Leflunomide

Dancing Girl
Dancing Girl Member Posts: 25
edited 3. May 2012, 18:35 in Living with Arthritis archive
Hi

Having coped and finally had enough of Methotrexate side effects for 18 months, I now have a Leflunomide prescription.

Just wondering if anyone has taken this and had good results ?

Thanks xx

Comments

  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I tried lef and got nowhere, but I do remember someone posting on here last year extolling its virtues and stating that they had their life back - it's disappointing tho understandable that they don't post too often. I certainly hope that it works that way for you. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • Rosycheeks
    Rosycheeks Member Posts: 84
    edited 30. Nov -1, 00:00
    Hi :)

    I have been taling Leflunomide for about 8 months now. Very glad to say no side effects other than a rise in blood pressure which I just got another pill for :lol: and about a 30% improvement in the arthritis :D

    Hope you get a good result from them

    xx
  • 7worlds
    7worlds Member Posts: 302
    edited 30. Nov -1, 00:00
    Hi, Ihave been on lefluminide for six months. I have found that it has helped but i have suffered quite a lot of weight loss {14lb in six months and still losing} I too tried metx but had terrible mouth ulcers all the time. Am due to see the rhumy soon about the weight thing so it could be drug no 3 soon. However, we are all different so it could be great for you.We dont know until we try do we? And try we do...
  • Wonkylegs
    Wonkylegs Member Posts: 3,504
    edited 30. Nov -1, 00:00
    Hi dancing Girl.

    I took leflunomide very successfully for nearly 3 years.

    Apart from the first few weeks when I had some stomach upset (rheumy nurse said that is very common but usually gets better over time apparently) I had no problems, and the drug worked very well in combination with the MTX injections.

    However, for me it wasn't to be, as I developed a very itchy rash which was eventually put down to the leflunomide. I was gutted, as it did do the job arthur wise.

    however, I wouldn't have missed those 3 years for anything! and even now there are days when I wonder if the rash wouldn't be preferable to some of the problems I have with some current meds :wink:

    As with most of our meds, the only way to know how each one of us will react is to try it ourselves.

    good luck!!
    wonky xx

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