seronegative arthritis

maria09

Hi
One of my many diagnosis is now seronegative arthritis Had the £50 special blood test as my rheumy says but results of that are negative!
Although my crp is raised :!: So not really sure what Ive got to be honest.
Anyone here the same as me :?:
Maria

MrDJ

Hi Maria
was the blood test the HLAB27
if it is that one mine came back positive. as soon as they saw that thats when they said i had ankleosing spondylitus

ive got the full lot of them, oa,ra,anky spon and now PA
also uviitus,eyeritus and a lupus emzine but not fully blown lupus.
seronegative arthritis has been mentioned in the past but cos ive lost track of what ive got i just sweep that one under the carpet.

if my consultant had to sit down and explain all the conditions i have got i dont think a day would be long enough.

both my crp and esr are slowly going back up and are now in the 40-50 region. still much better than before i started on anti tnf infliximab though. esr was 97 and crp 122 before that.

good luck and keep us posted.
it can take ages to get a full diagnosis

dreamdaisy

I have psoriatic arthritis, my RF factor was always negative (I believe there is an RA which is also the same) but my ESR and CRP were always mahoosive, up in the 160s and 170s. Your raised CRP figure is indicative of an inflammatory arthritis, but pinning down which one can take some time. DD

jaja

Hi maria....i was diagnosed as sero neg..26yrs ago and still come up on testing sero neg. now...but..have the diagnosis of RA....so dont think it proves anything on its own...think the rhuemys take lots of other things into consideration...if they are any good..
JAJA

annalou

Hi I too have psoriatic arthritis and my blood results continue to be normal although I don't know exact measures, just normal! I was diagnosed this week by the fact that synovitis (inflammation) was showing up in both my feet and some fingers on ultrasound scans, also repetitive achilles tendonitis and episcleritis.

maria09

Thank you all for your replies
I am lucky I have a really good Rheumy Guy & he never gives up
Always trying to find out whats going on with me
He says Im special I say I would rather be well than special!
He is so easy to get on with & I always leave feeling positive
But at min its really getting me down damn pain ggggrrrrrrr
Keep well
Maria

Littlestar

Hi everyone

Could you please explain what zero negative arthritis is & how is it diagnosed?
Ty littlestar

magenta

Hi,

I was told I had sero-neg arthritis, 12yrs ago. The rheumy that diagnosed me was lovely and explained that even though I had a negative RF, I could still have arthritis. Alas, I never seen her again and eventually got discharged from the hospital. Any other rheumy I've seen (and that's alot!) have never mentioned this and don't believe I have arthritis at all. I have since had a positive RF and I'm waiting to see if rheumy (not the original one) will see me again.

I get very angry sometimes when I think that if only one rheumy would believe in this sero-neg arthritis, then maybe I would have had some proper treatment over the past 12yrs.
I'm not lucky with rheumys, I think they have me down as a time-waster.

Hope you get all the help you can, it sounds like you have a very understanding rheumy,

Take care,

Magenta x

maria09

Littlestar wrote:

Hi everyone

Could you please explain what zero negative arthritis is & how is it diagnosed?
Ty littlestar

Hi Littlestar, There is a very good fact sheet on here that explains exactly what it is. Ive just downloaded it to show my boss shes as caring as postage stamp!
Hope it helps

maria09

MrDJ wrote:

Hi Maria
was the blood test the HLAB27
if it is that one mine came back positive. as soon as they saw that thats when they said i had ankleosing spondylitus

ive got the full lot of them, oa,ra,anky spon and now PA
also uviitus,eyeritus and a lupus emzine but not fully blown lupus.
seronegative arthritis has been mentioned in the past but cos ive lost track of what ive got i just sweep that one under the carpet.

if my consultant had to sit down and explain all the conditions i have got i dont think a day would be long enough.

both my crp and esr are slowly going back up and are now in the 40-50 region. still much better than before i started on anti tnf infliximab though. esr was 97 and crp 122 before that.

good luck and keep us posted.
it can take ages to get a full diagnosis

Yes thats the one mine was negative! So whats next on my list?

MrDJ

Yes thats the one mine was negative! So whats next on my list?

that blood test is specifically (as far as i know) to diagnose ankleosing spondylitis which affects the spine. if yours is negative then thats a good thing.
i have no idea what they might try next but welcome to the guinea pig club. been there and got the tee shirt.
it can take ages to find out what the cause is as theres quite a few different sorts of arthritis and also other conditions that can cause the same sort of pain.
good luck and i hope they help you out soon.
Jim

Aimer66

Another sero-negative here.

I was told by by Rhumey that I have sero-neg inflammatory arthritis with features of other types of arthritis (PsA).

My CRP and ESR are always through the roof when going through a flair (symptoms posted elsewhere).

I have been under him for 2 years now and this is as close as I have got to a diagnoses.

Keep a diary and note every little symptom you have as it will make a diagnoses easier.

All the best,

Mark.

maria09

Thanks guys
Next appointment with consultant is in May
Good idea on keeping a diary
Maria

Littlestar

Hi everyone I hope this lovely weather is doing you all the worth of good!
I have been diagnosed with sero negative inflammatory arthritis today
I was wondering does anyone on here receive DLA for it?

Ty littlestar

dreamdaisy

A number of us receive DLA for all sorts of reasons, Littlestar. You won't know if you are entitled until you apply. I receive the mobility part as I am reliant on crutches and now a rollator to get about, but not the care part as I can still (just about) take care of myself. DD

Littlestar

Thanks DD
My OT has given me a few things to help me at home.
I will fill in the forms & see what happens.
Littlestar