Overwhelming
Saphire
Member Posts: 38
Hi to all,
I am new to this forum and trying to find my way around but from what I have seen so far seems to be very supportive.
I have recently stopped work and am soon to be moving home, it feels very overwhelming after living such an independent life, now being so dependent.
I was diagnosed with RA nearly five years ago but think I had probably had it for some time as I had been really struggling.
saphire
I am new to this forum and trying to find my way around but from what I have seen so far seems to be very supportive.
I have recently stopped work and am soon to be moving home, it feels very overwhelming after living such an independent life, now being so dependent.
I was diagnosed with RA nearly five years ago but think I had probably had it for some time as I had been really struggling.
saphire
0
Comments
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Hello saphire, it's nice to meet you and I am glad you have found us. This is a supportive place as we are all in very similar boats and we understand how difficult life can be when trying to live with arthritis. The disease whittles away at our morale, self-esteem, quality of life and it affects those around us too. You certainly sound as though you have a great deal on your plate at the moment, I know I should move soon and I honestly cannot find the required energy to cope with the upheaval.
I too have an auto-immune type of arthritis, psoriatic, and that has led in turn to OA. What meds are you taking and are they helping? Are you living on your own or do you have some kind of support from family and friends? I am still working (just) but I am fortunate in that I am self-employed and can therefore tailor things to suit me - and if that means stopping for a while every now and again so be it. I look forward to seeing your name here and there around the forum and I wish you well. DDHave you got the despatches? No, I always walk like this. Eddie Braben0 -
Hi saphire, welcome to the forum. You are right, the people here are very supportive.
I have RA too, I was diagnosed six years ago. For me this forum has been a godsend.
I look forward to seeing you post in the future.
Wishing you well,
Numpty0 -
welcome. not sure how i would feel about moving back home (but then i am 51 with two grown lads who still live at home) but there is usually some one here who can help valval0
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Hi Saphire
I am quite new here myself. I have RA and know full well the effect this has on our every day life's and for those around us. You are right, this community is great, very informative and supportive. Welcome aboard.
Den.0 -
Hi all,
Thankyou so much for your kind words. I feel less isolated already!!!
It feels as though everything changes with this illness and stopping work is incredibly isolating. I will be moving very soon, not back home but to alternative accommodation as I live in a tied property which went with my job.
My consultant wants me to change from MTX and SULPH and pain relief and steroid injectons to something called Humira ( I think is called) as the disease is very active and only just bearable with present drugs. I could not face changing until I have moved home, which has taken just over a year, as I experienced such awful side effects with MTX etc.
It probably sounds silly but I feel I can only deal with one thing at a time just now, so very different from when I was spinning all the plates in my job.
I live with my grandson who is at college and he is an angel. I have three daughters but they have small children and I just hate asking for help, infact I hate asking for help from anyone!!! I was just so used to doing things for myself.
Thankyou for being there!!!!0 -
Hi again Saphire. Far from being silly, I think dealing with one thing at a time is very sensible. You have a lot on your plate at the moment, and being in constant pain takes its toll. We all have to listen to our bodies, and adjust what we can and cannot do accordingly.
In the words of our very own Dalai DD, "This will pass, everything does"
Wishing you well,
Numpty0 -
You are absolutely right, sometimes we can only do one thing at a time and I think getting your accommodation sorted is the priority. I am on meth, sulph and humira, I've been taking the latter for nearly three years now (I've just typed that and reeled in shock!) and comfort myself with the thought that further joint damage is being slowed and neither do I flare as often. Both are good things.
I don't know about your mobility, mine has been somewhat compromised but I do move a little easier for five or six days after the humira whack and that is a good thing. I would like that to last longer but hey, we can't have everything! Everyone is different in how they react to the meds, but I know of a couple of posters who rarely post now as they are doing so well with it. DD
PS Numpty? Dalai DD? Moi? Far from it! Mind you, I had all my hair cut off this morning so there is more than a passing resemblance especially when I put my specs on!Have you got the despatches? No, I always walk like this. Eddie Braben0 -
Hello saphire I am quite new to the forum too.i like you are going down the path of anti tnfs as well as my psa is quite active at the moment and and mtx and sulphsalzine is not working so well.i moved house two weeks after I started taking Sulphsalzine but I had the help of some very good friends.i took it very slowly and did a little packing every day so paced myself.On the day as long as you can get as many people to help and try not to do to much yourself.my best friend was was brill getting everyone to sort things out .i did find that so hard as we have known each other for 34 years and I was the one doing the giving but that day she came into her own.if you let people help you will surprised.they don't want to see you in pain .as my sister told me once she can't take away my psa but she can help me deal with and it made her feel as she was doing something to help.asking anyone for help has always been my downfall.everyone around me was used to coming to me for help.to have to give in and admit we need help is really hard and if I am honest I still don't think I have quite mastered it but I'm getting there.I have found this forum great so far and the people so helpful
Milly0 -
Thankyou everyone. I can't wait to move as my home goes with my job and feel really awkward still living in their house for the past year while my ill health retirement went through. Yet I dread the actual move as I know I am only just about coping with day to day life as it is. I guess once it happens I will be able to think a little clearer and the positive thing is that we will be much closer to my daughters so I won't mind asking for help so much. All I can do is to focus on one thing at a time but that means things pile up. I also feel so sad that some friends have fallen away because I just can't do the things with them that I could before the RA took over. sorry to complain!!!0
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you will be so much better when move over and done with till then just cope as best you can as for friends well it times like this when you find out who they are good luck valval0
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hi Sapphire, sorry I'm only just saying hello.. I'm not on the ball at all lately lol.
We had to move three and a half years ago as the house we lived in was far from appropriate, we moved to a ground floor flat with disabled access and wet room shower.
It was very stressful at the time but I must say it's the best thing we have done.
It is nice to just not have to struggle with steps etc each day.
I wish you all the best with everything you've to go through and hope you find a home here, I know I have, and made some great friends in the process, the DDalai lama being one of the best lol...
I've seen the haircut, you look nowt like him DD
Me-Tony
Ra-1996 -2013 RIP...
Cleo - 1996 to 2011. RIP0 -
I do with me John Lennon specs decorating my nose - can't see owt through 'em tho.
Hello saphire, how are you feeling today? A little less overwhelmed I hope. DDHave you got the despatches? No, I always walk like this. Eddie Braben0 -
Hi to all, am feeling a bit more positive thanks to you all !!!
I have to remember that the sun still shines after the rain.
It's just so easy to let this illness get you down when there is a lot going on.
Have been following quite a strict but healthy diet so that doesn't help as I can't reach for the chocolate!
Am going to explore the chit chat later today to see what you all get up to.
thanks again for your care, Saph0
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