Oromorph dose question

tillytop

Hello Knowledgeable peeps

I am taking Oromorph for restless legs and it is working brilliantly for that .

But although it is indicated for severe pain and (thankfully) I wouldn't class my current night time pain as severe the Oromorph seems to do little to stop the RA waking me up what feels like every few minutes during the night. The GP told me I could pretty well take as much as I needed, as often as I needed for the rls so I am taking more than the standard dose anyway and I had been hoping that pain relief would be an added benefit.

So would be interested to know from anyone else taking Oromorph what kind of dose they need to take to help with their arthritis pain.

Thanks.

Tillyxxx

bubbadog

Tilly I take Oromorph when I have flare up's and because I'm having one at the mo I thought I would type what the leaflet says so you can take a look and decide. I'm on 15mg/12ml every 4hrs and that helps, hope that might give you an idea but here's what the leaflet says:-

The usual dose (for an Adult) is 5 to 10ml (one to two teaspoons) every four hours.

That is what the offical leaflet says! I take 15mg/12ml because I've been taking it for quiet a while now. Hope that sheds some light for you my dear!

dreamdaisy

I've been known to take more than the guided dose (on advice from my rheumatology nurse) but to be honest it only dulled a little more, not removed altogether. I am glad to hear that it is helping the restless legs, that is a good thing, but I guess it's another of those things where we cannot, alas, have everything. Dammit. DD

julie47

Hi Tilly

I'm sorry I can't help but I just wanted you to know that I am thinking of you

love Julie Pf x

tillytop

Thanks so much for your replies.

Bubbadog - sorry you are having a flare at the mo - and thanks for taking the time to reply. My bottle is a lower dose than yours - but the information you have given is helpful thanks. Hope your flare subsides sooner rather than later.

DD - thanks for replying. You are quite right - I think I am just being greedy hoping it would help with the RA stuff as well! I really am so very grateful that it helps with the rls so much - just was hoping maybe to kill two birds with one stone. Hey ho.

Julie PF - thank you so much for taking the time to post and I hope you are doing as ok as you can be.

Thanks all.

Tillyxxx

barbara12

Hi Tilly
I was in charge of giving oromorph to my farther, he was blind and couldn't judge how much he was having.
I was told not to up the dose till he had been on the lower on for a couple of weeks, I think its a matter of your body getting used to it,
And for some reason it didnt seem to work for a few days then it kicked in, I do know it has to be taken regular to stop the pain signals from the brain.
I hope you get some relief very soon, and please double check with your GP.xx

Poppyg1rl

Hi Tilly,
I use oramorph too, my usual dose is 10 - 15ml every 4 hours depending on the severity of the pain.
I agree with Barbara's experience as i too found that I had to build it up over a few days for the full effect, I also use Celebrex and good old paracetamol for the really bad days/nights.
Hope that helps Tilly Xxx

frogmorton

Hi Tilly

Glad to see you and glader even that the restless legs are being helped.

Shame about the RA pain though :?

Maybe it IS a cumulative medication??

Fingers crossed for you

Love

Toni xxx

tjt6768

when I was taking it I found it worked more as a sedative type for me.. I would take it to help me try and sleep through the pain. Lets face out, when I'm deep asleep is the only time I'm not suffering with pain :roll:
Think that's why I like the diazepam so much, I use them in a similar way..
I can honestly say, after trying almost all the pain meds.. The only one that took the pain away for sure was pethadine.. Wonderful stuff.
Everything else just adjusts it a little :roll:

Best of luck mi dear

tillytop

Thanks Barbara, Poppy, Toni and TJT for your replies.

I am interested in what you say about the cumulative effect. It may be that it works differently for the rls but that for RA stuff it needs to be taken regularly rather than on a more ad-hoc basis. Hadn't thought of that. Having said that, I took less before going to bed last night than I did the night before yet I did have a much better night

Thanks again all (and lovely to see you Poppy - have been thinking of you and wondering how you are doing).

Tillyxxx