Cyclophosphamide

heatherbignold
heatherbignold Member Posts: 8
edited 8. Apr 2012, 09:30 in Living with Arthritis archive
Hi,

My husband was diagnosed with Adult Onset Still's Disease several years ago, but as his condition has worsened, we have struggled to find a treatment that really manages the symptoms.

He has now tried (unsuccessfully) Embrel, Rituximab and Tocilizumab. He is still injecting methatrexate weekly and is now on 20mg of prednisolone daily. His consultant has now suggested cyclophosphamide and we just wondered if anyone else had tried it and how they had got on.

thanks,
Heather

Comments

  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Heather,

    I can't help but just wanted to bring it back to the top of the page so that someone will see it an be able to help. Cris x
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    I can't help either but also bumping it back up.

    It might be worth giving the Helplines a ring - or a PM - after the holidays are over, Heather. I hope you can get some info.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Hi Heather

    Just a thought, but it may be a good idea too, if you copy your posting onto the AOSD thread:

    http://www.arthritiscare.org.uk/forums/post425756.html?hilit=AOSD#p425756

    Hopefully someone who has already posted on there may see it and be able to help.

    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.

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