BILATERAL THR ( HIP REPLACEMENT) / ANKYLOSING SPONDYLITIS

rafikgaffar

Please refer to my other posts under topic
http://www.arthritiscare.org.uk/forums/living-with-arthritis-forum-f8/ankylosing-spondylities-anti-tnf-humira-t21991.html

MALE AGED 50
Having totally given up on my debilitatingly painful life as a result of Ankylosing Spondylitis (from teens) and having difficulty sitting and lying on my back with extreme buttock pain. In addition due to my inactivity/immmobility/ steroid injections, I have had severe bloatedness with great unease and discomfort.

my 22 y/o daughter has suffered from a hip problem since very young and after suffering a femoral tear was diagnosed with "Femral Acetabular Impingement" or the rubbing of both bones due to impingement with worn cartillage dissipated totally by the impingement and awaits surgery. Both my wife and daughter were adamant that my hips needed t be looked at despite my rheumatologist allocatating the pain due to severe inflammation. I requested my GP to refer me to Guys Hospital London since my daughter was referred there too.

The Ortho. Surgeon, Mr Zameer Shah arranged for X Rays of both hips and within an hour confirmed my family's fears and suggested total replacement and a CAT scan. A couple of weeks later, the CAT scans revealed that the left hip was worse and should be tackled first. I expect surgery around early July. I am preparing myself by walkind round the block with a crutch and trying to cut down on "bad" food as much as I can

I now have "hope" and am realistic that some quality of my life may return whilst realising that the A.S will still continue causing havoc in other parts of my body. I am feeling tenattive since my physical strength is very poor. Almost every friend and acquaintance I discuss the matter with knows someone who has had hip surgery and that success rates are quite high and that the procedure is fairly routine fr surgeons.

I would very much like to hear from others who have had similar experiences, in particular, A.S./ Osteo-Arthritis sufferers. In addition, I would request feedback of having hip surgery at Guy's Hospital or by Mr Zameer Shah (Surgeon)

Those of you who have a similar problem are advised to nag your GP for a referral and not to rely on the rheumatologists ! I may have had my problem resolved 5 yrs ago had I managed my illness but the illness and severe depression did hinder the process. Do remember that no one knows your body like you do !

My good wishes to all other sufferers and that God give you all the strength to cope !

rafikgaffar

Please also refer to my post...see link

http://www.arthritiscare.org.uk/forums/living-with-arthritis-forum-f8/ankylosing-spondylitis-buttock-pain-anyone-else-kingston-t21992.html

dreamdaisy

Hello again, it's lovely to hear from you. I am so pleased that you are going to have surgery and you are absolutely oin the right path in trying to get yourself as 'fit' as possible for that event - the stronger your muscles around the joint the better chance you have for a smoother recovery. Surgery is never to be undertaken lightly, and it can be a long road from operation to full recovery, but it CAN make a HUGE difference to the quality of life. I know it won't sort the AS but if it begins to sort out the rest than that surely has to be a good thing. I wish you the very best, rafikgaffar. DD

diamond

I am pleased to see that you are now being offered surgery,hopefully this will help to ease some of your pain.Kind Regards.