Emergency Appointment

lorica
lorica Member Posts: 187
edited 8. Jan 2012, 07:05 in Living with Arthritis archive
I have had my appointment and I feel rubbish now.

The doc confirmed that the MXT and Sulfa have stopped working, so they are going to put me on Humira the doctor did explain about it and im now scared stiff. The plan is to give me it in combo with liquid Methotrexate. I just dont know what to do I went to bed and cried I just don't know what to do, and the idea of increased chance of skin cancer, Im having a mole removed in a couple of weeks (Just incase) Im at my wits end....

Mark...

Comments

  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Mark,

    Oh that's a hit below the belt for sure but your going to be helped and I am sure a lot of folks can reassure you for the Humira and it might really help you.

    Tis nice to see you but wish it was with better news. Hang in there Mark and it will be ok. ((((( ))))) and a hope. Cris x
  • valval
    valval Member Posts: 14,911
    edited 30. Nov -1, 00:00
    mark i understand where you are coming from but to be honest you did know they were not working but like the rest of us you did not want to have to face this i just went through it with sulfa did not want to go on it did everything could think of to not have to but well i had no choice.
    it will take time to get your head around it so do not expect to get over this shock straight away we are here if needed good luck be nice to your sefl val
    val
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    I don’t take Humira myself, Lorica, but there are several on here who do. Many arthritic meds are scarey at first (Were you scared of meth?) but we are so well monitored on them the chances of anything really bad happening are not likely because all the tests enable any potentially nasty stuff to be nipped in the bud. I hope it works as well for you as it does for others.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    Mark, Humira has been the making of me after other meds had little effect(inc Sulfa and MTX). It has lowered the inflammation big time. It is definately worth trying.

    I can see you have an awful lot on your plate and it is very difficult to reassure you. But you are being well monitored and a decision has been made to try other medication and The mole is being checked out and removed to be on the safe side.

    I can only wish you well and I understand how you are feeling.
    All the best
    Elizabeth
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • lorica
    lorica Member Posts: 187
    edited 30. Nov -1, 00:00
    Thanks to you all for your comments. I'm still realy worried about Anti-TNF's, its the additional health problems it can cause that scares me, I have had Pnemonia 3 times in 38years, I dont want it again and the thought that as my doctor put it "unusual illnesses can emerge." and knowing my luck i will get everything. The doc also mentioned that my gp would not be allowed to monitor me, i would have to go to the hospital, which is a big hastle, where as i can go to my doctors for blood test and be in and out in 10 minutes.

    My head is such a mess and i just dont know what to do about it.
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Mark,

    I am so sorry you have got all this landing on you just now.... I sometimes think we just get swamped out with it all.

    Its not automatic that you will get the pneumonia.... I think if you asked they surly could do your bloods at the gp's? See if they would cus that would be so much easier for you.

    Mark i do feel for you but it might really help you and they will take good care of you as well.

    Hang in there and I hope you got a good night. A ((((( ))))), a cuppa and a hope. Cris xx
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    Oh Mark

    l am so sorry.

    Keep coming on here and talking about it....it must feel like such a shock to you, but for some the anti-tnfs can be really effective and for some - fantastic.

    I hope that you will be one of those.

    I can see the extra hassle and the worry about chest infections such as your pneumonia would make you extra anxious.

    BUT you can't go on suffering the way you are and have been can you??

    Take care

    Toni xxx
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    Yes hospital is a hassle when you are very ill, dragging yourself out in cold weather, struggling to walk through hospital etc. See if you can get transport arranged. I think you can claim travel costs and this could help with getting a taxi door-to-door. Is there a kind friend who could help you? I know we all hate to ask.

    I do have issues with reaccurring coughs and colds and breathing exacerbated by the humira. I take rests from the humira on a regular basis and the pain does not return in full force. So I balance between the two.

    I would give it a go and see how you get on as you will be well monitored. But let them know you concerns at every visit.

    All the best
    Elizabeth
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Scorpio and Marion52 are doing remarkably well on humira, so well in fact they rarely post now - that must be nice! :smile: I will have been on it for three years come July this year and so far, so good. I briefly thought about the increased cancer risk then reasoned they can cure that, but arthritis? Be extra concious of hand hygeine, despite working with children from a range of schools I rarely go down with the sniffles and if I do I stop the humira and meth until the bug has cleared.

    Just because side effects are listed does not mean they will necessarily appear. Meth and sulph did very little for me, now the 'holy' trio are doing something, not as much as I want but that is my problem, not that of the meds. They don't touch the OA that I now have, but the PsA is being very well behaved at the moment. Give it a whirl Lorica, you won't know until you try, yes? If you don't like it you can always stop but the benefits may well outweigh the fears. I certainly hope so, anyway. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    How are you doing Mark??

    Just wondering and hoping you are feeling more yourself??

    Love

    Toni xxx
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Morning Mark

    I am so very sorry that you have everything thrown at you at the moment.
    I would be anxious too starting new meds. Hopefully though the Humira will make a big difference to you and you will start to feel better soon.

    Take care, chin up :smile:
    and I hope today seems a little better than yesterday

    Love Juliepf x

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