bubble has burst

peridotlouise
peridotlouise Member Posts: 81
edited 2. Jun 2012, 13:04 in Living with Arthritis archive
i havent been on this board for ages, hope everyone is well...
i thought i was doing really well, went on holiday. it felt for a while that i had nothing and not RA. even tried to kid myself i was misdiagnosed. i didnt take my meds (sulfa and hydroxy) for 2 days as i forgot.
the last few days i have been brought back down to reality....im having an awful flare, nodule on my hand kills and has got bigger, my whole body is in pain, my hands and wrists are on fire it feels. it hurts to even walk and i never really felt that before. just everything hurts and im so tired, unbelievably tired. taken all the painkillers i can, and it still feels the same. :(
cant take time off work.
is there anything i can do?

Comments

  • valval
    valval Member Posts: 14,911
    edited 30. Nov -0001, 00:00
    hi rest when not at work, your body need chance to recover a bit i hope you have weekend off. warm bath might help but make sure you are taking meds can you get intouch with rhummy might be able to give something to help get you through this (steroind injection etc ) val
    val
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -0001, 00:00
    If not taking the meds caused the flare then, hopefully, taking them will gradually reduce it. I fully understand the 'feeling OK, forget about meds' thing but we have to bear in mind that the OK feeling is probably a direct result of the meds. It can be very hard, in the early years, to keep reminding oneself that, no matter how good one feels, the disease is still there.

    If you feel you'll need more paindullers over the Bank Holiday then get it organised now while you can.

    I hope things will ease up for you soon.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -0001, 00:00
    Bubbles are fragile things as you are finding out. It must be easy to forget to take meds when one is feeling better but it is essential that the routine is maintained as they are important in quelling the disease activity. All you can do now is rest as much as possible - hopefully you have four days of no work on the horizon so make sure you kick back and loll around. Your body needs to rest, keep up with the meds and dullers and I hope that things soon improve. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • pinkbritishstars
    pinkbritishstars Member Posts: 731
    edited 30. Nov -0001, 00:00
    Hi Louise

    REST REST REST!!!!! and maybe see your GP.

    Sending you massive hugs gentle ones of course.

    xxxxxx
  • dippydoodah
    dippydoodah Member Posts: 350
    edited 30. Nov -0001, 00:00
    having read the previous posts, i totally agree. hopefully you can get some rest when you are not in work and that the flare dulls down a bit once you are back on your meds.
    i am a terrible person for not remembering my painkillers when im feeling ok, then i soon remember why i was feeling ok because of the meds! im only on paracetamol at the moment but i must get into the routine of taking them when due when i start the new meds.

    i hope you manage to get some relief over the weekend and the pains ease a little xx
  • tillytop
    tillytop Member Posts: 3,460
    edited 30. Nov -0001, 00:00
    Hello Louise.

    I am so sorry things are so difficult for you at the moment.

    Hopefully you can rest up over the long weekend if you are not working. That is, in my experience, about the only thing you can do when a proper flare strikes. If things still aren't any better by next week Louise, my suggestion would be to call the rheumatology dept for advice.

    Thinking of you.

    Tillyxxx
  • Heather65
    Heather65 Member Posts: 262
    edited 30. Nov -0001, 00:00
    Hi sounds like your having a hard time :( try and get plenty of rest over the weekend and hopefully you will start to feel better
    I find that if i miss just one lot of tablets i suffer so eveen though it can be apain at times i make sure i take them ive got extra ones to cover the bank holiday to nothing worse than running out :!:
  • tjt6768
    tjt6768 Member Posts: 12,170
    edited 30. Nov -0001, 00:00
    oh dear hun.
    I really hope things ease soon for you. It's awful when you've felt good and it just kicks you in the bahoogies like that.. Damn arthur :x
    I wish you all the best mi dear. It's nice to see you again but I'm sorry you've had to return like this.
    Yorkshire Blokey hugs (just gentle ones though) heading your way before I turn in for the night..
    :D
    e050.gifMe-Tony
    n035.gifRa-1996 -2013 RIP...
    k040.gif
    Cleo - 1996 to 2011. RIP
  • frogmorton
    frogmorton Member Posts: 30,227
    edited 30. Nov -0001, 00:00
    Oh Louise

    Denial that's waht you were in and reality is back grrrr!!!

    My suggestion is get back on your meds and hopefully in time things will get back under control for you.

    If not then you have to try to get hold of your rheumatology team who may be able to arrange a depot steroid jab to help out.

    I am so sorry Louise.

    Love and hugs

    Toni xxx
  • peridotlouise
    peridotlouise Member Posts: 81
    edited 30. Nov -0001, 00:00
    hey, thanks for all your lovely replies...cancelled all my plans this wkend and just going cinema tonight instead.
    feel slightly better than yesterday but still in pain. making sure i take all my meds and dosing up on painkillers...
    its so scary, think my rheumy is going to want to increase my meds or add mtx...
    xx
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -0001, 00:00
    Hi Louise
    I suppose that says how good your meds are working, it does make it dificult being a bank holiday weekend, but when you can I would see if your GP could give you a steroid injection to get you over the worse, I do hope things improve very soon.
    You take care xx
    Love
    Barbara

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