Swollen feet after Rituximab infusion - any thoughts please?

tillytop

Since my Rituximab infusion on Tuesday my feet and ankles have been really quite swollen - not RA inflammation swollen, but just really "boggy" with fluid. I noticed it after the infusion but was not surprised given the amount of fluid going in and the fact that I sat for about 9 hours with my feet down. I just expected it to go away once I was moving around more and/or sitting with my feet up. But despite sitting with my feet up for much of the past two days, the fluid retention is not decreasing - even after lying in bed all night it improves somewhat then returns again during the day. It's not painful, just a bit strange and wondered if anyone else has had ankle and foot swelling after an infusion of Ritux or anything else.

Just hope all the Ritux isn't pooled in my feet rather than doing its stuff where it should be

Any thoughts welcome.

Thanks,

Tillyxxx

[Deleted User]

Hi Tilly,
So far I had 7 rituximab infusions but what you're describing never happened to me. I usually get stiff from sitting for so long, but feel great the next day after the bag of steroids . Maybe you should mention that to your rheumy/rheumy nurse.

stickywicket

tillytop wrote:

Just hope all the Ritux isn't pooled in my feet rather than doing its stuff where it should be

Stand on your head????

Sorry, couldn't resist. I've only ever had something similar post-op and only badly after one THR. Couldn't get wide, large, men's C*syf**t slippers on let alone my surgical shoes. I just had to rest, elevate and wiggle the bits that'd wiggle. It did go down eventually but took its time.

Surgical stockings? The old, post-op ones? I'd ask first though because the tightness might help but mightn't be good in other ways.

dreamdaisy

Oh dear, I am so sorry that this has happened to you. I have a couple of thoughts but their relevance? That's debatable.

The 'muggy' weather could be a factor - as you pointed out, sitting for nine hours is not ideal and moving about hasn't sorted matters so perhaps the humidity is a possible cause. The atmospheric pressure here is very heavy so I assume/guess/hope the same is true with you and that when it breaks your swelling will ease. The other thought? It's that dread phrase that I have heard from my optician: it's your age. Sometimes stuff happens that has nothing to do with an auto-immune arthritis or its meds. Sorry. :oops: DD

mig

Hi Tilly,Hope the swelling has/is going by now and you feel better.Mig

barbara12

Hi Tilly
Sorry I dont know a thing about the meds, but this weather has been so humid, could that be the prob...I say this because my ankles have disappeared.
I hope they go down for you and hopefully stay down....you take care xx

Numptydumpty

Hi Tilly,
I hope you have some improvement today.
I can't offer any advice, just wanted you to know that I'm thinking of you.
Numpty

fowls48

Hi Tilly


Hope the swelling goes soon , sorry to hear this , i cannot help you

karen ((()))xx

tillytop

Thanks all for your wise replies (and not so wise - Sticky - in terms of "standing on my head ).

I have left a msg on the rheumatology helpline just to check it out and will see what they say. I am also having heart investigations and I believe that signficant fluid retention can indicate that the heart is not working as efficiently as it might and I wonder whether this is connected somehow. Hope not. :roll: I'm not hugely worried about it though and it does seem to be improving.

Thanks again.

Tillyxxx