From MTX to Leflunomide - Feeling Great

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cakegirl
cakegirl Member Posts: 50
edited 27. Jun 2012, 02:25 in Living with Arthritis archive
hi everyone,

haven't posted in a while. it's usually when I'm suffering I tend to post more :oops:

anyways, after taking methotrexate for 18 months and coping with sickness, wiped out feelings and tummy aches I gave it up and had a break. boy did I feel the pain :cry: i felt terrible and realised that although the side effects were horrible the MTX had definately been working for me.

seen a fabulous new consultant too who advised i start on 20mg daily of leflunomide. i was so anxious at first as sickness was one of the side effects (i thought here we go again) but after 2-3 weeks the benefits started showing.

i'm now able to get out of bed without taking co-cod half an hr before.

i can now get back in and out of the bath, dress myself and no longer need to come down the stairs one at time very slowly. i've also been able to take my little girls to school again.

i'm so happy with it. just wanted to share as i feel as though i've had a new lease of life.

(although today i have overdone it by doing all the housework and getting a cake order out so really feeling it now :oops: bath and early night hopefully will sort me out)

sending gentle hugs to everyone xxxxx
Cakegirl xxx

Comments

  • Numptydumpty
    Numptydumpty Member Posts: 6,417
    edited 30. Nov -1, 00:00
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    Hi cakegirl, I'm really pleased you are having such success with Lef.
    When I tried it, I did find that it helped my RA, but I couldn't tolerate the side effects. Even when I tried it at a low dose, it made me very ill, and the room spinning dizzy spells were terrible.
    I hope it continues to help you. Take it easy.
    Wishing you well,
    Numpty
  • cakegirl
    cakegirl Member Posts: 50
    edited 30. Nov -1, 00:00
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    aww, sorry to hear that numpty. it just goes to show that we're all individual and what necessarily works for one may not for another.

    just happy that i don't have those awful side effects anymore that i used to get xxx
    Cakegirl xxx
  • lindalegs
    lindalegs Member Posts: 5,393
    edited 30. Nov -1, 00:00
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    Good news Cakegirl, a lovely positive post to give others hope. :D

    Long may it last.

    Thanks for taking the time to post. :D

    Enjoy your bath. e023.gif

    Luv,
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • stickywicket
    stickywicket Member Posts: 27,715
    edited 30. Nov -1, 00:00
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    That's great news, cakegirl, and thank you for sharing it with us. We keep telling newbies that it's horses for courses and eventually they'll hit on the right meds but it helps a lot if people come back to tell us. I hope lef continues to work well for you.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • tjt6768
    tjt6768 Member Posts: 12,170
    edited 30. Nov -1, 00:00
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    that's great news mi dear :D
    I'm very pleased, it's really nice to read the positive posts..
    Think I'm heading the meth route next. Lets hope it helps lol..

    Keep on posting as and when you can but don't apologise for not when you are living your life...
    Best wishes...
    Now.....

    Where's my cake :wink:

    Hey Sticky, why do I gery the feeling I'm following you lol
    e050.gifMe-Tony
    n035.gifRa-1996 -2013 RIP...
    k040.gif
    Cleo - 1996 to 2011. RIP
  • sciqueen
    sciqueen Member Posts: 21
    edited 30. Nov -1, 00:00
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    Hi

    That is great news. :D

    I hope you continue to expereince good results with the left, but remember to pace yourself a little better!

    Cheers Sci :lol:
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
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    Hi cakegirl
    What a lovely post, and its really good of you to share it, it will make such a difference to those that think there is know relief.
    Long may it continue for you, and its lovely to have you back with us :D xx
    Love
    Barbara
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
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    Hi Cakegirl,

    Good to see you but even better to read your dong so well :D:D

    Really is nice to know when things work flower and long may it do so for you. Cris x
  • frogmorton
    frogmorton Member Posts: 29,447
    edited 30. Nov -1, 00:00
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    Hi Cakegirls

    Lovely to see you again :D

    BUT the best news of all is how well you are doing!

    Long may it last :D

    Love and hugs

    Toni xxx