Hello so glad to be here!
Hi Im new on here and if I have found people with the same problems as me thank goodness!! I am 47 years old and have been in pain for over 20 years, I have psoriasis and have had a bad back for 20 years plus but as I had endometriosis they put the pain down to that, I had a total radical hysterectomy 2 years ago but the pain has not gone. I worked 40 plus hours a week as a senior carer in a residential home but since January this year I have not worked due to increased pain, the pain has increased to the point that it never goes away and it just eats away at me all the time, I cannot walk very far especially uphills, I cant stand for long or sit for long, I also have pain in my hands and feet and my fingers and toes are swollen. I recently just nursed my mother in law here at home with us as she was sadly diagnosed with a brain tumour on the 18th of April and sadly we lost her on the 18th of May she was ill just for 6 weeks. I managed this quite well but obviously the pain on moving her was awful but you just cope at the time. Anyway to cut a very long story short I went to the doctor last Friday to get my mri and ct scan results and they showed that I have a lesion in my spine and abnormalities on t1, t2, t11, t12 and l3 and while I was there I showed her the flare up of my psoriasis on my scalp and ears and told her how much worse the pain is now, it is a very bad flare up. She immediately took some bloods and said she thinks it is psoriatic arthritis so finally after 20 years of going backwards and forward I think someone is taking me seriously and she has referred me as an urgent case to a rheumatologist. If any of you can help me with what to expect or advice or if you want to talk please get in touch