what help is available out there?

L1985

Hi everyone

Just been diagnosed with bechets but i have been suffering for a long time before been diagnosed. Things have got alot worse since jan where i have zero energy, memory and concentration is very difficult and joint pain is unbarable attimes. If someone offered to chop my legs off id prob let them when its at it worst.

Anyway wondered what help there is out there. I have two small children and im struggling with the school run i have to walk 6miles a day in total. I rang the local council to see if icould move my child to a slightly nearer school. ....the one i wanted in the first place but its full. Also they wont help with a taxi as i wouldnt send my child to the nearest school which is in the middle of a very rough council estate and refuse to send her there. Feel like im been punished because i want the best for my child!

Also i was trying to work self empolyed which i have been unable to do for many months. Kept thinking maybe in x amunt of time ill be able to do it but the reality is i cant. Do i stand a chance with claimingbenefits. I know its getting arder to claim now. My partner works full time so im guessing we wont qualify? Also i rarely go to my gp with this as they cant seem to give me anything to help. I suffer in slince at home so they r unaware of how painful it is etcwould this go against me? I could quiet easily see the doctor everyday with a different symptom but in my eyes whats the point when they dont listen or cant help all u get is wait to see the rhuemy.

The rhemy did say at this last visit they could see i wasnt well.....could see it in my face there words.....thought i havent been well for nearly two years but thanks for noticing.

Anyway any advice woukdbe great feel like im ina dark hole at the moment and falling deeper and deeper away from the way out

X x x

dreamdaisy

I cannot help with any of your queries but the CAB could, you could ring your local Social Services or check on-line, there must be information there, and perhaps ring the Helpline here too. They are very good at listening to those in distress and could possibly point you in the right direction for advice. DD

jenzie06

You could always try the Disabled Parents Network (they are on internet or you can ring up, they are very lovely). They might have some suggestions?

Keep your chin up chuck.