Who's up for Pocket duties Monday

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  • CJHunter
    CJHunter Member Posts: 1,038
    edited 30. Nov -1, 00:00
    UPDATE.....

    Thanks Cris...

    Wow what a day, it started at 4.30pm when we got up and we got home at 5.30pm :roll: OK sowas it worth it I hear you say, well in a word YES, I do believe I am finally getting somewhere.

    the consultant took a full history from the age of 12 when it started and took a timeline of when things happened,what they were, age starting , medication have been on and present. He loved the pain map, thought it was very descriptive and easy to use, Thanks Anky.

    Anyhow he concluded by saying he believes I have an inflamitory arthritis whether it be PA or orther he said the treatment was the same but to rule things out or in he wanted blood tests and xrays. He said I could have Fibro as a secondary condition, did pressre tests, told him how and when the fatigue started and the sleep probs etc, he does think it is a possibility but wants to keep an open mind and not agree to something until he is sure.

    He ordered blood tests and xrays straight away. I had 6 tubes, resulting in 16 tests, 7 xray of spine hands,wrists and feet. I have never had my wrists xray,d b4.

    He is not happy that my local hosp stopped the mtx and did not introduce something else, he was also not amused that I am on so many pain medications without a diagnosis and follow up support

    Well at least he is prepared to find out what is happening and help me.

    He wants to see me in 6 weeks and we will then discuss results and what we are going to do. He mentioned Anti TNF,s for the arthur and a treatment plan for the fibro and arthur together.
    Although he didnt want to say for sure until the tests were back he was strongly erring towards those.

    Anyhow It was an experience and a good one for a change.

    Thank you to all those supporting posts. All those for getting up so early for pocket duties and special support from Anky, Poppy and Cris today while I was at hospital.


    :D
    Clare xxeyeore-1.jpg
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Clare,

    Your welcome flower. I am glad he is taking you serously ... sometimes thats what we really need and can he influence how they treat you at local level cus its some hike there and back eh?

    Hope you can get your self comfy and ts not upset the bones too much. Hi to you OH and hugs and tea to you both. Cris xx
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Hi Clare

    good to hear your appointment went well and that you have had umpteen tests done to diagnose your condition.
    It was a very long day but will be worth it in the end.

    Will be ready for another early start in 6 weeks for when you get your results. Hopefully you will then find the right meds and your life will become so much easier.

    Take care
    love juliepf x
  • suzygirl
    suzygirl Member Posts: 2,005
    edited 30. Nov -1, 00:00
    Clare, I am so glad that you had a good appt. A second opinion can be invaluable. Lets hope the teratment plan he comes up with helps you.

    Rest up today, I bet you are shattered and overwhelmed, these appts take a lot out of you.

    x
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hi Clare
    What a brilliant appointment that was, I think it is something we all strive for but dont always get, that is all thats needed.. someone to understand and take down your history and listen, I am so glad you are getting there
    Now you try and have an easy day...x
    Love
    Barbara
  • CJHunter
    CJHunter Member Posts: 1,038
    edited 30. Nov -1, 00:00
    Hiya, well today is def a rest day. I'm so tired, its suprising how it takes it out of ya isnt it :roll:
    Am still shocked he is trying to help. Happy shock but shocked all the same :lol:

    Just got to wait for follow up on 12th march. Of course u will be first to know what happens.

    Thanks again for support, u r all so lovely.

    :smile:
    Clare xxeyeore-1.jpg
  • frogmorton
    frogmorton Member Posts: 30,137
    edited 30. Nov -1, 00:00
    Fabulous news Clare l am so very very pleased things are definitely going teh right way :D

    Well worth the early start then :wink:

    and 6 weeks to go back for results is also an excellent response!!.
    I think l like that consultant!

    Well done you :D

    Love

    and hugs

    Toni xxxx
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Wow! I totally concur with the others, it's great to know that you saw someone who listened, REALLY listened, and who is willing to try to get to the bottom of all this for you. I am so pleased to read the update CJ, what good news. I hope you have taken it easy today, and that you are feeling better in yourself about things. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • tjt6768
    tjt6768 Member Posts: 12,170
    edited 30. Nov -1, 00:00
    Hi hun. Sorry I'm only just reporting back.. I'm a useless friend, lol
    It's fantastic news having such a good appointment. Hope that continue and that the new regime helps...
    You've got me booked for next lot of pocket duties hun..
    e050.gifMe-Tony
    n035.gifRa-1996 -2013 RIP...
    k040.gif
    Cleo - 1996 to 2011. RIP
  • bertyboy
    bertyboy Member Posts: 1,860
    edited 30. Nov -1, 00:00
    Your post has but a smile on my face its good to know you have got somebody is listening to you xx
    I know i am a lady ,all life is a journey xx MAY xx
  • bubbadog
    bubbadog Member Posts: 5,544
    edited 30. Nov -1, 00:00
    Claire, that was a great appointment you should be pleased, and this consultant seems like he will not pass you over or let you down. And you must be so chuffed that he has set up the sets and in 6 weeks you should have a diagnosis for what your suffering with! You will have to let us know we will be here waiting with batted breath!! :)

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