Sat waiting to go into rheumy appointment

tjt6768

morning folks.
Just say waiting for my rheumy appointment. Dunno what to expect but I'm in a hell of a lot of pain with the knees and hands today..
Will let you know.

barbara12

Oh Tony
Heres some more healing hugs to be going on with, I do hope its a good appointment and they can offer some help ..
you take care xx (((())))

ritwren

Tony I hope it goes well for you.
Sending good vibes. Rita.

CJHunter

Hers a ((((())))) but not tooo girly ok
Hope all goes well.xx

valval

tony fingers crossed they do something to help val

suzygirl

Hope your appt goes well for you

emsjane

Good Luck Tony, i hope it goes well and you get what you want out of it!

tjt6768

thank you all. X
Dr Martin said that he thinks there is some possible psoriasis involved but the sulfa is helping that, same with the guts. Is worked over the loss of appetite, which I know is caused by the sulfa but he wants me to stop taking it for two weeks, se if the appetite comes back. If our stores we will know for sure that it's the sulfa and will consider what to try next. Methotrexate was mentioned but we shall see. Back in four months. Told him how much pain I'd been in and the many flare ups, said he's sorry but they happen..
So, gave me another kellodrone? Injection, hoping that might help a bit..

Thanks everyone

resusjan

Sorry I'm late Tony,

Internet has been non existent today GGGrrrrrrrr!!

Glad appointment went relatively well and I hope the injection kicks in soon and you start to feel a little better

Jan

bubbadog

Glad your appt was pretty good, hope the injection helped alittle, hope your starting to feel alittle more your crazy, sweet, caring, funny self! And Ra has been telling you about more of his crazy, enjoyable missions he has been sent on! Hope Ra has been pulling his weight over the weekend giving J & yourself chance to rest. Hope you feel better soon! Take care. Amanda

DebraKelly

Would highly recommend Meth, but ask for the injection rather than the tablets, its much more effective.

How long did the steriod injection last for you?

I think we got ours done at the same time?

tjt6768

Thanks girls...
I've kinda overdone things since my appointment, went to skeggy with our friends, they did the driving as I was in too much pain, but doped myself up on diazapam so I could help with some of the things that needed doing at the caravan. So I'm really suffering today but hoping it eases.
Debra, I had a few weeks of feeling slight relief from the last injection hun, how about you? Hope yours helped..

Today is my first day of stopping the Sulfasalazine for two weeks rheumy wants me to stop taking it to see if it really is that that's stopping the appetite, I'm quite sure it is. I'm expecting a pretty rubbish time of things though as I'm also cutting the fentanyl patches down at the minute at the behest of the pain clinic... Don't think it'll be plain sailing that's for sure :shock:
So, I reckon if I go back to the rheumy and tell them my appetite improved completely for the two weeks without sulfa then it might be a case of going into the meth. I will enquire about the injections if so.
I'm a tad concerned at this all happening at the same time, my pain clinic bloke didn't mention replacing the fentanyl with anything so I'll be relying on paracetamol and diclofenac and nothing else, which have never been that strong for me. I can see his point in a way, he said that, at the dose of fentanyl I was on (75mcg/hr) they should definitely take the pain away and if they're not, then they're not working at all.. So, in down to 50mcg/hr and will chop it down to 25 later.. Just hope this treatment he wants to try comes along soon..
I may need extra hugs, kind thoughts and general help from you lot for a while, lol.
My GP wasn't impressed with the pain lot leaving me without either but I've tried sooooooo many different painkillers in the past I don't know where to go next.

Oh well.
Sorry for the long winded post. Needed to get that off mi chest.

Oh, also, I've started with new pains.. The balls of my feet and a spot just under my left shoulder, what joy. :roll:
Thanks for reading

dreamdaisy

Oh dear, poor you. No sulph and only feeble pain relief? I'm pleased I'm not you! If you do go onto meth I think it will be the tablet version first as that is the usual procedure as they can build the dose in slighter steps. Poor tjt, I fear you are indeed in for a rough time. [[]] DD

PS [] represent bloke-type hugs.

tjt6768

You're a love.
Yeah, not really looking forward to what's to come. I recon the stomach will kick off and the skin will too.. The sulfa cleared them up straight away. He didn't give a true psoriasis diagnosis as such but said it was probably involved along with some slight colitis.
As long as I know my pals are here.. I'll get by lol.
Thanks hun xxxx

dreamdaisy wrote:

Oh dear, poor you. No sulph and only feeble pain relief? I'm pleased I'm not you! If you do go onto meth I think it will be the tablet version first as that is the usual procedure as they can build the dose in slighter steps. Poor tjt, I fear you are indeed in for a rough time. [[]] DD

PS [] represent bloke-type hugs.

DebraKelly

I am still doing okay after my steriod injection. Get the odd niggle now and then but nothing major.

I'm hoping that he will give me another injection soon. I think you can only get them once every 4 months.

I think the Meth injections have made a big difference too.

Just need to get rid of the psoasis and tiredness.

tjt6768

The tiredness eh? Boy am I aware of that one, pain drain I call it.. Not found anything that helps that I'm afraid. I just sleep when I know I have to..
I had some (what they think) was psoriasis but the sulfa cleared that up within days. And had extreme stomach trouble that it also cleared up, which is why I'm dubious about chandon to Meth. I've no knowledge of it and don't know if it has the tripple whammy.qualities of sulfa, helping joints, stomach and skin. I adored the way the sulfa helped my stomach, I'd suffered for many years with the problems and it helped sooooooo much.. I've got them problems to look forward to again for the two weeks without the sulfa :roll:
Anyway hun, best wishes with things. Did you try the sulfa first?
X

DebraKelly wrote:

I am still doing okay after my steriod injection. Get the odd niggle now and then but nothing major.

I'm hoping that he will give me another injection soon. I think you can only get them once every 4 months.

I think the Meth injections have made a big difference too.

Just need to get rid of the psoasis and tiredness.

traluvie

Thinking of you Tony, hope things dont get too bad and the injection helps..

tjt6768

Bless ya mi dear. How's you these days? I'm useless at catching up with blogs etc. lol

traluvie wrote:

Thinking of you Tony, hope things dont get too bad and the injection helps..

theresa4

Hi Tony

Sorry been awol for a while having a bad time of things.

Methotrexate has never helped my stomach probs as you have but then neither did sulfa for me. The steroid injections work wonders for stomach and RA just dont last lnog enoough.

Hope the injection you had kicks in and gives you some reilef for abit.

Much Love and hugs (((())))like em or not

Theresa

tjt6768

Oh go on then, I'll enjoy the hugs lol.
Thanks mi dear..
I'm not looking forward to these two weeks without the sulfa.. My stomach certainly isn't :?

mig

Hi Tony,thinking of you with fingers crossed (well just about crossed)best i can do .(((()))) for ra you can have one if you are desperate.Mig

tjt6768

Thanks Mig. I'll pinch one this morning if that's ok? I'm not so good at the minute :roll:
X

mig wrote:

Hi Tony,thinking of you with fingers crossed (well just about crossed)best i can do .(((()))) for ra you can have one if you are desperate.Mig

traluvie

tjt6768 wrote:

Bless ya mi dear. How's you these days? I'm useless at catching up with blogs etc. lol

traluvie wrote:

Thinking of you Tony, hope things dont get too bad and the injection helps..

Lol..

I am lurking in the background of Ac lol..
I am not gonna say i ok, cause i not lol, am still yo yoi-ng as most of us are. waiting to see new rheumy, so hoping i may start some different treatment as hydroxy is not working as well as it used to..
Esa doing my nut in same as you, what a joke that is..
Other than that i am fine and dandy thanks..x

ritwren

Hi Tony, I just wanted to add good vibes for all you're going through. I hope the stomach probs don't kick in and that reducing the patches is'nt as bad as you think it might be.
I'm guessint that if you're taking voltarol regularly then you're also getting something to protect your stomach? If not then for sure I'd ask the GP to give you something. Also if the voltarol is'nt working there are lots of newer anti inflammatories which they could prescribe for you.
I hope you get things under control soon and that today is a better day for you.
Methotrexate injections can only come after you've gotten to the required dose gradually with tablets but definately caused less nausea and sickness for me. Unfortunately I'm off them now and having steroid injections every month until the leflunamide kicks in.
Rita.

tjt6768

thanks hun.
I'm taking lanzoprazole. Been on them quite a while now, plus I'm on peppermint oil tablets and alverine, both three times a day lol.

Poppyg1rl

Hi Tony,
I'm so sorry things have been so rough for you, things will get better I'm sure though I do know it's hard to feel that when you're in so much pain and discomfort :? At least you know we are all supporting you and sending you healing vibes. X