daughter poorly & just diagnosed with IBD any advice?

maria09

Hi,
Just had a traumatic week last week
My daughter was rushed into hospital last week with low Hb of 5.4 needing 3 units of blood!
its such a long distressing story so the outcome is she has Ulcerative Colitis is on oral prednisolone plus vitb1 multi vits calcium & thiamine
Have appointment on fri at IBD clinic
Any advice abt the condition would help
Have read everything I can find on internet so mind boggles
Thank you
Maria

tjt6768

hi, just wanted to send some good wishes..
I've got IBS and suspected IBD... I know that the sulfasalazine are helping my stomach. Im also on alverine and peppermint oil capsules.
Don't know if that's any use.
Good luck with everything

elainebadknee

Maria

Can i be dim and ask what IBD is, im guessing at Irritable Bowel Disease but could be totally way off the mark....Its great there's clinics for it if so...Ive got it myself..

Elainex

maria09 wrote:

Hi,
Just had a traumatic week last week
My daughter was rushed into hospital last week with low Hb of 5.4 needing 3 units of blood!
its such a long distressing story so the outcome is she has Ulcerative Colitis is on oral prednisolone plus vitb1 multi vits calcium & thiamine
Have appointment on fri at IBD clinic
Any advice abt the condition would help
Have read everything I can find on internet so mind boggles
Thank you
Maria

suzygirl

IBD is inflammatory bowel disease such as crohns or in this case ulcerative colitis.

I am sorry to hear this regarding your daughter,my cousin has this only recently diagnosed and is doing well now stabilised on meds.

maria09

Thank you for your replies
My daughter is doing well still taking steroids & starting mesalazine Then back to see the consultant
Long may she continue to improve
Maria

dreamdaisy

Oh dear Maria09, what a blow for you and her. I'm pleased to read that she has some meds and I hope they kick in soon and help. Is her diet going to be a factor? How has your arthritis reacted to the stress? I hope it hasn't. DD

maria09

Thank you Dreamdaisy,
My arthritis is playing up but thats nothing new!
My stress levels are sky high as im also trying to go down the ill health route at work!
My daughter is doing ok but she keeps having little blips & becomes so upset & angry all which I dont blame her!
I wish it was me going through it not her shes nearly 18, well 18 on saturday she should be out enjoying herself not at home stressing
Hopefully she will have a good time out with her friends on sat it will be the first time in months since she has been out!
That was the day we were going to Italy on holiday but its not to be
She has omited lactose from her diet as this was causing severe stomach pain
She is on prednisolone 30mgs & is suffering from sleepless nights & always hungry
She is now working untill she starts uni luckily its close to home so I can be around when she needs me.
Didnt realise I had written an essay
Thanks for listening
Maria

dreamdaisy

Lactose is difficult for humans to digest so hopefully cutting it out should help her. I'm not surprised she's struggling with this and I'm not surprised you're struggling too. Toough times for you both, yes? I'm sorry that you have had to abandon your holiday, I reckon you both could do with one but maybe later, when things have settled a little, you can go and both reap the benefit it can offer. DD

barbara12

Hi Maria
I am sorry I cant offer any help, but I can offer my support, its awful when your children are poorly, and so hard on you.
I really wish her well with the treatment, and here some hugs for you ((((()))...xx

maria09

thank you both for your replies
& thank you for the hugs Barbara
Maria x