Cyclophosphamide
heatherbignold
Member Posts: 8
Hi,
My husband was diagnosed with Adult Onset Still's Disease several years ago, but as his condition has worsened, we have struggled to find a treatment that really manages the symptoms.
He has now tried (unsuccessfully) Embrel, Rituximab and Tocilizumab. He is still injecting methatrexate weekly and is now on 20mg of prednisolone daily. His consultant has now suggested cyclophosphamide and we just wondered if anyone else had tried it and how they had got on.
thanks,
Heather
My husband was diagnosed with Adult Onset Still's Disease several years ago, but as his condition has worsened, we have struggled to find a treatment that really manages the symptoms.
He has now tried (unsuccessfully) Embrel, Rituximab and Tocilizumab. He is still injecting methatrexate weekly and is now on 20mg of prednisolone daily. His consultant has now suggested cyclophosphamide and we just wondered if anyone else had tried it and how they had got on.
thanks,
Heather
0
Comments
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Hi Heather,
I can't help but just wanted to bring it back to the top of the page so that someone will see it an be able to help. Cris x0 -
I can't help either but also bumping it back up.
It might be worth giving the Helplines a ring - or a PM - after the holidays are over, Heather. I hope you can get some info.If at first you don't succeed, then skydiving definitely isn't for you.
Steven Wright0 -
Hi Heather
Just a thought, but it may be a good idea too, if you copy your posting onto the AOSD thread:
http://www.arthritiscare.org.uk/forums/post425756.html?hilit=AOSD#p425756
Hopefully someone who has already posted on there may see it and be able to help.
Elna xThe happiest people don't have the best of everything. They just make the best of everything.
If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.0
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