Rumo is actually doing some tests!

skezier

Saw the rumo yesterday and didn't hold out any hope that anything (bar the drip being reinstated) would change.....

Have been getting bad the last few years. The pa has never been controlled, the oa has had a free hand for far too long, the eyes have got permanent damage though how much I will find out tomorrow....

In all I have seen the rumo every 4 months or so fr the last 12 years.

He has always been nice and kind but not exactly pro-active!

Threw me on to palative care. I said about the temp paralyzation ages ago from both the neck and the spine..... Thought that might make him think 'oh best we look at this' but it didn't.....

When I went for the wrist splints (they took over 3 years to get) By then this cutting in half thing was endless as well as the rest so the ot she would see if I could see the back ot for a special contraption....

The rumo blocked it and said he wanted to do a complete re-view of the spine and neck....

Then the appointment with him was cancelled ......

At last I saw him yesterday......

Well initially I saw his side kick cus I thought that way i might actually get the review!

He went and got the rumo when he found a whole raft of neurological symptoms.

Being saying this for years but at last something is being mri'ed again....

Only something of course.....

I sat there with as many neuro symptoms via the neck as the the lumber and had to decide which one was more important.....

Both give temporary paralyzation. Both have the cut in half thing. Both have caused numbness and lack of sensation t say nothing of endless pins and needles and both have knocked out the reflexes but I had to choose which they will look at first...

They can't do both apparently as the scan will take longer and this has suddenly become urgent!

Well yeah and to me it has been for at least 2 years!

There is slightly less feeling in my legs than my arms, the cutting in half from the lumber hurts a little more than the neck so i chose the lumber its just as ever you get half treatments and help and its wrong....

its just wrong....

Sorry really down about all this and what ever they find I didn't expect any 'cures' but least I will know what the lumber is up to.....

Hope everyone has a good day. Cris x

Oh and the drip I think is reinstatyed

valval

hi it so not on is it why not just do both ok will take longer but at least they will know which is worse expecting you to decide well if you anything like me the pain gets so i can not tell where it from or what causeing it just total and feel so sick with it (can you tell it a bad day)
but do hope app comes through soon and will be in your pocket should look good on pic all these little heads at pocket area lol . good luck ((())) and positive vibes coming your way val

barbara12

h Cris my love
Why dont they just see us as one body instead lots of parts that different people treat...does that make sense.. :?
If my hip man would treat my back...I would be poll dancing by now.... :shock: saying that I an't had my hips done yet
Cris I am not surprised you are down...but hopefully they will come up with something...we are always here for you
Love and slurps to you and your lovely family xxx

traluvie

Hi Cris..

What a rig-me-roll :!: :!:
Sometimes it seems we are constantly fighting a neer ending battle to get ourselves heard and treated..
I really hope you get some answers and most of all some treatment to help..
Thinking of you, sending positive vibes..xx((()))xx

stickywicket

skezier wrote:

but I had to choose which they will look at first...

They can't do both apparently as the scan will take longer and this has suddenly become urgent!

I think that's the bit I'd be hanging on to with both my rubbishy hands, skezier my love. Presumably there's a much longer wait for a long scan which you'd have to have if it was both together. I had a longer wait for my knee revision than I'd have had for a simple TKR. Not much consolation to you but at least they're doing something which, in your neck of the woods, seems a step in the right direction.

Wanna join me down at the tyre place? I'm off for a complete remould.

I hope the appointment is soon and then, hopefully, they can get on with the other half.

OK, when am I back on the roof? I've got me thermals, sleeping bag and binoculars. Just need a hoist up. Oh and they were flogging 2 boxes of copes for the price of one at the supermarket so I wrapped yours in these (((([])))). I'm told they are slurp-proof but, hey, these guys'll say anything to get a sale.

julie47

Hi Cris

Good to hear you have had a rhummy appointment and that at last they are now doing some investigations for you . Sorry though that you could only choose one part of your body because of scans taking too long.
Hopefully your appointment will come through quickly and the results too, then they can start to do their job and help you.

Take care
Love & hugs
Juliepf xx (((((((((())))))))))

dreamdaisy

No words, just these. ((((((())))))) and three love dollops. DD

salamander

Hi Cris, seems as if there is good and bad in your appointment. Stay with the good and hope the legs get sorted out in due course. Makes sense to do the lumber thing first.
Will pm you later on but just wanted to send my love.

CJHunter

Hey Cris, well its far better than what you expected hun so i am gonna try n remain positive for ya babe.

As with others sending positive vibes and a gentle ((((x))))
Here/if ya need babe.xx

mig

thinking of you (((()))) Mig

suzygirl

(((Cris))), at last something is being done for you. Lets hope the scan will come through quickly and that they will then follow on with the rest.

skezier

Thank you all so much... am running scared today for sure...

Will get back to you I promise just need to get some composure. Love and so many thanks Cris xxx

dachshund

Hi Cris.
i feel so sorry for you all you are put through it seems
not much comes out of it all.
i wonder what they would be like if they had all the problems you have.
i'm sorry i have not done capitals.
good luck
((((((((cris))))))))
joan xx

stickywicket

Not sure I could manage composure in your situation, skezier, but I can manage a few of these to tide you over. (((())))

ironic

My dear Cris, I am so sorry that you have yet again come up against the powers that be. It is an outrage that the health authority has still not got its act together, I had hoped would have started to improve by now.

Don’t give up on the OT department, do go ahead with the home visit and hopefully they will continue the pressure on the rheumy dept. I am so upset for you Cris, no wonder you are feeling so let down.

Hang on in there flower, all our thoughts are with you.
I hope the appointment today went well and there was more pro active movement in that department at least.

Hugs as always,

Lv, I x

frogmorton

Cris

l am so releived that finally someone will know what is really going on.

FINALLY!!!

How many times have you asked for help eh :roll:

Ah well whatever happens Cris we will be here for you 100%

Love and a million hugs

Toni xxx

CJHunter

Hey Cris, try not to worry hun, love n hugs.

xx

skezier

Thank you all so much!!!!

I was bad yesterday it all got to me but am 100% shattered so will get back to you tomorrow properly but am nearly through the concert over the sandpit cus I cope better with the head jammed in there

You all take care and a million hugs to you for your kindness and for seeing I am not inadvisable;... I hate this constant talking about me as if I am not thee when its not really good news....

Must go fight for pillow space as I am moving towards teasey and falling asleep in the arm chair.. dome that once tonight and must not again....

Love and honestly thanks Cris xxx

Oh before I forget the eyes are not quite down to low vision so that's something eh?!

frogmorton

Hey Cris

Hope you slept well and got some pillow space....they are cheeky sneaking in first

You are certainly not invisible lass never will be to us lot.

Love

Toni xx

PS the eyes are picking up a bit

Love

Toni xx

pinkbritishstars

Hi Cris

Glad your eyes are not down to low vision.

Did you get some pillow space and sleep?

We are here to support you Cris.

Take Care

Pink xxx

stickywicket

Just a top up. (((( ))))

julie47

((((()))) top up from me too

love julie xx

barbara12

Cris...here are some more hugs and buckets of healing tonic just for you (((()))) xxxx

mummyb

Hi Cris, just popped in to see how folks are, sorry to hear things been bad for you. Glad they're finally doing the tests that might give some answers. Sending you lots of love and hugs and a bucketful of hopes and prayers ((((( ))))) You're often in my thoughts Cris and I remember how much you supported me when I first found my way on to this forum. I'll always be grateful for that. So more healing hugs for you my love and hope tomorrow is a sunnier and easier day for you. Love Brenda xxx

frogmorton

Fabulous to see you there Brenda l hope you are doing ok?

Love

Toni xx

dachshund

Hi Cris.
please take care ((((((((cris)))))))) we will be there for you.
try and rest
joan xx