. And even if that is not the case, hopefully you will find, as I have, that the forum is still a great source of support because, no matter what sort of arthritis, many of the difficulties are the same.

    Seems pretty quiet on the forum at the moment, but I am sure you will get some more replies soon.

    Tillyxxx
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I am sorry, I cannot help on the PMR front and, as tilly said, it's very quiet on here at the moment. I think there are some sheltering under your arthritic umbrella and I hope they spot your post but if not please feel free to talk to us - we may not have the same as you but we do understand the struggles arthritis causes. I wish you well. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    I did meet a lady recently who was improving with her PMR. She was able to catch the train from Manchester to London to visit me whereas she was in dreadful pain at the start of her diagnosis.

    There are a few people with PMR on this forum. I hope they pop along soon.
    Elizabeth
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • annie_mial
    annie_mial Member Posts: 5,614
    edited 30. Nov -1, 00:00
    Yes, I have PMR and it's sister condition GCA. If it's good, solid information you need, then google PMR/GCA UK to find our newish national Charity website and a forum dedicated to those with these conditions.

    If you also look at the PMR/GCA site for the North Eastern Support Group, that was our main site previously and there is a wealth of information on there, not all has yet been posted on the National Site.

    Do PM me for additional information if you need to.

    Annie

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