Chronic pain syndrome

traluvie

Anyone familar with chronic pain syndrome??
Apparently i have that along with inflammatory arthritis and osteo, it's news to me, i actually found out through my CAB advisor not my rheumatologist lol..
Just wondered if anyone has it or knows much about it??Thanks

liesa

Hi Tracy
yes i have it... my Dr says he doesnt know what to say about it, one minute the results are showing inflamation in blood then not and its gone on like this for over 25 years, ive had palindromic rhuematism, poly arthritis,
now along with arthritis they say chronic pain, my knee was replaced nearly 5 years ago and its been mega painful ever since, all around the knee and down the shin, i now have pain all over that doesnt go away but managed 'just' with pain relief and many different tablets...

gets me feeling so down a lot of the time now... i dont go out anywhere and have to get family members doing a lot more for me....

oh and i only found out when my OT contacted my Dr with my permission, i needed reports from any of the healthcare people who has seen me recently, but the OT sent me a copy of the message she had from my Gp,

traluvie

Shows how blond i am lol i thought it was a something a doctor says is in your head, kind of making it up,,,, i was like what?? i not got that i am not making it up lol, then Clare looked on the web and explained it a bit more for me..
Still do not know much about it but i am sure i will learn a long the way..
xxx

dreamdaisy

Strewth! Is a doc moonlighting at the CAB? Please talk to your GP about this traluvie, I honestly don't think non-medical people should be offering diagnoses like this. DD

traluvie

dreamdaisy wrote:

Strewth! Is a doc moonlighting at the CAB? Please talk to your GP about this traluvie, I honestly don't think non-medical people should be offering diagnoses like this. DD

lol My CAB advisor had wrote to my rheumatologist to ask him to write a letter for my esa appeal, and he wrote that had OA , IA and mentioned CPS, well i was baffled as my rheumy never mentioned it to me lol it was a possible diagnosis at first due to my bloods being ok but once my bone scan and xrays have confirmed arthritis it has not been mentioned to me since??? bizarre lol..xx

Colin1

Hi tweety pie
chronic pain syndrome and chronic pain come with all types of illness like FM RA PA and many more i think lots of people suffer with it.
The only problem i have with it is it makes it harder to diagnose other problems one might have. As doctors tend to put all things down to the CPS.
Take care
Colin

frogmorton

Hi there TRacy luvie

hope you are well.

Chronic pain syndrome, gosh it's not made up....if you look it up you will see it's genuine and if l remember rightly can be connected with neurological pain.....Leisa's knee (HEy Leisa!) is a classic example and lot of other folks on here have it too. Some have been treated with meds like gabapentin and pregablin for it.

You gonna ask someone about it?

Love

Toni xxx

CJHunter

Love n Hugs Tracy.xx

traluvie

Thanks guys..
Every bit of info helps.
Will speak to my GP about it and see if she has been made aware of it..

Wonkylegs

Having recently been diagnosed with fibromyalgia and having searched the NHS choices website for info I got the impression that Chronic Fatigue syndrome is a term that is used seemingly interchangably with Fibro.

some of the info from the fibro organisations that I was sent mentioned CFS too.

and just to confuse matters further my GP tends to refer to mine as ME - apparently they are all interrellated to some degree :shock: :roll: :roll:

not much help I know :roll: :roll:

Wonky xx

CJHunter

Hi Wonky,
Your G.P is wrong to call fibro, M.E. Although they maybe apparently linked they are NOT the same at all. I am seeing a consultant that specializes in
P.A and fibro at the end of the month. Others in the hospital specialise in M.E & Chronic Pain Syndrome. They are not the same condition. Maybe your doc needs re educating.
It gets my goat when medics cant even understand the conditions. Grrrr :roll:

Hope you get a better undertsanding of your diagnosis Tracy.

skezier

Hi Tracy,

good to see you flower!

I think I have it... they tell me the neck has hurt so much for so long its become (or I have) supper sensitive to the pain... I even have to have ligacane patches at times cus clothes hurt the skin so much....

For me upping the pregabs helped it but the underlying pain is just (as you know) relentless and they have chucked some stronger tablets in now as yet another add in so the pain is real... just my skin especially has kicked off at it.

Its to do with the nerve endings and its testament to how much it hurts according to my pain doc cus it made me feel like a wimp....

I have a lot of invasive stuff done to the back and neck in the quest to keep it manageable as well and though not as good as it was, it still can't argue with the botox.....

Its unfair isn't it?!

They have never told me its chronic pain syndrome but they have said about the over sensitive thing and I think that's what it is.

It has cropped up a couple of times so might be worth doing a quick search and see if any of that helps? legs did a good definition of it once on a thread.... I only know what they tell me but it is to do with the nerves just basically dummy spitting but that doesn't mean it doesn't hurt :roll:

Hope you can get some relief but I honestly do find the ligacane patches so good, specially with the t-shirt and the base of the neck both front and back..... Hey wonder if they will help with the cutting in half i keep getting

leaving tea and a ((((( ))))) with a bucket of hopes,

Cris xx

traluvie

Cris what a great description..

Thank you, that has helped loads..

You have such a good way with words..

Hope you are taking care..xx

julie47

Hi Tracy

Just popping in to leave a hug ((((())))) and hope that your doctor is aware of the chronic pain and can give you advice and help.

Love Juliepf x

jac1566

hi. i have chronic pain syndrome.

spacey

hi I have it too. My consultant physio gave an analagy to better help me understand it. She said to think of my body as a foot baller and when a tackle happens it gets a bit diva like, takes a dive and creates a right fuss.this is how my body over responds to pain. A 'normal' body is more like a rugby player who gets tackled, falls over but get up and is straight back in the game with no fuss. I use this to explain how I feel to my family - hope it helps.

traluvie

Thank you spacey that is a good way of explaining it..xx