just diagnosed

purpleunicorn

Hello everyone
I've just got back from the GP for the umpteenth time. This time he seemed to have more time and listened to me, and looked at my pain map etc. He has diagnosed me with fibromyalgia by process of elimination. All bloods were normal, and there were lots of them, x rays clear, the fact that I hurt from head to toe and suffer debilitating fatigue all led him to fibro.

I have to go back in a week, in the meantime I need to lower my dose of citalopram and then discuss whether a referral is necessary, which I'm not sure it is because I believe fibro care is always in the hands of a GP anyway?

Hope you're all doing well, and any experiences of fibro greatly received.

X

valval

hi can not help but bumping this back to top val

stickywicket

Sorry. Me neither. Never done fibro.

magenta

Hiya,

I've got fibro. Got my official diagnosis about 1yr ago although I think the drs had an idea a few years back. I was prescribed pregabalin which has helped. I'm still at the increasing dose stage and at the moment I'm on 75mg three times a day. I think I can go up to 100mg three times a day? Other more experienced folk may know if you can go higher.

I'm constantly fatigued, I never seem to get a refreshing sleep which is a fibro symptom. Plus I get fibro fog-quite badly and can be a bit embarassing!
There are alot of people on here with fibro so I'm sure you'll get lots of replies.
I'm up for any questions you may have-you can PM me if you like?

Take care,

Magenta x

waddle

hello purpleunicorn, im a fibromite (amongst other things) also so ask away, pm me if you prefere. xx

Ldyalb

Also a Fibromite, got diagnosed by a Rheumy in October 2010. I only saw a Rheumy because my GP thought I had Lupus. This was in London. I saw that Rheumy twice again and then a 2nd Rheumy last November. As I'd moved away from London by then she discharged me from their care after 4 appointments.

I was very suprised to get so much access to a Rheumy for Fibro and Hypermobility - I suspect this was partially due to being in London, and partially because I was 22 when I was diagnosed. I think the perhaps thought they could help me more due to my age - the Rheumy said Fibro prognosis is usually a bit better if you get it young.

For Fibro I'm taking:

Tramacet (mix of Tramadol and Paracetamol)
Amitriptyline 50mg a night to aid sleep
Fluoxetine 20mg - this is an anti-D which according to my last Rheumy is good for Fibro when teamed with Amitriptyline.

I used to take Diclofenac and Dihydrocodeine for the pain, before trying Tramacet which I find better. It doesn't need to be taken with food which means when I don't have to force myself to eat just to take meds.

I post on a fibro specific forum as well which is useful - I find the more you know about it the easier it is to learn to live with it. I find massage really helps, I have a shiatsu massage cushion for my back which is awesome. Hot baths and microwaveable wheat bags really help as well.

phoenixoxo

Hi purple,

So, you got your diagnosis at last! Unfortunately, as a non-fibro sufferer I can't add anything to previous posts, but I just wanted to say well done for getting the doc to take you seriously and I hope you'll be referred soon.

Best wishes,
Phoebe

bubbadog

Hi Purple, I also have Fibro had it along time now, on many of the same pain meds as what I have for my Osteo. I also suffer with bad circulation, swelling throughout my body, no feeling in legs, hot flushes on certain joints now and again and pain on different joints. It's a weird illness and it's best to read up papers on the internet, they are mostly written by Americans to it is useful.