Pocket duties if you can please
Poppyg1rl
Member Posts: 1,245
Hi All,
Apologies for my absence recently, things have been and still are grim.
I won't bore you all with what has happened, it's too depressing. But i have an important Rheumy appt next Wednesday, I've been reducing the high amount of pred I was put on by 10mg daily, so that by the time i see the consultant on Wednesday I will be off it completely and they can see me at my grotty worst.
If anyone is free I would really appreciate the support, my thanks to you all and big painfree hugs to everyone ((())) X
Apologies for my absence recently, things have been and still are grim.
I won't bore you all with what has happened, it's too depressing. But i have an important Rheumy appt next Wednesday, I've been reducing the high amount of pred I was put on by 10mg daily, so that by the time i see the consultant on Wednesday I will be off it completely and they can see me at my grotty worst.
If anyone is free I would really appreciate the support, my thanks to you all and big painfree hugs to everyone ((())) X
'grá agus solas'
'Love and Light' translated from Irish. X
'Love and Light' translated from Irish. X
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Comments
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Dear Poppy, 'grim' is not the word for it. In fact, to call what you have been going through 'grim' is the understatement of the year. There is absolutely no need to apologise for your absence.
Of course you have my full support for Wednesday.
I'm just wondering if I read that correctly though. You are reducing the steroids by 10 mgs per day :shock: Are you sure this is OK? It's a massive amount to reduce by. Especially for the final 10 mgs. Please, if your GP hasn't OKd it, wait and ask.If at first you don't succeed, then skydiving definitely isn't for you.
Steven Wright0 -
Will be there , Poppy , will bring Betsy dog and some sandwiches . Jillyb0
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Hi Poppy
I will be there for you on Wednesday. Hope it goes well and that your consultant is understanding.
Big hugs to you,
xxx0 -
Hi Poppy,
I will be in your pocket on Wednesday. I hope your appointment goes well. Good luck!
Love,0 -
will be with you poppy.Mig0
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you just know we would love to hop in your pocket and we will even behave (well almost) got flask out ready good luck valval0
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Hey Poppy ill be there careful with the Pred as they can harm you if you reduce 10mg at a time it will make you ill. ill be there Wed
ColinWHEN GOD GIVES YOU LEMONS MAKE LEMONADE0 -
Hey Poppy as always am here for ya babe, we will get u through this blip together.
Hope we can get a coach big enough to pick us up for pocket duties.
Thank you for your support Poppy, throughout this time you have been so supportive and kind THANKYOU.
All the best for WED babe.xxClare xx0 -
Hope your appointment is fruitful, Poppy.
SpeedyI have had OA since mid twenties. It affects my hips and knees. I had a THR on the left aged 30 and now have a resurface-replacement on the right - done May 2010.0 -
Poppy, am ready with a cocktail shaker of martinis, a few good gossipy mags and some snacks. Izzy is coming to give you a cuddle and make sure the consultant is helpful.
You have had it rough and I really hope it goes well, will be with you all the way.
(((hugs)))0 -
Hi Poppy
I am a bit hit and miss on here at the moment
but I will be thinking of you on wednesday
I hope your appointment goes well
Love juliepf x0 -
You can count on me Poppy....
what time do we board???
Love
Toni xx0 -
Hello Poppy
I know that you have been having a really bad time and I have been thinking of you and wondering how you are doing.
I will be there too with the others on Weds.
Love and ((()))s
Tillyxxx0 -
Me again Poppy - went on to edit my previous post but it wouldn't let me so posting again.
Just wanted to re-iterate what Sticky has said about the speed of your pred reduction because I would hate for you to give yourself other, potentially serious, problems by reducing too fast. I know that you are no stranger to steroids Poppy, but if you haven't already "ok'd" this reduction plan with your GP or consultant, please, please do so at the earliest opportunity.
Thinking of you.
Love TIllyxxx0 -
I'll be there Poppy..........best of luck x0
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Hi Poppy,
Flower you have had such a bad time of it and I so Hope the rumo will be able to help get you back on the road to feeling so much better.
See mine on wednesday as well but we all here will certainly be in your pocket my friend. Love, light and so much good vibes. Cris xxx0 -
Hi Poppy
Will be more than happy to jump in your pocket for the day,hope all goes well!
Ron x''Beer is proof that God loves us and wants us to be happy''. Benjamin Franklin (1706-1790)0 -
Sending hugs ((((())))), hope all goes well,and will be with you..xxxxTracyxx0
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Poppyg1rl has asked me to update her thread for the benefit of those of us who are concerned about the speed of the pred reduction.
She was only on 40mgs for a week. She did tell her GP she was going to come off the steroids for the rheumatology appointment on Wed.
Today is the first day she's not had any. She is tired, stiff and sore with an upset tummy but is hoping that, if the rheumatologist sees her at her worst, things will improve.
I hope so too, Poppy. I really do.If at first you don't succeed, then skydiving definitely isn't for you.
Steven Wright0 -
Thanks Sticky for the update, cos like you I was worried. I know you are familiar enough with pred to know what you are doing but that just seemed like a frighteningly large reduction.
Thinking of you Poppy and really hoping for a positive appt for you on Weds.
Love and ((()))s
Tillyxxx0 -
Thanks for update Sticky,
Am here for you Poppy, and am hoping for some positive results from reummy and sending u positive vibes in bucket loads.
Love, Light n ((((((x))))))Clare xx0 -
Hi Poppy....
sorry, but l have been thinking too.... about the reduction in your oral steroids. You probably have already discussed it with the GP/ pharmacist, but l am a teeny bit worried about any side-effects from reducing so fast.
surely the rheumatologist KNOWS how bad you have been?? :shock:
Have you said what time we are on???
I dont mind driving the coach if it helps??
Love
Toni xx0 -
frogmorton wrote:I dont mind driving the coach if it helps??
Please can that be the sort of coach which I had once in Amsterdam. The lady driver took one look at me, leapt out and said "Wait. I make the bus kneel for you." And, bless her, she did. Can I have a kneeling bus, please? (So good for the ego )
Poppy, still thinking of you. Hope the tum's behaving today.If at first you don't succeed, then skydiving definitely isn't for you.
Steven Wright0 -
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Hope all goes well.. ((((()))))xxTracyxx0
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