Trip to disney orlando- advise please

Options
millymolly
millymolly Member Posts: 14
edited 24. Aug 2012, 04:13 in Living with Arthritis archive
Hi, I am off to Disney in sept with my husband and 2 children age 14 and 10. We are staying in a resort hotel. I have RA and Lupus, I am currently having meth injections and I am having a steroid injection just before I go/ I know I will have to pace myself and my rhemy nurse has suggested hiring a wheelchair. Does anyone have any tips for me. I'm starting to think that I am stupid for agreeing to go and that I am going to ruin the hol because I can't keep up. :?

Comments

  • lindalegs
    lindalegs Member Posts: 5,393
    edited 30. Nov -1, 00:00
    Options
    Hi Millymolly,

    Try not to worry about holding your family up as they know what your problems are and shouldn't expect too much from you. Make sure you have a rest when you feel tired and that'll recharge your batteries again.

    When you have a special holiday coming up some Rheumys will give a inter-muscular steroid injection to calm your disease down and make sure you get the most from your holiday, maybe you can give them a ring to discuss this if you want to go down that route.

    And finally if you did want to hire a wheelchair you can do so from the your local Red Cross and all they'll ask for is a small donation to their funds.

    Hope this helps and hope you do have a lovely holiday.

    Luv,
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • Tubby
    Tubby Member Posts: 177
    edited 30. Nov -1, 00:00
    Options
    Wow, sounds like a great trip! I just wanted to say that my experience of the US is that they cope with disability much better than us and Disney is particularly good. Most if not all of the rides and attractions are designed for all comers and it is accepted as the norm for people to use wheelchairs. All of the tourist attractions will let you hire wheelchairs of every variety, including motorised ones but I must admit, I am not sure of the cost. I am sure you wil have a great time and I can't think of a better place to go if you need to cater for adults and children and people moving at all speeds!
    Have a great time!

    Tubby
  • LignumVitae
    LignumVitae Member Posts: 1,972
    edited 30. Nov -1, 00:00
    Options
    Do what you can, as you can and make sure you enjoy yourself. There is nothing wrong with saying 'this afternoon, I shall be sitting reading a book in the sunshine whilst you all tear around.' Another option is to become the official photographer so you can sit and watch and they can do and you still participate by taking the pictures of them on the rides. They will understand and appreciate that you are doing all you can and doing it your way. Have fun xx
    Hey little fighter, things will get brighter
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    Options
    How lovely. Your children are old enough to be more independent, queue up and go on the rides alone and you could have a pre- arranged meeting place, so you could sit and watch them,saving your strength for some rides you want to go on. Fatigue is an issue as well as pain and can understand how apprehensive you feel.

    I have seen pics of people in wheelchairs and golf buggies driving around the park. I'm sure you can hire one.

    I was going to go to Disneyland Paris but my son is autistic and started panicking and asking about noise so I've given up on that one.

    Have a lovely time

    Elizabeth x
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    Options
    laptop is playing up. Can't delete sorry

    Elizabeth
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • SteveBurns
    SteveBurns Member Posts: 177
    edited 30. Nov -1, 00:00
    Options
    I went a couple of years ago and used the hotel wheelchair around the accommodation but hired a scooter for out and about.

    My daughter is a wheelchair user so that made two of us to accommodate.

    Most Disney parks allow wheelchair users to get right to the front of the queue but check at the customer services as one of the parks issued a disabled pass. No pass no queue jumping.

    Most if not all rides are disabled friendly but some has specialised cars that accommodate the wheelchair so you will wait for them to get to you.

    You will have a fantastic time, I wish I was going with you :)
  • 7worlds
    7worlds Member Posts: 302
    edited 30. Nov -1, 00:00
    Options
    Hi Millymolly. Iwas there four weeks ago. I have RA and before i went i got a steroid injection from my doctor which really helped. I was lucky to not feel the need for a wheelchair, but they are easily available and i saw that the disabled facilities were excellent. I also found the warm weather really helped my joints. I tried to pace myself as best as i could. A wee word of warning though. Dont be surprised if you are knackered for a while when you get home, however it will be worth it :D Have Fun!!

    7worlds
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Options
    Hi Millymolly

    I wonder if you could ask your travel agent (or enquire yourself) to ring the hotel to see if there is anywhere near that you could hire a chair or a scooter and book in advance.

    Or perhaps ask your rhummy for a intra muscular injection to help with your mobility.

    I am not sure if there is a D.I.A.L near you but I think they hire out chairs.

    Good luck, I hope you find one
    And have A Lovely Holiday :D

    Love Juliepf x
  • SteveBurns
    SteveBurns Member Posts: 177
    edited 30. Nov -1, 00:00
    Options
    To add to what I already wrote the Disney buses are brilliant if you use them to the theme parks. They get the wheelchair/scooter users onto the bus before anybody else, they have space for two. Then everyone else gets on, some have to stand up so you may be better having a wheelchair or scooter.
  • lulubell69
    lulubell69 Member Posts: 110
    edited 30. Nov -1, 00:00
    Options
    Last time we went I hired wheelchair as soon as we entered each park, can't remember but I think about 8 pounds a day, but you can pay to hire one weekly etc and have free access each time you visit a Disney park. This would have been cheaper for us but we weren't aware you could do this. Using a wheelchair didn't allow us to jump many queues though although there is often separate queues for wheelchairs and families.
    Hope you have a fab time

    Take care
    Les
  • millymolly
    millymolly Member Posts: 14
    edited 30. Nov -1, 00:00
    Options
    Thank you all for your advise, I will definately use it. My husband read them too which will help . X
  • frogmorton
    frogmorton Member Posts: 29,445
    edited 30. Nov -1, 00:00
    Options
    Millymolly

    I have only one peice of advice - make sure you have your health insurance ready.

    I am certain you will be fine, but it was in Florida my back finally gave out and was I glad I had it ready, as over there you get nothing unless you pay. The treatment was EXCELLENT :)

    Have a fabulous time won't you

    Love

    Toni xxx